Lily returns from first appt with Dr. Ponseti

[Guest guest]

Hello. I am back from Lily's appointment with Dr. Ponseti. Wow!

She really needed to be there. I am so impressed with Dr. Ponseti

and his staff.

Bad news first. Lily's clubfeet are quite severe and resistant

(something my local ortho never mentioned). Also, my local ortho had

missed tons of problems with Lillian's feet or just couldn't handle

feet of her severity...no matter, that's behind us. I don't know

the technical term for it but Lily had zero to very little movement

possible in all directions. We are looking at three casts and

possibly another tenotomy and possibly the tendon transfer. Sorry,

in case you missed it, that is the GOOD news! There is hope, it

isn't too late and Dr. Ponseti can help her. Dr. Ponseti was

incredibly kind and attentive (and knowledgeable might be the

understatement of the year). I am so excited to have her in to him

before it was too late. He also confirmed all the things I knew in

my heart...the severity of her clubfeet, her difficulty and lack of

desire for standing, the turning of her feet, and then of course some

I didn't know about. I won't go into details but the future would

not have been the best for Lily if she hadn't been to see Dr. Ponseti

(or another Ponseti certified doctor).

Lillian has adjusted very quickly to the full leg casts, even

crawling this afternoon. And her mama is so happy to have dodged the

bullet of what would have been.

Thanks again for pushing me into different care. If you fellow

clubfeet moms and dads weren't out there spreading the word through

this board, my poor baby's (and others) prognosis would not be very

good. I am so grateful for Dr. Ponseti's wise treatment.

> >

> > Thanks all for the posts. While you scared the heck out of me,

you

> got

> > me moving to something better. I called Dr. Ponseti's office to

> see if

> > they recommended having Lillian's half casts removed or continue

> with

> > our local ortho's treatment until we can get in to Dr. Ponseti.

> His

> > office returned my call today and we have an appointment in IA

City

> > starting at 8:30 am tomorrow! I was supposed to leave on

vacation

> at

> > noon today but canceled. Definitely worth it to get sweet Lily

in

> to

> > the right care.

> >

> > Thank you for your responses that helped me reconsider my local

> ortho

> > and get Lily out of the half casts. Lily turns 1 this week--I

bet

> > she'll hope I don't get her the same thing for her second

birthday--

> she

> > would probably prefer a book over being recast!

> >

> > Take care. Thanks again.

> >

> >

> >

>