Guest guest Posted March 14, 2011 Report Share Posted March 14, 2011 hi all i'm just joining this group today, though i've been arm wrestling with sarcoid for a long time (20 years next month). it's been a personal and private battle, by choice, all this time, because i thought my life would be more normal if i tried to pretend it wasn't such a big deal. but now, after so many years of pulmonary function tests and ophthalmologist visits, pills and needles, i am tired of going it alone. and, it looks like my sarcoid has finally spread to my head. headaches and nausea, vertigo, and sleeping about 12 hours a day... kinda hard to pretend it's not such a big deal now it's not confirmed yet, i have to find a way to pay for a brain MRI scan to confirm it, but with the new symptoms i have, i think it's a foregone conclusion. after googling the symptoms, i realize i've probably had neurosarcoid for the past few years & just never knew it. so, don't mind me, i'm going to poke around some past messaages, & you'll probably hear from me now & then. i can handle the eye problems and the short breath on my own pretty well (practice), but when things start going whonky in my head, i just might need to speak up once in a while chris (skugger) Quote Link to comment Share on other sites More sharing options...
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