Re: Daycare made the helmet way too tight...2 questions...

[Guest guest]

Why did they remove it to begin with?

I told my provider that she didn't need to do anything with it, he wears it all

day long. I told her only to remove it if he needed some kind of care that she

couldn't give with the helmet on...aka and emergency. She is able to change his

clothes with it on if she needs to, so she never takes it off. She jokes that

she hasn't seen his head in 6 weeks!

Anyway, I would just tell them not to touch it.

>

> I have no idea how long it was like this but the DOC Band had been cinched

down about an inch past where it normally settles onto her head. When I took the

helmet off I could trace the entire outline of the helmet around her head as a

dent in the skin and the entire area turned pinkish like the blood was returning

the surface. I called yesterday after getting home (and saw how tight the band

was) to see who was the last to care for my daughter's helmet but no one would

fess up to it. After 4 hours the dents were not so deep and the pink had only

faded to half of it's original color so I left the helmet off for the night and

everything looked normal this morning.

>

> (1) How long should it have taken for these marks to go away? It seems to me

that because the marks took so long to fade then the helmet must have been

cinched down for quite some time.

>

> and (2)What can I do to make the daycare providers realize how important it is

to care for the helmet correctly? I've given hand written instructions, the

papers from Cranial Technologies, wrote on her daily care sheet every day for

two weeks (we usually have the same three ladies) and also have written

abbreviated instructions on my daughter's general care sheet with mention of the

more detailed information in my daughter's cubby. I thought I was going

overboard with paranoia in all the places where I described her helmet care but

it seems like no one paid any attention to it.

>

[Guest guest]

The helmet must be removed to do the exercises for tort and she needs to do

those with at least every diaper change and her physical therapist works with

her for 30-60 minutes once a week. Also, most of her clothes don't fit over the

helmet. I usually send her in button up outfits but she usually goes through 2-3

outfits while at daycare and I just don't have enough clothes that do fit over

the helmet. She's also a sweater and so they dry her head off every time they

take the helmet off.

> >

> > I have no idea how long it was like this but the DOC Band had been cinched

down about an inch past where it normally settles onto her head. When I took the

helmet off I could trace the entire outline of the helmet around her head as a

dent in the skin and the entire area turned pinkish like the blood was returning

the surface. I called yesterday after getting home (and saw how tight the band

was) to see who was the last to care for my daughter's helmet but no one would

fess up to it. After 4 hours the dents were not so deep and the pink had only

faded to half of it's original color so I left the helmet off for the night and

everything looked normal this morning.

> >

> > (1) How long should it have taken for these marks to go away? It seems to me

that because the marks took so long to fade then the helmet must have been

cinched down for quite some time.

> >

> > and (2)What can I do to make the daycare providers realize how important it

is to care for the helmet correctly? I've given hand written instructions, the

papers from Cranial Technologies, wrote on her daily care sheet every day for

two weeks (we usually have the same three ladies) and also have written

abbreviated instructions on my daughter's general care sheet with mention of the

more detailed information in my daughter's cubby. I thought I was going

overboard with paranoia in all the places where I described her helmet care but

it seems like no one paid any attention to it.

> >

>

[Guest guest]

Hi , Is there any way for you to physically show the 3 providers how to

put the band on properly? And emphasize that the strap doesn't have to be

tightened, just flipped over?

It might seem like you are paranoid to them, but my son still has a faint line

on his forehead a year later and I would hate that to happen to your daughter.

Luke, DOCband & STARband grad '09

NYC

> > >

> > > I have no idea how long it was like this but the DOC Band had been cinched

down about an inch past where it normally settles onto her head. When I took the

helmet off I could trace the entire outline of the helmet around her head as a

dent in the skin and the entire area turned pinkish like the blood was returning

the surface. I called yesterday after getting home (and saw how tight the band

was) to see who was the last to care for my daughter's helmet but no one would

fess up to it. After 4 hours the dents were not so deep and the pink had only

faded to half of it's original color so I left the helmet off for the night and

everything looked normal this morning.

> > >

> > > (1) How long should it have taken for these marks to go away? It seems to

me that because the marks took so long to fade then the helmet must have been

cinched down for quite some time.

> > >

> > > and (2)What can I do to make the daycare providers realize how important

it is to care for the helmet correctly? I've given hand written instructions,

the papers from Cranial Technologies, wrote on her daily care sheet every day

for two weeks (we usually have the same three ladies) and also have written

abbreviated instructions on my daughter's general care sheet with mention of the

more detailed information in my daughter's cubby. I thought I was going

overboard with paranoia in all the places where I described her helmet care but

it seems like no one paid any attention to it.

> > >

> >

>

[Guest guest]

I did spend the first three days driving back and forth from work to do the

checks as she first adjusted to the band. The first day the providers watched me

and day 2 and 3, I watched them put it on so I know that these providers know

how to care for her helmet. They mentioned Friday afternoon that Cranial

Technologies had called about the issue but they didn't tell me what all was

said. I had called CT first thing Friday morning because I was so upset about

how long the marks took to fade and they had asked for the daycare's

information. But really they could only reiterate what I had already told the

daycare, but maybe because it was directly from the clinic it won't happen

again.

> > > >

> > > > I have no idea how long it was like this but the DOC Band had been

cinched down about an inch past where it normally settles onto her head. When I

took the helmet off I could trace the entire outline of the helmet around her

head as a dent in the skin and the entire area turned pinkish like the blood was

returning the surface. I called yesterday after getting home (and saw how tight

the band was) to see who was the last to care for my daughter's helmet but no

one would fess up to it. After 4 hours the dents were not so deep and the pink

had only faded to half of it's original color so I left the helmet off for the

night and everything looked normal this morning.

> > > >

> > > > (1) How long should it have taken for these marks to go away? It seems

to me that because the marks took so long to fade then the helmet must have been

cinched down for quite some time.

> > > >

> > > > and (2)What can I do to make the daycare providers realize how important

it is to care for the helmet correctly? I've given hand written instructions,

the papers from Cranial Technologies, wrote on her daily care sheet every day

for two weeks (we usually have the same three ladies) and also have written

abbreviated instructions on my daughter's general care sheet with mention of the

more detailed information in my daughter's cubby. I thought I was going

overboard with paranoia in all the places where I described her helmet care but

it seems like no one paid any attention to it.

> > > >

> > >

> >

>