Re: positional clubfoot?/Kathleen

[Guest guest]

Kathleen,

Glad to hear Madison is doing well. My daughter also had similar problems when

she was born. Would stop breathing whenever she ate and sometimes when she was

not eating. She was on oxygen for some time and then on a monitor at home for 9

months. Scary when that would go off in the middle of the night. What they

found out later was that the flap that goes into your stomach wasn't working

properly and the food was blocking the airway. This is something that has

corrected itself. Just wanted to let you know now she is a healthy 6 year old

and is hardly ever sick, been on a antibiotic maybe 2 times. Good Luck.

Tabitha

Brittanie 6

Karter 19 months blcf

leenernd wrote:

Madison is doing well and has been home for almost a month now! She

is on oxygen because she has tiny episodes-she works so hard to

eat/swallow that she will sometimes forget to breathe. These

episodes were pretty frequent at first however now they are

happening 2 or 3 times a day. They hope with the next checkup that

she will be off oxygen(next week). I will send picts to the cfpics

group site and get your guys opinion!

thanks,

kathleen

> >

> > Anybody out there with positional clubfoot knowledge? My friend

> from

> > college who gave birth at 25 1/2 weeks to a beautiful little

girl

> has

> > been diagnosed with a positional clubfoot-her left foot. Since

she

> has

> > come home from the hospital(in late Feb), her daughter was seen

by

> a

> > ped orthopedist. He confirmed that it was positional only

> (background-

> > the reason for the early birth, my friend has only half a uterus-

so

> > Madi ran out of space). She was taught and is doing some

stretching

> > and massage and it seems to help. I just want to assist her as

much

> as

> > possible. She is based in Pottsville, PA but I would think she

> would

> > be willing to go anywhere if Madi's care needed it. Madi is

still

> on

> > oxygen so this part of her life is on the backburner. If anyone

has

> > any advice or history of positional clubfeet/foot, I would be

most

> > appreciative!

> > thanks,

> > kathleen

> > mom to david bcf fab 12/7

> >

>

[Guest guest]

Thanks Tabitha-

This little girl is truly a miracle in the making. Her mom who is my

college roommate is such a trooper too! Madison is up to 6.5 lbs

after being born at 1 lb 10 oz. She just reached her " gestastional "

birthday(I guess that is what it is called) and doing well-so far

staying healthy!

take care,

kathleen

> > >

> > > Anybody out there with positional clubfoot knowledge? My

friend

> > from

> > > college who gave birth at 25 1/2 weeks to a beautiful little

> girl

> > has

> > > been diagnosed with a positional clubfoot-her left foot. Since

> she

> > has

> > > come home from the hospital(in late Feb), her daughter was

seen

> by

> > a

> > > ped orthopedist. He confirmed that it was positional only

> > (background-

> > > the reason for the early birth, my friend has only half a

uterus-

> so

> > > Madi ran out of space). She was taught and is doing some

> stretching

> > > and massage and it seems to help. I just want to assist her as

> much

> > as

> > > possible. She is based in Pottsville, PA but I would think she

> > would

> > > be willing to go anywhere if Madi's care needed it. Madi is

> still

> > on

> > > oxygen so this part of her life is on the backburner. If

anyone

> has

> > > any advice or history of positional clubfeet/foot, I would be

> most

> > > appreciative!

> > > thanks,

> > > kathleen

> > > mom to david bcf fab 12/7

> > >

> >

>

>

>

>

>

>

>

[Guest guest]

My sons case is positional. We went back and back and back and had

no one in our family with clubfoot or any similar issues. The

doctors decided it was because I was SO tiny. I SWEAR to you all

that this kid rolled around and around and around constantly...but

that is what the decided. Dr. Ponsetti also said my son has one of

the most difficult feet he has come across. It is only one foot

though.

> > >

> > > Anybody out there with positional clubfoot knowledge? My

friend

> > from

> > > college who gave birth at 25 1/2 weeks to a beautiful little

> girl

> > has

> > > been diagnosed with a positional clubfoot-her left foot. Since

> she

> > has

> > > come home from the hospital(in late Feb), her daughter was

seen

> by

> > a

> > > ped orthopedist. He confirmed that it was positional only

> > (background-

> > > the reason for the early birth, my friend has only half a

uterus-

> so

> > > Madi ran out of space). She was taught and is doing some

> stretching

> > > and massage and it seems to help. I just want to assist her as

> much

> > as

> > > possible. She is based in Pottsville, PA but I would think she

> > would

> > > be willing to go anywhere if Madi's care needed it. Madi is

> still

> > on

> > > oxygen so this part of her life is on the backburner. If

anyone

> has

> > > any advice or history of positional clubfeet/foot, I would be

> most

> > > appreciative!

> > > thanks,

> > > kathleen

> > > mom to david bcf fab 12/7

> > >

> >

>

>

>

>

>

>

>