Just joined the group: Pinja & Miia

[Guest guest]

Hi!

I just found this amazing group that has already helped me a lot. I

want to introduce myself and Pinja, my daughter. She is 6 months old

and has a right clubfoot (the leg is also affected by amniotic

banding, as well as her right hand fingers) that has been treated

with casting, DBB for 3 months, then a tenotomy after relapse and now

DBB again. We live in Finland.

Pinja has accepted the casts and the DBB without any problems. We had

a problem with the DBB before the tenotomy, her heel just wouldn't

stay down in the shoe and she often kicked the shoe of her clubfoot.

Now after the tenotomy, the heel is apparently better shaped to stay

in the right place.

I have a problem on my mind. Our doctor adviced us to use the DBB

23/7 for the next three months, after the tenotomy was made and the

foot casted for 3 weeks. In three months, Pinja will be 9 months and

still wearing the brace full time. I feel sorry for her, because she

can't do the things that she would do without the brace even now

(rolling over), how will she be able to crawl, sit and stand up... We

wrote to Dr. Ponseti and he told us to wear the DBB for 20 hours,

then after a month 18 hours, and then 16. I totally believe in dr.

Ponseti's expertise, but it is very hard to make a decision in this

situation. What if we decide to wear the DBB for less than 23 hours

and the result is a relapse. I am, at this moment, so annoyed with

the shoes and the brace, that it is very tempting to go with dr.

Ponseti's advice... would I be a lazy, irresponsible mom to do so...