How did you loose the tube - more feeding stuff

[Guest guest]

Hey all, more feeding questions.

Grant has had a tube for 3 years and will be 5 years old in November,

we started feeding therapy again (had it before the tube was placed).

We have just had the first meeting with all the therapists

(nutrition, OT, psyc…) and the general plan is to reduce his night

feeds and increase his daytime intake. It makes a lot of sense to me

because Grant can eat orally he just does it poorly. The approach is

kind of part feeding therapy and part tube " weaning " . I wasn't really

expecting the " weaning " part so soon and was wondering what the

collective experiences have been for this group. I would be curious

to hear how some of you transitioned from night feeds to day feeds and

eventually to all oral intake – what worked well/what didn't. In the

back of my mind is Dr. H saying " They can't grow on air " . Thanks,

and Kim