Re: Casting after surgery?

May 30, 2006

I advise a good solid 2nd opinion from a Ponseti trained doctor. There may be

other options, or at least a less-severe surgery you can attempt.

good luck,

s.

Casting after surgery?

I have already written this on another board, as I did not know

about this one:) For those who frequent the other board, this is a

cut and paste of my previous posts.

My daughter, , was born with a bilateral clubfoot. She was

casted at 8 days old and was treated surgically at 10 months. I

don't know the full extent of the surgery, as our doctor seems to

dislike talking about it. I know she had a tendon lengthening and

he told us a year after her surgery that he also did some

reconstruction on her foot (bones were fused together). We did not

know of any other options at that time and trusted our surgeon.

Since then, her foot has seemed to be turning in slightly. I don't

mean that her foot is turning to the point of stepping on the top

but just that her foot curves inwards (if that makes sense). We saw

her surgeon today. He took x-rays, then announced that she will

probably need a second surgery to repair the prolapse. If this

doctor is acting according to form, she does need surgery, he just

doesn't want to tell us yet! So, he has adopted a wait and see

attitude, and wants us to come back in 6-12 months to check on

progress. My husband and I would like to avoid a second surgery,

but we're not sure if this is even possible. We are in Ottawa, and

all the doctors we know of here treat clubfoot with surgery. We are

willing to drive to Kingston, if Dr son will see us. I'm

waiting for my GP to issue a referal for Dr son. I have an

appointment with my GP tomorrow for a referal and have emailed Dr

son, who said she would be willing to see . I have heard

wonderful things about Dr son, but was still suprised with the

speed of her reply (about 20 minutes). I don't know if we will be

able to go nonsurgical (after all the work that has already been

done), but we are willing to try.

My husband and I did not know about any options when our daughter

was born (and we didn't find out until her birth). I have spent the

last three years second guessing our decision to stick with the

surgical method, but what's done is done. My fear is that she will

need casts and bar/brace for lengthly periods of time. She is a

very active three year old and will not adjust well at all to

limited mobility.

Does anyone have any advise (is it possible? What should we

expect?).

Thanks,

Sara

May 31, 2006

At 02:32 PM 5/30/2006, you wrote:

>I have already written this on another board, as I did not know

>about this one:) For those who frequent the other board, this is a

>cut and paste of my previous posts.

>

>My daughter, , was born with a bilateral clubfoot. She was

>casted at 8 days old and was treated surgically at 10 months. I

>don't know the full extent of the surgery, as our doctor seems to

>dislike talking about it. I know she had a tendon lengthening and

>he told us a year after her surgery that he also did some

>reconstruction on her foot (bones were fused together). We did not

>know of any other options at that time and trusted our surgeon.

>Since then, her foot has seemed to be turning in slightly. I don't

>mean that her foot is turning to the point of stepping on the top

>but just that her foot curves inwards (if that makes sense). We saw

>her surgeon today. He took x-rays, then announced that she will

>probably need a second surgery to repair the prolapse. If this

>doctor is acting according to form, she does need surgery, he just

>doesn't want to tell us yet! So, he has adopted a wait and see

>attitude, and wants us to come back in 6-12 months to check on

>progress. My husband and I would like to avoid a second surgery,

>but we're not sure if this is even possible. We are in Ottawa, and

>all the doctors we know of here treat clubfoot with surgery. We are

>willing to drive to Kingston, if Dr son will see us. I'm

>waiting for my GP to issue a referal for Dr son. I have an

>appointment with my GP tomorrow for a referal and have emailed Dr

>son, who said she would be willing to see . I have heard

>wonderful things about Dr son, but was still suprised with the

>speed of her reply (about 20 minutes). I don't know if we will be

>able to go nonsurgical (after all the work that has already been

>done), but we are willing to try.

>My husband and I did not know about any options when our daughter

>was born (and we didn't find out until her birth). I have spent the

>last three years second guessing our decision to stick with the

>surgical method, but what's done is done. My fear is that she will

>need casts and bar/brace for lengthly periods of time. She is a

>very active three year old and will not adjust well at all to

>limited mobility.

>

>Does anyone have any advise (is it possible? What should we

>expect?).

>Thanks,

>Sara

>

May 31, 2006

My son is almost 3 and 1/2. We switched to a Ponseti Method Dr. when he was

nine months old. I still feel guilt over the nine months that he was not with a

Ponseti Method Dr.

I think you should go ahead and make an appointment with the Ponseti Method Dr.

and see what he has to say. It is always good to get a second oppinion. Then

you will be able to make a better and informed decision for your child.

Hope that helps.

LaRena

May 31, 2006

Hi Sara!

So happy you made it over here!! Welcome to the group! Hopefully some

of Dr. son's patients parents will see your post and reply.

Really glad that you're here So do you know when you will be

seeing Dr. son?

Hugs,

& Grace

>

> I have already written this on another board, as I did not know

> about this one:) For those who frequent the other board, this is a

> cut and paste of my previous posts.

>

> My daughter, , was born with a bilateral clubfoot. She was

> casted at 8 days old and was treated surgically at 10 months. I

> don't know the full extent of the surgery, as our doctor seems to

> dislike talking about it. I know she had a tendon lengthening and

> he told us a year after her surgery that he also did some

> reconstruction on her foot (bones were fused together). We did not

> know of any other options at that time and trusted our surgeon.

> Since then, her foot has seemed to be turning in slightly. I don't

> mean that her foot is turning to the point of stepping on the top

> but just that her foot curves inwards (if that makes sense). We

saw

> her surgeon today. He took x-rays, then announced that she will

> probably need a second surgery to repair the prolapse. If this

> doctor is acting according to form, she does need surgery, he just

> doesn't want to tell us yet! So, he has adopted a wait and see

> attitude, and wants us to come back in 6-12 months to check on

> progress. My husband and I would like to avoid a second surgery,

> but we're not sure if this is even possible. We are in Ottawa, and

> all the doctors we know of here treat clubfoot with surgery. We

are

> willing to drive to Kingston, if Dr son will see us. I'm

> waiting for my GP to issue a referal for Dr son. I have an

> appointment with my GP tomorrow for a referal and have emailed Dr

> son, who said she would be willing to see . I have heard

> wonderful things about Dr son, but was still suprised with the

> speed of her reply (about 20 minutes). I don't know if we will be

> able to go nonsurgical (after all the work that has already been

> done), but we are willing to try.

> My husband and I did not know about any options when our daughter

> was born (and we didn't find out until her birth). I have spent

the

> last three years second guessing our decision to stick with the

> surgical method, but what's done is done. My fear is that she will

> need casts and bar/brace for lengthly periods of time. She is a

> very active three year old and will not adjust well at all to

> limited mobility.

>

> Does anyone have any advise (is it possible? What should we

> expect?).

> Thanks,

> Sara

>

June 1, 2006

Hello again !

My GP is faxing the referral today or tomorrow, so, after that, it's up to Dr

son's schedule. Hopefully sooner rather than later. I have also requested

copies of morgan's CHEO records. Maybe we'll actually learn what was done on

her.

Sara

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