Re: 's reflux is out of control

[Guest guest]

Judith,

Max's reflux is out of control, too. I, too, have tried to reach

someone at Dr. H.'s and had no reply for three weeks. Yadira told

me to email Dr. H. and the times that would be good. I did that and

still she never replied.

I feel so badly for . I know how Max is complaining about the

reflux. And I know the sound you are talking about. He probably

sounds a bit like Max. Why is this happening to our kids? I

thought that the fundo. was supposed to stop this. I intend to

discuss this with Dr. H. tomorrow. I'll also tell her about

and see if I can get info for you. Our appt. is at 2, though.

The treatment for Max right now as per his GI is to take Protonix

2x/day. That is supposed to keep those proton pumps from making any

acid at all. I guess there is some reprieve, but not much.

I'm sorry you have to work so hard. And Becca's comment would have

just made me sob. At least your husband is there for them. I know

he's not mommy, but he is really warm and caring.

Jodi Z

[Guest guest]

hey judith!!

sorry to hear jason is feeling well!! hopefully dr h gets back to

you ASAP. i think she just got home yesterday or was coming home

today from vacation.

jodie c

>

> Jodi Z,

>

> Right now I am totally jealous that you are seeing Dr H tomorrow.

I

> left a message for her on Friday, but who knows if anyone is going

> to get back to me. 's reflux is TOTALLY out of control. He

is

> doing this thing that isn't quite hiccuping and isn't quite

burping

> but is a definite sign of his reflux kicking up. Plus, he caught

> Becca's cold which means starting the nebulizer (every cold leads

to

> an astma episode these days) at least 3 times a day. If we are

> really lucky, we won't have to break out the prednisone.

>

> If I haven't heard from anyone by noon on Tuesday, I am going to

> call Yadira every hour until she makes someone call me back. I

> don't know if we need to up his meds or change them, but we need

to

> do something.

>

> To add to our lives, I am typing this from WORK. I am living at

my

> office. I am an accountant. However, all my clients are on

> extension and file 10/15. I have been working 6 days/week since

> Labor Day. Today I was at work by 6 am and will leave just in

time

> to get home for dinner with the kids. Friday night the kids

called

> me and Becca said " mommy it is my busy season too. " Talk about

> ripping your heart out.

>

[Guest guest]

Hi

Just read a few things here that remind me of Liam(4.5 RSS)

firstly Liam seems to go through stages of his reflux being under

control and then, medication just not working. Our new GI Dr has us

using zantac once a month for a week, which seems to help.

Liam is on Losec a proton pump inhibitor, morning on night(20mg and

10mg), because he has a gtube, when he first started we used zantac

(which neutralises the acid)for a week. Proton pump inhibitors are

deactivated in acid, thats why they have an enteric coat which

carries them through the stomach past the acid.When we break the

tablet to dissolve it and put it through the gtube, it goes into the

acid in the stomach. By starting with the zantac, we neutralise the

acid and the drug has a chance to work.

But we have to use the zantac quite regularly to ensure the Losec

has a chance to work.

I know Dr H is aware of this, so I may be preaching stuff already

known, but it amazes me how I can become unaware of whats happening.

eg Liam has an infection, probably vommits his Losec when he has a

high temp, the acid takes over in his stomach again and the losec

just doesnt work even though he is on big doses, until we

reintroduce the zantac, and get everything under control again.

Sorry this is long winded, I know reflux is soooo hard to live with

and get under control.

Jody(mum to Liam 11kg(still) ?90cm gh, losec, zantac, movicol, and

at present 2x antibiotics for ear infections)

>

> Jodi Z,

>

> Right now I am totally jealous that you are seeing Dr H tomorrow.

I

> left a message for her on Friday, but who knows if anyone is going

> to get back to me. 's reflux is TOTALLY out of control. He

is

> doing this thing that isn't quite hiccuping and isn't quite

burping

> but is a definite sign of his reflux kicking up. Plus, he caught

> Becca's cold which means starting the nebulizer (every cold leads

to

> an astma episode these days) at least 3 times a day. If we are

> really lucky, we won't have to break out the prednisone.

>

> If I haven't heard from anyone by noon on Tuesday, I am going to

> call Yadira every hour until she makes someone call me back. I

> don't know if we need to up his meds or change them, but we need

to

> do something.

>

> To add to our lives, I am typing this from WORK. I am living at

my

> office. I am an accountant. However, all my clients are on

> extension and file 10/15. I have been working 6 days/week since

> Labor Day. Today I was at work by 6 am and will leave just in

time

> to get home for dinner with the kids. Friday night the kids

called

> me and Becca said " mommy it is my busy season too. " Talk about

> ripping your heart out.

>

[Guest guest]

Hi Jody,

's reflux has been under control for so long, that this is new

territory for us. Hopefully Dr H will get back to me today or

tomorrow. I think it is time for a change in medication. He has

been on prilosec and zantac for so long, that even though we have

steadily increased the dose, I think they are loosing their

effectiveness. Thanks for the information, I will talk to Dr H

about it.

Judith, Steve, (RSS) and (non RSS) 5 year old twins

> >

> > Jodi Z,

> >

> > Right now I am totally jealous that you are seeing Dr H

tomorrow.

> I

> > left a message for her on Friday, but who knows if anyone is

going

> > to get back to me. 's reflux is TOTALLY out of control.

He

> is

> > doing this thing that isn't quite hiccuping and isn't quite

> burping

> > but is a definite sign of his reflux kicking up. Plus, he

caught

> > Becca's cold which means starting the nebulizer (every cold

leads

> to

> > an astma episode these days) at least 3 times a day. If we are

> > really lucky, we won't have to break out the prednisone.

> >

> > If I haven't heard from anyone by noon on Tuesday, I am going to

> > call Yadira every hour until she makes someone call me back. I

> > don't know if we need to up his meds or change them, but we need

> to

> > do something.

> >

> > To add to our lives, I am typing this from WORK. I am living at

> my

> > office. I am an accountant. However, all my clients are on

> > extension and file 10/15. I have been working 6 days/week since

> > Labor Day. Today I was at work by 6 am and will leave just in

> time

> > to get home for dinner with the kids. Friday night the kids

> called

> > me and Becca said " mommy it is my busy season too. " Talk about

> > ripping your heart out.

> >

>

[Guest guest]

My question is, and I intend to bring this up with Dr. H. today, WHY

are our kids having so much trouble with reflux after we put them

through the nissen fundo? It seems that Max's reflux is worse than it

has been for a long time. It's been only a little over 2 years since

his surgery. What is going on?

I'll let you know what Dr. H. says.

Jodi Z