Guest guest Posted September 30, 2005 Report Share Posted September 30, 2005 Cross your fingers and your toes and anything else you can get to cross please! We're heading out this afternoon for Olivia's 3 day Pamidronate IV treatment in the hospital and then is the big Endo appt. on Tuesday. I truly hope I can convince the Endo to Rx the GHT without a lot of fuss. The rules are a little different here in Canada that GH is only Rx'd for growth hormone defincy (sp) and s Syndrome. I've got a few studies ready to show her and MY height and weight chart from when I was a child. I need to get the Endo to wrap her head around the fact that 4'10 " is Olivia's TARGET height. Without GHT she will be lucky to reach 4'. They seem to be stuck on the word " tracking " . Yes Olivia's tracking to around 4'8 " but with early bone fusion she doesn't even have a hope for that. And lets not forget about all the other benefits! Especially bone mass since she has OI also. Anyway, didn't mean to start rambling here. Keep us in your thought for Tuesday and send out fairy dust to the Endo to pursuade her!!! Leah, mom to 10yrs and Olivia 5.75yrs, 22lbs, 36 " , RSS, OI Quote Link to comment Share on other sites More sharing options...
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