In memory of Janelle Jovanovich

[Guest guest]

Many of you newcomers never knew Janelle, although some of you know

her mom, , or dad Joe from the listserve or the MAGIC convention.

Janelle passed away two years ago tomorrow. She was an angel while on

Earth, and I have no doubt she continues to watch over her parents and

her big brother n, every day and night.

Her parents have continued in their efforts to educate parents and

physicians about -Silver Syndrome. Joe took incredible photos

of most of the kids at last year's convention, which will be featured

in the upcoming Guidebook, and he will be at the convention again,

taking photos. has been an incredibly source of information and

support for many, many parents. Our RSS/SGA division at MAGIC would

not be the same without them.

Their email addresses are laura@... and joe@...,

if you want to drop them a note.

and Joe - I love you guys!