Guest guest Posted November 6, 2002 Report Share Posted November 6, 2002 Oh Squeek, I hate to hear this. Poor .. she has had her share and has kept a great attitude through it all. Thanks for the update. I will send out a card for her tomorrow and keep her in my prayers. DARN IT ANYWAY!!!!!! UGGGHHH ! Did I mention that I hated RP? Squeek I hope you are resting and get to feeling better. I just can't stand to see so many so sick. Don't think I have ever seen it happen all at once like this before. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2002 Report Share Posted November 6, 2002 Oh Squeek, I feel so bad for !!! Thanks for the update, my friend. I sure will be thinking about her. Give Kim my love and tell her that her mom has Prayers being sent to the Lord. If you talk to , please give her my love. Hugs, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2002 Report Share Posted December 29, 2002 Phyllis, you know the good thoughts and prayers will keep coming for you and . Let us know how the Mayo visit goes. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Glad that is is not clearly kidney disease! Whew! Love, n Rojas update on The clinic called today. The urine sample had not come back from the lab but when they checked it themselves with the strip it came back with a small trace of protein. The doctor seems to think that this small amount would not indicate a problem with the kidneys. However, if the swelling does not improve by Friday, they want some blood work done. She seems to think that it is a viral infection, thought it could be mono. He has some redness blotches around his wrists that have moved up his arm. Sometimes they are really visible and other times they aren't. It's really weird. His mood is fine, a little more irritable than normal. I am just confused and frustrated. Why can't he just have something where they can say, " this is the problem, this is what is causing it, this is how we fix it! " Is that asking too much!! Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Yeah Amber! And Yeah for ! I'm so glad. Hopefully he will realize that this is not going to be a bad experience for him and he will be able to have the next few casts without crying. > > Hello everyone > > Just wanted yall to know that we had our appointment yesterady with Dr > Dobbs. They took x-rays then pics.. everyone up there was so great and > friendly. Maybe next time nathan will be better with not screaming with > the casting part. should only have to have about 4 or 5 cast. They said > him screaming like that was because of having a bad cast experience in > the past. we caught the shriner van from memphis to st louis then back > to memphis yesterday. i didnt get the feelin that i did when i went to > his first docter when i went up there and talked with everyone. it was > a wonderful experience with everything > > Amber > mommy to nathan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 thanks for your concern . If I would have had to I was going to drive up there all the way with and I if I had too Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Amber, I am so glad you were able to get in with Dr. Dobbs yesterday. I saw your posts from over the weekend but not until it was too late to do anything. I was worried about you and asked Dr. Dobbs if you were able to make it in yesterday. He gave me pretty much the same report you did here - great news! ---Nosurgery4clubfoot , " Amber " wrote: > > Well our appointment was at 7 am yesterday. I got up there and road > home with the shriners. On to the good part we are supposed to have the > heel cord released next monday and et fitted for braces. Yippie almost > the end to the casting stage. We go back next monday at 7 am for all > this. > > > Amber > Mommy to > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Tom and family, Thanks for the update. You won't regret going to see Dr Frick for that second opinion. He is a very experienced doctor and his own son was born with clubfoot. The fact that his now-teenaged son is dealing with the aftermath of surgical correction makes him all that more dedicated to treating babies with the Ponseti method. I know that there are a few of his patients in this group, hopefully some of them will chime in here. Good news, too, that Dr Ponseti isn't seeing anything too alarming in the pictures of 's feet. In the second set of pictures you sent to CFPics, 's feet actually looked much better than in the first (albeit to my untrained eye). It's hard to diagnose without actually feeling of the feet, but Dr Ponseti seems to have a flair for it! Dr Frick, of course, will be able to tell you just what's going on. As far as the brace goes, I know that a few of Dr Frick's patients are using it. And lots of families here in the group have experience with getting insurance to pay for it and so on. If you have any questions about any of that, you know where to ask them. Please keep us updated on 's progress. Naomi The Family, North Coast of California Naomi Hannah(2/21/1) Jonah(6/20/3, corrected BCF, FAB 12-14/7) tomasrbraun wrote: As those of you know who have been following the discussion on the CFPics group, I contacted Dr. Ponseti, Dr. Dobbs, and Dr. Herzenberg to get an opinion on 's feet. All three of them suggested we go see Dr. Frick, since he's only 3 hours from here. Ponseti actually called us a little while ago! The good news is he doesn't think 's correction is that off, and said they may want to do one more cast to get some more dorsiflection, but then to try the shoes instead. In his opinion 's " chubby feet " were too wide for the Markell shoes, and this was where most of the discomfort was. I'm glad to find out our current doctor may not have been as far off as was feared. We saw him today as well, and he didn't see any problems with the way 's feet were sitting in the shoe -- only said the socks were kinda thick (I'm not sure what to make of this one -- they were the Target brand Circo baby socks with grippers on the bottom, not the thinnest I've seen but pretty much normal, solid colored socks). Evidently not too thick to evaluate the feet without taking the socks off though. We're sticking with our socks, and trying to keep the brace on as well even though doesn't like it. If the correction is not bad, we don't want to cause a relapse by taking it off. We're also going to go see Dr. Frick next Monday for a second opinion, just to make sure things are ok. Thanks again for the help and support. Tom, , and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Hi Tom, Sorry I kind of disappeared for the weekend, but I see that you got some good advice while I was away from my computer. I think you'll be in good hands with Dr. Frick, I'm sure you'll be pleased and happy that you got the second opinion. I see in the first set of pictures the same thing - the rockerbottom that everyone else sees, but not so much in the second group. I believe there is a bit of it, but if they plan to recast it should be fixable. I would be sure to mention to Dr. Frick that you think he might have rocker bottom, just to be sure that is brought up. I think one of the other posts mentioned the length of the bar and when looking at the one picture of him in the brace I have to say that I think his heels look too close together. I'm sure you've checked this, but I know you are getting the shoes on tight and his heels are really rising up - it could be due to his lack of dorsiflexion but I would also definitely attribute it to bar length based on that picture. Since you are not going to Dr. Frick until next monday, if there is anyway your orthotics shop would trade you for a longer bar, or an adjustable one, that would be helpful for keeping him in the brace and comfortable in the interim. I wish you and your family all the best, we'll be looking forward to hearing from you with updates! As those of you know who have been following the discussion on the > CFPics group, I contacted Dr. Ponseti, Dr. Dobbs, and Dr. Herzenberg > to get an opinion on 's feet. All three of them suggested we > go see Dr. Frick, since he's only 3 hours from here. Ponseti > actually called us a little while ago! The good news is he doesn't > think 's correction is that off, and said they may want to do > one more cast to get some more dorsiflection, but then to try the > shoes instead. In his opinion 's " chubby feet " were > too wide for the Markell shoes, and this was where most of the > discomfort was. > > I'm glad to find out our current doctor may not have been as far off > as was feared. We saw him today as well, and he didn't see any > problems with the way 's feet were sitting in the shoe -- only > said the socks were kinda thick (I'm not sure what to make of this > one -- they were the Target brand Circo baby socks with grippers on > the bottom, not the thinnest I've seen but pretty much normal, solid > colored socks). Evidently not too thick to evaluate the feet without > taking the socks off though. We're sticking with our socks, and > trying to keep the brace on as well even though doesn't like > it. If the correction is not bad, we don't want to cause a relapse > by taking it off. We're also going to go see Dr. Frick next Monday > for a second opinion, just to make sure things are ok. > > Thanks again for the help and support. > Tom, , and > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 That's great news Tom & !! It's amazing what one or two properly applied Ponseti casts can do! Like I mentioned in my earlier post, our daughter only had 4 casts with no tenotomy and was rated a 5.5 out of 6 in severity. We see Dr. Shafique Pirani in Vancouver BC. It is also good to hear that Dr. Ponseti thinks that only one or 2 casts will be needed for ! I have heard good things about Dr. Frick and know that he has used the 's as well. will probably be much more comfy in them. If you do decide to go with the 's which you may want to after having issues in the Markell's, make sure that you get the impression kit done BEFORE casting is done to get them ordered, don't let that get overlooked as they do take some time to get shipped. Good luck on Monday and please let us know how it goes!! And ps, those socks are FINE haha doc's sometimes, honestly! The kind with the grippers on the bottom are just what you want him in Smiles, & Grace 20mos unilateral rcf FAB 13hrs > > As those of you know who have been following the discussion on the > CFPics group, I contacted Dr. Ponseti, Dr. Dobbs, and Dr. Herzenberg > to get an opinion on 's feet. All three of them suggested we > go see Dr. Frick, since he's only 3 hours from here. Ponseti > actually called us a little while ago! The good news is he doesn't > think 's correction is that off, and said they may want to do > one more cast to get some more dorsiflection, but then to try the > shoes instead. In his opinion 's " chubby feet " were > too wide for the Markell shoes, and this was where most of the > discomfort was. > > I'm glad to find out our current doctor may not have been as far off > as was feared. We saw him today as well, and he didn't see any > problems with the way 's feet were sitting in the shoe -- only > said the socks were kinda thick (I'm not sure what to make of this > one -- they were the Target brand Circo baby socks with grippers on > the bottom, not the thinnest I've seen but pretty much normal, solid > colored socks). Evidently not too thick to evaluate the feet without > taking the socks off though. We're sticking with our socks, and > trying to keep the brace on as well even though doesn't like > it. If the correction is not bad, we don't want to cause a relapse > by taking it off. We're also going to go see Dr. Frick next Monday > for a second opinion, just to make sure things are ok. > > Thanks again for the help and support. > Tom, , and > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Hi, I just wanted to share some very exciting news. We traveled from Houston to Dallas on Friday to see the Ponseti certified doctor in Texas for her 3 month check up. The Dr. confirmed that her feet were doing great and now has told us to go nights only. Our next checkup is in 6 months. We are so happy that everything is working out and although we didn't have a certified doctor in California, he did a good job (even with the tweaks). is 7 months old now and definitely looking forward to the new freedom. She'll probably start crawling any day now. Just wanted to keep you guys updated. Thanks, & (11/22/05 - bcf - dbb 12hr/7d) Quote Link to comment Share on other sites More sharing options...
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