Re: Updated Pics-->

[Guest guest]

Hi there,

Olivia also has Osteogenesis Imperfecta (brittle bone disorder) so

she gets an IV med. (pamidronate) for 3 days every 3 months. She

gets the bone scan once a year to see how her density is doing so we

know when to stop the meds as we don't want her to get hyper-dense.

Usually it's just a scan of her spine but since they had to use a

different machine we had to do the full scan to compare the two

since every machine is callibrated different.

Cheers!

Leah

> >

> >

> > I just realized that I still had the pics of me getting my

head

> > shaved for a fundraiser in Olivia's album! Oops.

> >

> > I'm still a bit steamed about the endo appt. and her not

wanting

> to

> > call Olivia RSS so I scanned a copy of Olivia's Bone Scan from

> last

> > Monday. Now if that isn't a triangular shaped head I don't know

> what

> > is!!! I know it's a grainy pic but you can still see the head

> shape

> > clearly.

> >

> > The other pic is on the first day of school this year.

Olivia's

> in

> > Kindergarten (again) and 's in grade 5.

> >

> > Leah, mom to 10 and Olivia 5.75, 22lbs, 36 " , RSS, OI

> >

>

[Guest guest]

Oh Leah - I had no idea. Gosh - that must be very difficult to deal

with as well. Hugs to you. Thanks for sharing.

- H

> > >

> > >

> > > I just realized that I still had the pics of me getting my

> head

> > > shaved for a fundraiser in Olivia's album! Oops.

> > >

> > > I'm still a bit steamed about the endo appt. and her not

> wanting

> > to

> > > call Olivia RSS so I scanned a copy of Olivia's Bone Scan from

> > last

> > > Monday. Now if that isn't a triangular shaped head I don't

know

> > what

> > > is!!! I know it's a grainy pic but you can still see the head

> > shape

> > > clearly.

> > >

> > > The other pic is on the first day of school this year.

> Olivia's

> > in

> > > Kindergarten (again) and 's in grade 5.

> > >

> > > Leah, mom to 10 and Olivia 5.75, 22lbs, 36 " , RSS, OI

> > >

> >

>