Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 I am so sorry to hear that your doc is causing you problems you don't need or deserve that. I wish I was able to help. The only thing I can think of is If you haven't met Dr. Harbison yet I would get myself an appointment there because she may be able to help you keep your child in your home. Even if you switch docs they can still have the child removed from ur home but Dr. H can help them understand that what ur child is going through is typical for RSS. Please feel free to email me personally and i'd be glade to give you my number incase you need to vent. Chrissy Mom to........... Louis 6 Madison 4 RSS Shane 2 1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 what an awful thing for your ped to say to you!! you need to go to NYC and get an appt with dr harbison, she is the US expert for RSS, she is an endo. jodie c Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 I JUST NOW GOT MY COMPUTER SET UP AND IT TOOK FOREVER TO FIGURE OUT THE MAIL SYSTEM. I WANT TO THANK EVERYONE WHO RESPONDED TO MY FIRST POST . WELL, WE WENT FOR THE BONE AGE STUDY ,LEG LENGTH ,AND THE TEST FOR POSSIBLE URETHRA ABNORMALITIES. SKYLAR IS 2YRS 2MO. OLD 18 LBS AND 31 IN. TALL. HER 1 FEMOR IS .2 CM LONGER THAN THE OTHER ONE AND HER BONE AGE IS THAT OF A 1YR 3 MO. CHILD. THE URETHRA STUDY WAS DEVASTATING! SHE ONLY HAS 1 OPENING TO THE OUTSIDE OF HER BODY AND ITS HER VAGINA . HER URETHRA OPENING OPENS UP INTO THE VAGINA AND THAT IS WHERE SHE URINATES FROM.SHE HAS POOR MUSCLE TONE IN HER ORGANS AS HER BLADDER AFTER VOIDING STILL CONTAINS RESIDUAL AND HER BLADDER CAPACITY IS ABNORMAL AS WELL. SO NOW ON TOP OF THE BAD MOMMY SENARIO I GET EVERY WHERE I GO ,WE ARE LOOKING AT RECONSTRUCTIVE SURGERY . ON A POSITIVE NOTE , MY PEDIATRICIAN HAS DECIDED THAT REMOVAL OF MY CHILD MAY HAVE BEEN A LITTLE HASTEY AND MADE THE APPOINTMENT WITH DR. HARBISON HERSELF , WE GO TO SEE HER END OF JAN. THANK YOU AGAIN FOR YOUR RESPONSES ,AND FOR THOSE THAT ASKED ,MY NAME IS SHELLEE. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Hi Shelee, I just want to say I agree with Jodi Z. You are doing a great job and it is because of this your daughter is getting the medical treatment she needs. Glad to hear your pediatricain is coming for you. I know surgery is scary but it is for the best. Welcome back and please keep us updated on your daughter progress. Ken M > > Shelee, > > I'm so sorry that your little girl has to have the reconstructive > surgery, but it is because of YOUR dilligence that the doctors are > finding all of this out. And don't forget that. You are a GOOD mom. > You are doing the best you can for your daughter. Obviously, the > doctor feels the same because you said she made the contact for you to > see Dr. H. That is wonderful. > > I know how awful it is to face surgery for your child. I know you > want her to be perfect. And she is. She just needs a little tweaking > here and there to make her even better. You are doing everything you > can. Keep up the good work and keep us posted. > > Jodi Z > Quote Link to comment Share on other sites More sharing options...
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