Dr. Ponseti's reply about Lilee

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Well, I called Dr. Ponseti today. He was in the middle of reading my email, and

looking at the pictures. The butterflies in my stomach were too much, so I HAD

to call him...lol...He said he thought her foot looked pretty good. That there

was no need for anything. He said to keep the CF at 50 and turn the nonCF to 20

(it was at 40). So I turned the CF side back to 60 (this felt more comfortable

and assuring to me), and the nonCF to 20. This actually made what seemed to be

an immediate change in the way Lilee could move in the brace oddly enough. She

instantly turned over, and got up on all 4s. I dont know if this was a fluke or

not, but it was pretty cool. She only stayed up for about 5 seconds, but it was

great! He said to keep her in for the same hours (16-18). He said it would be

really good for her with her foot and legs being so chubby to encourage her to

stand. He said to try and get her to balance equally by putting something under

her forefoot so that her feet

couldnt rock because of the heel in the P/Ms. So I was thinking maybe adding a

shoe lift to the front of them? What do you all think? The local Orthotist said

he could do it with a soft foam so that when she stood, it would be like her

standing with a normal pair of shoes on, hense the bar of course. He also said

he would like to know when Lilee starts standing on her own, and starting to

walk.

I am continuing to use the gel pads sent. Her sores from before

are healed. She is scared, but I think those will lighten and go away over time.

I am noticing that she does have new red marks where the old sores were. Not as

bad as before. has on order, and is going to send me some thicker

gel pads to see if this will rid of those red marks. I will just be watching for

now. But IF they eventually turn into sores we will be needing to make a trip to

Iowa to have work hands-on with Lilees feet. I hope that this wont happen.

Lilee had another IEP/Early Intervention assesment. Before they said she didnt

qualify, but this time sounded like she might. They said she is borderline, but

as long as her Local MD said Ok, then they would enter into the program. This

will give her a close watch on her development. And will give her Physical

Therapy 1X per week. I am Ok with this even though it is not a must for the

Ponseti Method. I have been doing the Dobbs stretches with Lilee since she was

out of the brace for 5 days to let her sores heal. I just contiued to do it, and

I have noticed increased dorsoflexion! This is great for her since she ws about

5 degrees under what Dr. P origionally does. Now she is at and maybe even above

what Dr. P see's as satisfactory!

I will keep you all updated on everything. We will see how Lilee does with the

degree change. So far she has shown no discomfort or anything.

Thanks to all who replied and helped!

Christee

Mother of...

*Josh~Learning/Speech Delays (9)

**Aspen~ Bilateral Metatarsus Adductus (6)

***Dylan~PTSD/Anxiety (4)

****Lilee~A-Typical UCF w/Plantaris ® & Metatarsus Adductus (L)

*P/M Brace 16-18/24.Struggling w/pressure sores (8 months)

Concidering Dobbs bar & braces

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