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Hospital Stay

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My surgeon specializes in Laprascopic surgery. He keeps his patients

on average 3-4 days. I was in 7 due to some complications.

Theresa

DS 11-19-01

Dr. Jossart

-12#s

> How long is the average stay in the hospital after the DS surgery?

Were you

> able to travel home immediately after discharge without a problem?

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  • 2 years later...
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Becki,

You have been in my prayers right along with Shana. I hope that this time you

will be able to stay out for a while and that you are able to pick right up with

the rehab. Soon we will hear that your new lungs are ready for you. If only I

could " share " some of my fat with you, you wouldn't have to worry about the

weight loss!!!! LOL

mom of 5 with CF and a boy on the way, no CF

Hospital Stay

Hi Everyone

Well, I'm home. Actually, as I was driving home, I knew that I think I made a

mistake coming home. My lungs are just not quite right...not that they are

ever " right " but it just feels off. But who knows maybe its just my new

pitiful

baseline. I am scard to see what my PFT's are. I guess I'll find out at

Transplant clinic in Florida on the 23rd.Too add to the problem I got soooo

sick

within 20 mins of coming home b/c of allergies.

For some reason about 2 years ago I developed allergies to our pets and to

the entire Spring Season...lol. It only happens for about 24-72 hours after I

come home from the hospital but thats it. Unless its March through april and

the

trees are blooming thats another story all together....

It actually all started( the pet allergies and hay fever) in the Spring time

after I got that dang aspergillus 2 years ago. The conclusion I have come too

is that b/c I am in the clean sterile environment of the hospital for 2 weeks

at a time then come home (to an unvacumned house usually) my body needs those

48hrs to reacclimate itself to the dog and cat. After that Im fine no

problems. But until then my eyes and nose run endlessly...not sure if its just

me or

anyone one else who has this trouble.

While I was in I was on the maturnity unit. I kept up my floor exercises with

the weights PT brought me and the theraband. I also walked 20-30 mins every

night around midnight. Its quite then and its also the newborn vital and

bathtime so baby after baby gets wheeled around to get their evening vitals

and

their baths...The nurses would delay taking them back to play with them and I

got

to rub there cheeks and little hands....there was evenb a set of triplets up

there and WOW did they have some lungs on them. Its weird some babies have to

learn the art of screaming bloody murder while others have it down pat

immediately...lol

My niece who's 5 months now took about a month or 2 too actually learn to

scream...she now has no problem screaming...lol...she's quite good at it

actually.

Some of those kids were sooooooooooo ticked when they came back to the unit

but then again I'd be P_ _ _ ed too if I was sound asleep and someone stuck a

thermometer up my rearend. Anyways...I felt for the parents. They had this

sweetly sleeping infant and then a nurse came and took them for a " bath " then

30

minutes to an hour later, they brought back this squalling red faced newborn.

Anyways....my sis and bro inlaw and niece ( she is just too cute ) along with

my mom came yesterday and took me out to dinner.We went to this awsome Irish

pub, my sis's hubby is 100 % Irish so I thought he'd like it. Its got the

neatest atmosphere in the old industrial part of Raleigh...

Anyways..I ate a little but my stomach is sooo shrunken I didn't even finish

half of it.

But it was a great change from my yogart and oranges that I ate for 2 weeks

straight and nothing else...lol

Anyways...I will be right back in rehab tomarrow and looking forward to going

and seeing everyone. I just hope Im not gonna end up in the hospital soon.

The doc gave me three choices

1. Get Bronched

2. Go Home on Fortaz for another 10 days

3. Stay

Then said if it were him he'd go home since I wasn't probably going to

improove much. OF course I wanted to go home. I was starting to go stir crazy

but

something in the back of my mind was saying " Don't Go or you'll regret it " .

That

voice is still there but I'm hoping I'll start to feel better over the next

week. I also lost a lot of weight and even moire inches. My dang pants won't

stay up...lol

I am anxiously waiting for updates on Shana. She's such a fighter. I know

she'll be ok....I was so happy she got her lungs I started calling people up

to

pray for her. I was so worried about her last night I couldn't sleep. I will

just continue to pray and send good vibes her way.

Anyways....I have to take a nap. I'll write more later

Becki

Life is not measured by the number of breaths we take, but by the moments

that take our breath away.

Listed for Lungs 1/14/04

at

Mayo Clinic ville,Fla.

YOUNGLUNG EMAIL SUPPORT LIST

www.topica.com/lists/younglung

Pediatric Interstitial Lung Disease Society

http://groups.yahoo.com/group/InterstitialLung_Kids/<http://groups.yahoo.com/gro\

up/InterstitialLung_Kids/>

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Becki,

I am so glad to hear from you. I think about you often. I am hoping

that you and Natalia are both doing well and that you both get your

new lungs very soon.

Love,

Gale

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