Re: Questions I keep meaning to ask

[Guest guest]

Gillian, I don't know the answers to all your questions, but here are

a few answers:

>

> When should I ask for the bone age test and who do I ask? - is it

the endocrinologist/geneticist or someone else? Is it an x ray?

The bone age is an x-ray. You should aske the endo to get it done,

and I would ask for it right away. My son had one every year until

recently and now it is every 6 months. (He is 10 years old now)

> I read about a new blood test on I think 's(?) website. Is

this just the UPD7 or is there another new test I don't know about

yet? This I don't know!

>

> How do I attach a photo of my little girl to the website? Go to

photos on the left, and add a folder and upload a picture. (I'm sure

someone else may have better details.

>

> Dr Stanhope doesn't believe that periactin works, this is just an

appetite stimulant isn't it? Does anyone have any good experience of

using it for an RSS child with a big appetite already?

My son had a decent appetite, but was not gaining weight. When he

started periactin, I saw no difference in his eating, but he did

start gaining more weight!! It worked even though he was already a

good eater!

I hope this helps you and you find other answers as well.

Blessings,

Carmen, mom to Storm age 10, RSS, Gerd, Asthma, hypoglycemia.....