Jennie - about atypical

[Guest guest]

I hope some of the more experienced parents will chime in here, but

from what I have read I think the Ponseti/ brace is more

effective for atypical cf. According to the global help booklet:

" The standard shoes do not hold the atypical

short and chubby foot that often slips out causing blisters and

skin breakdown over the heel. This leads to poor compliance

and rapid recurrence of the deformity.

The pre-molded foot-ankle brace [D] developed to improve

compliance with bracing is extremely effective in the post cast

treatment of the atypical cases. It consists of sandals with three

straps of soft leather that hold the foot firmly on a soft, well

molded plastic sole. The sandals are attached to the bar by an

adjustable plastic device. Two openings at the heel allow the

parents to see that the hindfoot is in place. This brace provides

comfort to the child and relief to the parents, and has prevented

relapses. "

I cannot find the link but you can go wo www.global-help.org - look

for publications, clubfoot Ponseti management.

Hi everyone,

> My son Luke is 5 months old. He has bilateral club foot. He

started

> casting after the second day of birth. When Luke was born it was

two

> days before Thanksgiving. Therefore we had to wait a couple days

> before an orthapedic could come and tell us what was wrong with

Lukes

> feet. The hospital kept me for three nights. Finaly an Orthapedic

doc

> came, Told us Luke has a 95% chance he will not need surgery. That

> made us happy. The doc says it can be fixed. he explained that

> castings needed to be done. We had no Idea about clubfoot, I can

say

> the doctor made us feel so much better telling us the things he

said,

> it relaxed us to much. Anyways; We were doing castings every week.

> The doctor told us his feet are doing wonderfull. We are more than

> 50% there! That made us feel good. Then the last cast will stay on

> for 3 Weeks. Well, when we went in to take off the 3 week cast

this

> is when things were not going so good anymore. The doc said his

feet

> are not getting better and he will need surgery. We were so

> disapointed. We believed for so many weeks our son was doing

great.

> They put more casts on him for two weeks while we waited for his

> braces. The doc also says he wants to do surgey when he is 9

months

> old. We got the braces, we hate the braces! We cant keep them on

his

> feet the right way. Anyways this is about the time I start to

> investigate clubfoot. We decide to go get a second opinion 3 hours

> away from us. This doc says posterior release as soon as possible.

We

> set the date. 1 week later I joined nosurgery4clubfoot. I recieved

> info on how to talk with doc Ponseti. I sent him an e mail of

Lukes

> feet. Dr Ponseti says Luke has aytipical clubfoot. He also says to

> come see him in Iowa. My husband and us are going. After all the

good

> things I hear about his work, I would be crazy not to. We leave

> thursday. Northern California to Iowa we go. Our appointment is on

> May 8th. I will post U all soon. Thanks for all the good info. And

> good luck to us all. Luke's Mommy. Dana

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