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Feeding tube help

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Hi everybody! I need some advice on what we can do with Abby and

her feedings.

We did great with giving Abby her bolis feeds for the first few

months. Then, she began to eat more orally and her tube feeds

became more difficult to give her. What I mean is when we began a

feeding, it would not go through. It was like her stomach was full

and would not allow anything else in. The doctor wanted to try a

feeding pump at night only, so we have. Failed with that. Abby is

5 years old and moves around so much in bed that the feeding pump

came apart. He does not want to use the pump during the day for

various reasons.

Does anyone have any suggestions as to what I can try next. I am

grateful that Abby wants to eat all the time, but the doctor says it

is food that is not giving her the calories she needs.

Please help as it is breaking my heart that her growth has slowed

again.

Thanks, Amy (mom to Abby-5 yrs, rss, gtube, growth hormones; Tyler-3

1/2 yrs, wild child, non-rss; -3 months, clone of his father)

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