Guest guest Posted August 25, 2005 Report Share Posted August 25, 2005 Hello everyone, Madison's MRI was fine so I met with Dr. H and the GI doc today and they are going to do another gastric emptying study tomorrow and also an endoscopy. They have found that she was severly constipated and her belly was full of air despite our constant venting. She is now getting Miralax which I know many of you are familiar with and Protonix which isn't really approved in children however nothing else helped so they didn't have a choice. she is currently on the TPN and getting the total fat. What I do know for sure is that Maddy will come home the TPN and NO GI FEEDS untill Dr. Spigland is back from vacation (around sept 7th ) . When Dr. Spigland gets back she is going to have her nissan repaired and the g tube removed. They will place a G-J instead but it will be moved higher up on her belly. They are going to start her back on food when the edoscopy and Gastric emptying study are done however her sugars are already in the 150's from the TPN so Dr. H doesn't want her getting carbs. Great what doesn't have CARBS!!!! Today she is much happier we are playing in the play room and she acually talked to Dr. H today!!!! Big improvemnet for her LOL. Dr. H is going to deal with Maddy's insurance company herself so hopefully there won't be any problems. Well i'll post again later. Thanks to everyone for the support, Chrissy Quote Link to comment Share on other sites More sharing options...
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