Ian's GI issues continued - contemplating more tests

[Guest guest]

Well, as I suspected would happen - Ian's GI doctor phoned last

night and said that Ian's Ultra Sound went well and there were no

issues with his liver and could not find anything that may be

pushing on his intestines.

The frustrating part though is that the GI is still concerned about

the narrowing of the Deodenum and wants to either do an Endoscopy or

a Cat Scan. I'm not so sure I want to go through with either of

these. Here's my reason: The GI doc basically thinks the narrowing

may somehow be causing Ian's belly aches, but more importantly his

lack of being able to get his weight up. What concerns me is the

latter. What I failed to tell him and what I know the GI doc fails

to understand is that the reason Ian is unable to keep his weight up

is not because of anything but being an RSS child. Also, the

narrowing is not causing any blockages. The GI doc thinks it may be

slowing down the food intake - but, Ian does not seem to exhibit

slow emptying. As a matter of fact, I monitor this alot (based on

what I feed him - I can see " what " comes out - such as blueberries,

peas, etc.) and he usually rids of these items the same day! Ian is

not typical in that he actually will tell me he's hungry and Ian

eats! My dh and I think that sometimes we think his belly hurts

because he's hungry!

I plan on telling my GI doc that unless it's of dire emergency - I

would like to wait until we review the information with Dr. H - that

she may have some insight. At our " meeting " with Dr. H at the

convention - she said he looked " great " and didn't need a G-tube.

Our RSS kids are just skinny and I think my GI doc needs to have a

conversation with Dr. H - but, that can't happen until after our

apptmt with Dr. H October 21.

My husband absolutely agrees with my decision - he doesn't want to

put him through any unnecessary tests.

Any other thoughts greatly appreciated.

- H