Re: GREAT news about Max Z

[Guest guest]

Jodi,

That is awesome news! It is great that he is doing so well. You

guys really needed some good news to lift your spirits it sounds

like. I have always been so impressed and rivited by Max anyway, and

this just goes to show why. I knew he was something special, and

look at this wonderful gift! I just can't believe he is tracking to

be a whopping 5'8 " . That is so impressive. I have to tell you that

this really is inspiring. I have always said that I hope is

at least as tall as I am (5'2 " ), and this really gives me hope that

it could really happen. I hope he can start GH soon. Thanks for

posting this very uplifting and inspiring message. Way to go you

guys! Give yourselves a pat on the back too for being such great

parents! ) I will miss you at the Convention this year. It was

great talking to you last year. Shopping in the in gift shop and

looking at earrings! ) Do you still have those heart ones you

bought? I remember you saying you liked hearts becasue I like them

too. )

Great news and congratulations!

Jodi R.

, 23 lbs. 3 oz., 32 "

> I know I have not been an active participant lately. With the end

> of school for me (well, the regular session anyway - summer school

> starts on Monday and I have to do lesson plans for that) as well as

> problems with our daughter, I just have not been too focused on

> anything else. Those of you who know me know that I am not one to

> be quiet for very long....

>

> That being said, I wanted to share some great news about Max's

visit

> with Dr. H. yesterday. First of all, Max is just about 5'4 " . He

> will be 17 years old in a little over a week (July 2) and his bone

> age is only 14! Dr. H. said that his growth rate is the best it

has

> ever been - tracking now at 4 " /year. She wants to take advantage

of

> this fantastic rate, so she has upped his gh shots to twice a day

> now. He is safely getting more gh, just in two smaller doses

> instead of one huge one - even though the total is now more than it

> was before. I thought it was for the purpose of spreading out the

> goods so that they are utilized better, but Salem told me

> that Dr. Stanhope just published something about gh being given

> twice a day for some RSS kids to help stabilize insulin levels.

> Considering Max's history with spilling ketones, it's a good idea

> just for that!

>

> Anyway, I have saved the BEST for LAST. Dr. H. has changed Max's

> projected final height. It used to be 5'6 " - a gift and blessing

in

> our eyes. We would have been happy if he stopped growing at 5'3 " .

> Now it is a whopping 5'8 " !!!!! Can you believe it? This kid who

> has had so many medical/emotional/educational issues, has had

> multiple surgeries, emergencies, medications, worries is actually

> going to pass what even the great Dr. H. had predicted for his

> height!

>

> Also, Dr. H. was thrilled with Max's muscle mass. He now has

> muscles in his arms and chicken legs. (She always complained about

> his lack of muscle tone.) He's been lifting weights at school and

> walking to and from school, so I know that has helped.

>

> So, I'm glad to share this wonderful news with all of you. I hope

> it inspires you and gives you hope. Those of you who have been

> through all the really bad times with us know how much this

means.

> Never, ever give up.

>

> Jodi Z

[Guest guest]

Congrats! All your efforts are paying off - a HIGH FIVE to all!

, mom to 5 and Emerence 29 mo, 32 " 21lb

> I know I have not been an active participant lately. With the end

> of school for me (well, the regular session anyway - summer school

> starts on Monday and I have to do lesson plans for that) as well as

> problems with our daughter, I just have not been too focused on

> anything else. Those of you who know me know that I am not one to

> be quiet for very long....

>

> That being said, I wanted to share some great news about Max's

visit

> with Dr. H. yesterday. First of all, Max is just about 5'4 " . He

> will be 17 years old in a little over a week (July 2) and his bone

> age is only 14! Dr. H. said that his growth rate is the best it

has

> ever been - tracking now at 4 " /year. She wants to take advantage

of

> this fantastic rate, so she has upped his gh shots to twice a day

> now. He is safely getting more gh, just in two smaller doses

> instead of one huge one - even though the total is now more than it

> was before. I thought it was for the purpose of spreading out the

> goods so that they are utilized better, but Salem told me

> that Dr. Stanhope just published something about gh being given

> twice a day for some RSS kids to help stabilize insulin levels.

> Considering Max's history with spilling ketones, it's a good idea

> just for that!

>

> Anyway, I have saved the BEST for LAST. Dr. H. has changed Max's

> projected final height. It used to be 5'6 " - a gift and blessing

in

> our eyes. We would have been happy if he stopped growing at 5'3 " .

> Now it is a whopping 5'8 " !!!!! Can you believe it? This kid who

> has had so many medical/emotional/educational issues, has had

> multiple surgeries, emergencies, medications, worries is actually

> going to pass what even the great Dr. H. had predicted for his

> height!

>

> Also, Dr. H. was thrilled with Max's muscle mass. He now has

> muscles in his arms and chicken legs. (She always complained about

> his lack of muscle tone.) He's been lifting weights at school and

> walking to and from school, so I know that has helped.

>

> So, I'm glad to share this wonderful news with all of you. I hope

> it inspires you and gives you hope. Those of you who have been

> through all the really bad times with us know how much this

means.

> Never, ever give up.

>

> Jodi Z

[Guest guest]

Jodi Z,

That is great news about Max. He is a wonderful kid and deserves the

best.

Thanks for the great update. It gives me hope for .

Judith, Steve, (RSS) and (non RSS) 5 year old twins

[Guest guest]

Hi Jodi,

That's great news about Max. Hope he goes beyond Dr. H's expectations.

Be careful, the next thing you know the NY Knicks will be knocking on

your door looking for a good power forward.

Ken M

> I know I have not been an active participant lately. With the end

> of school for me (well, the regular session anyway - summer school

> starts on Monday and I have to do lesson plans for that) as well as

> problems with our daughter, I just have not been too focused on

> anything else. Those of you who know me know that I am not one to

> be quiet for very long....

>

> That being said, I wanted to share some great news about Max's

visit

> with Dr. H. yesterday. First of all, Max is just about 5'4 " . He

> will be 17 years old in a little over a week (July 2) and his bone

> age is only 14! Dr. H. said that his growth rate is the best it

has

> ever been - tracking now at 4 " /year. She wants to take advantage

of

> this fantastic rate, so she has upped his gh shots to twice a day

> now. He is safely getting more gh, just in two smaller doses

> instead of one huge one - even though the total is now more than it

> was before. I thought it was for the purpose of spreading out the

> goods so that they are utilized better, but Salem told me

> that Dr. Stanhope just published something about gh being given

> twice a day for some RSS kids to help stabilize insulin levels.

> Considering Max's history with spilling ketones, it's a good idea

> just for that!

>

> Anyway, I have saved the BEST for LAST. Dr. H. has changed Max's

> projected final height. It used to be 5'6 " - a gift and blessing

in

> our eyes. We would have been happy if he stopped growing at 5'3 " .

> Now it is a whopping 5'8 " !!!!! Can you believe it? This kid who

> has had so many medical/emotional/educational issues, has had

> multiple surgeries, emergencies, medications, worries is actually

> going to pass what even the great Dr. H. had predicted for his

> height!

>

> Also, Dr. H. was thrilled with Max's muscle mass. He now has

> muscles in his arms and chicken legs. (She always complained about

> his lack of muscle tone.) He's been lifting weights at school and

> walking to and from school, so I know that has helped.

>

> So, I'm glad to share this wonderful news with all of you. I hope

> it inspires you and gives you hope. Those of you who have been

> through all the really bad times with us know how much this

means.

> Never, ever give up.

>

> Jodi Z

[Guest guest]

Hi Jodie,

I am so happy to hear about Max and his progress. I can't believe he's going

to be 17. Congratulations on all your hard work with him.

mom to Jordan 4 1/2 yr. GH, G-tube, and due 7/6/2005