Re: Introduction to Tanner

[Guest guest]

Hi, we are in Monterey, welcome!

I am the adoptive mommy to a 2 year old girl with RSS.

Introduction to Tanner

Tanner is 10 years old with RSS. He weighs 40 pounds right now. We

just got physical custody of him in June. He weighed 36 pounds when he

got here. His mom used to tell Tanner that he was a dwarf, and called

him " Shorty " , even had that printed on his soccer jersey. So far, he

is on a high calorie diet alone. He was on growth hormones when he was

a toddler. He is in 4th grade, and doing well. Some kids have made

comments, but he has amazing strength. We don't know anyone locally

with RSS, and are hoping to meet more kids here. We live in Northern

CA. Tanner is just starting to type, and wants to learn more about RSS

too. His teacher is going over it with him today. Tanner has been

through a lot in his life already, and we are looking forward to this

transition being a positive one for him.

Elisabeth (stepmom to Tanner)

[Guest guest]

Elisabeth,

Welcome to this wonderful group, and I am so glad to hear Tanner is

in a place where he is getting the attention that his RSS needs. Too

bad about his mom.

So, is Tanner no longer on GH? If so, will you be starting it up

again? Have you checked out The MAGIC Foundation website yet? They

are a great support for all of us and would encourage you to check

them out and join as well. The cost is minimal. Go to

www.magicfoundation.org.

I am glad Tanner is doing well and take care.

Jodi R.

> Tanner is 10 years old with RSS. He weighs 40 pounds right now. We

> just got physical custody of him in June. He weighed 36 pounds when

he

> got here. His mom used to tell Tanner that he was a dwarf, and

called

> him " Shorty " , even had that printed on his soccer jersey. So far,

he

> is on a high calorie diet alone. He was on growth hormones when he

was

> a toddler. He is in 4th grade, and doing well. Some kids have made

> comments, but he has amazing strength. We don't know anyone locally

> with RSS, and are hoping to meet more kids here. We live in

Northern

> CA. Tanner is just starting to type, and wants to learn more about

RSS

> too. His teacher is going over it with him today. Tanner has been

> through a lot in his life already, and we are looking forward to

this

> transition being a positive one for him.

>

> Elisabeth (stepmom to Tanner)

[Guest guest]

welcome to the group.you will get allot of information from all of us.sorry we

do not live in your area we are in ny. check out magic foundation and dr

harbison she is in ny but is the best. good luck and keep in touch.

mom to tori 5 rss and gina 2 nonrss

Introduction to Tanner

Tanner is 10 years old with RSS. He weighs 40 pounds right now. We

just got physical custody of him in June. He weighed 36 pounds when he

got here. His mom used to tell Tanner that he was a dwarf, and called

him " Shorty " , even had that printed on his soccer jersey. So far, he

is on a high calorie diet alone. He was on growth hormones when he was

a toddler. He is in 4th grade, and doing well. Some kids have made

comments, but he has amazing strength. We don't know anyone locally

with RSS, and are hoping to meet more kids here. We live in Northern

CA. Tanner is just starting to type, and wants to learn more about RSS

too. His teacher is going over it with him today. Tanner has been

through a lot in his life already, and we are looking forward to this

transition being a positive one for him.

Elisabeth (stepmom to Tanner)

[Guest guest]

Welcome Elisabeth

As others have pointed out, make sure you get in touch with the MAGIC Foundation

either at www.magicfoundation.org or 1-8003MAGIC3. It sounds like Tanner is in

a better place already. Post any questions or comments and you will get

responses. It is one big family here and we are here for any questions, support

and listening to any type of frustrations or complaints.

B

5 1/2 and Kelli 3

tkkmommy wrote:

Tanner is 10 years old with RSS. He weighs 40 pounds right now. We

just got physical custody of him in June. He weighed 36 pounds when he

got here. His mom used to tell Tanner that he was a dwarf, and called

him " Shorty " , even had that printed on his soccer jersey. So far, he

is on a high calorie diet alone. He was on growth hormones when he was

a toddler. He is in 4th grade, and doing well. Some kids have made

comments, but he has amazing strength. We don't know anyone locally

with RSS, and are hoping to meet more kids here. We live in Northern

CA. Tanner is just starting to type, and wants to learn more about RSS

too. His teacher is going over it with him today. Tanner has been

through a lot in his life already, and we are looking forward to this

transition being a positive one for him.

Elisabeth (stepmom to Tanner)

[Guest guest]

> > Tanner is 10 years old with RSS. He weighs 40 pounds right now.

We

> > just got physical custody of him in June. He weighed 36 pounds

when

> he

> > got here. His mom used to tell Tanner that he was a dwarf, and

> called

> > him " Shorty " , even had that printed on his soccer jersey. So

far,

> he

> > is on a high calorie diet alone. He was on growth hormones when

he

> was

> > a toddler. He is in 4th grade, and doing well. Some kids have

made

> > comments, but he has amazing strength. We don't know anyone

locally

> > with RSS, and are hoping to meet more kids here. We live in

> Northern

> > CA. Tanner is just starting to type, and wants to learn more

about

> RSS

> > too. His teacher is going over it with him today. Tanner has

been

> > through a lot in his life already, and we are looking forward to

> this

> > transition being a positive one for him.

> >

> > Elisabeth (stepmom to Tanner)

[Guest guest]

> > Tanner is 10 years old with RSS. He weighs 40 pounds right now.

We

> > just got physical custody of him in June. He weighed 36 pounds

when

> he

> > got here. His mom used to tell Tanner that he was a dwarf, and

> called

> > him " Shorty " , even had that printed on his soccer jersey. So

far,

> he

> > is on a high calorie diet alone. He was on growth hormones when

he

> was

> > a toddler. He is in 4th grade, and doing well. Some kids have

made

> > comments, but he has amazing strength. We don't know anyone

locally

> > with RSS, and are hoping to meet more kids here. We live in

> Northern

> > CA. Tanner is just starting to type, and wants to learn more

about

> RSS

> > too. His teacher is going over it with him today. Tanner has

been

> > through a lot in his life already, and we are looking forward to

> this

> > transition being a positive one for him.

> >

> > Elisabeth (stepmom to Tanner)

[Guest guest]

Hi Jodi-

Thank you. Yes, I did check out the magic foundation, and just

joined again. They do have a great website. I am not sure if Tanner

will be on GH again (he was on it for a short time when he was a

toddler, but I am not sure why he was stopped). We just got him to

the pediatrician, and he is working to get a medical history on

Tanner. Our pediatrician has had patients with RSS. Has the GH

helped your child?

Elisabeth

> > Tanner is 10 years old with RSS. He weighs 40 pounds right now.

We

> > just got physical custody of him in June. He weighed 36 pounds

when

> he

> > got here. His mom used to tell Tanner that he was a dwarf, and

> called

> > him " Shorty " , even had that printed on his soccer jersey. So

far,

> he

> > is on a high calorie diet alone. He was on growth hormones when

he

> was

> > a toddler. He is in 4th grade, and doing well. Some kids have

made

> > comments, but he has amazing strength. We don't know anyone

locally

> > with RSS, and are hoping to meet more kids here. We live in

> Northern

> > CA. Tanner is just starting to type, and wants to learn more

about

> RSS

> > too. His teacher is going over it with him today. Tanner has

been

> > through a lot in his life already, and we are looking forward to

> this

> > transition being a positive one for him.

> >

> > Elisabeth (stepmom to Tanner)

[Guest guest]

Thank you so much for the responses. We are loooking forward to

being a part of this group.

Elisabeth

> Tanner is 10 years old with RSS. He weighs 40 pounds right now. We

> just got physical custody of him in June. He weighed 36 pounds

when he

> got here. His mom used to tell Tanner that he was a dwarf, and

called

> him " Shorty " , even had that printed on his soccer jersey. So far,

he

> is on a high calorie diet alone. He was on growth hormones when he

was

> a toddler. He is in 4th grade, and doing well. Some kids have made

> comments, but he has amazing strength. We don't know anyone

locally

> with RSS, and are hoping to meet more kids here. We live in

Northern

> CA. Tanner is just starting to type, and wants to learn more about

RSS

> too. His teacher is going over it with him today. Tanner has been

> through a lot in his life already, and we are looking forward to

this

> transition being a positive one for him.

>

> Elisabeth (stepmom to Tanner)

>

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