Jodi Zwain or anyone else - question re: US

[Guest guest]

Ian is having an ultrasound tomorrow morning. His previous x-ray with

the Upper GI study showed preliminary results of a narrowing of the

duodenal sweep in the 2nd portion regional to the ampulla, without

obstruction, no associated ulceration or inflammation. In addition

there was no malrotation.

Have you or anyone else ever heard of this narrowing before with our

RSS children? Only reason I'm asking is because of the malrotation -

I wondered if there was a possible correlation - even though Ian does

not exhibit malrotation.

We will also be looking for the possibility of something pushing on

the intestine; i.e, a tumor or possibly an organ (maybe the appendix

is in the wrong place).

Research I conducted on the internet (silly me looking for answers)

led me to believe that many infants are prone to this narrowing and

typically have surgery once they are born.

Let's keep our fingers crossed it's nothing - I'm not up for surgery.

got in trouble at preschool today - he hasn't even been

there for 2 weeks yet. He wouldn't listen, ran out the door of the

building and received a time-out! Guess I need to pull back on the

reigns a bit.....oh brother.

- H

[Guest guest]

,

I have not heard of this condition in RSS kids in particular, but

you never know - there is always something new popping up. But it

would make sense. If there is a narrowing, then there could be a

delay in emptying. Oh, it's late and I'm not thinking clearly.....

I know that the GI docs have said something about Max's duodenum

being narrow, but he had malrotation. And then he needed the triple

procedure a little over two years ago.

I wish you luck with the ultrasound. I hope they don't find

anything that has to be corrected surgically. Then again, if they

do and it will help, so be it. I just hate surgery, though. It's

so hard to turn our kids over to another person who literally holds

their lives in their hands.

And, thank you, you have reminded me that I need to call Max's GI

tomorrow. Max is getting hiccups again whenever he eats and then

some. I don't know if you were on the listserve when we went

through this before, but at one point it was so bad they would go on

for hours. Dr. H. recommended a scopalamine patch, the kind they

use for seasickness. It worked! I'd hate to have to go that route

again because Max hated it when people asked what it was, but if we

must, we must. There always seems to be something.

Jodi Z

[Guest guest]

Hi,

Sad note - scopalomine is off the market! I freaked when I went for

a refill - I was diagnosed with motion sickness at age 3 months

(strong family history - thanks to dad and his family - and they are

career FISHERMAN who go on boats daily!) and this took enough of the

edge off so that I wasn't sick the entire flight.

, mom to 5 and Emerence 2.5 22 lbs and 32 "

> ,

>

> I have not heard of this condition in RSS kids in particular, but

> you never know - there is always something new popping up. But it

> would make sense. If there is a narrowing, then there could be a

> delay in emptying. Oh, it's late and I'm not thinking

clearly.....

> I know that the GI docs have said something about Max's duodenum

> being narrow, but he had malrotation. And then he needed the

triple

> procedure a little over two years ago.

>

> I wish you luck with the ultrasound. I hope they don't find

> anything that has to be corrected surgically. Then again, if they

> do and it will help, so be it. I just hate surgery, though. It's

> so hard to turn our kids over to another person who literally

holds

> their lives in their hands.

>

> And, thank you, you have reminded me that I need to call Max's GI

> tomorrow. Max is getting hiccups again whenever he eats and then

> some. I don't know if you were on the listserve when we went

> through this before, but at one point it was so bad they would go

on

> for hours. Dr. H. recommended a scopalamine patch, the kind they

> use for seasickness. It worked! I'd hate to have to go that

route

> again because Max hated it when people asked what it was, but if

we

> must, we must. There always seems to be something.

>

> Jodi Z

[Guest guest]

Thanks Jodi. I'm glad he's having the ultrasound anyway - just

because I like to get another view of things.

You know - Ian gets hiccups alot too! Poor Max. Do they know why

he gets them so much??

- H

> ,

>

> I have not heard of this condition in RSS kids in particular, but

> you never know - there is always something new popping up. But it

> would make sense. If there is a narrowing, then there could be a

> delay in emptying. Oh, it's late and I'm not thinking

clearly.....

> I know that the GI docs have said something about Max's duodenum

> being narrow, but he had malrotation. And then he needed the

triple

> procedure a little over two years ago.

>

> I wish you luck with the ultrasound. I hope they don't find

> anything that has to be corrected surgically. Then again, if they

> do and it will help, so be it. I just hate surgery, though. It's

> so hard to turn our kids over to another person who literally

holds

> their lives in their hands.

>

> And, thank you, you have reminded me that I need to call Max's GI

> tomorrow. Max is getting hiccups again whenever he eats and then

> some. I don't know if you were on the listserve when we went

> through this before, but at one point it was so bad they would go

on

> for hours. Dr. H. recommended a scopalamine patch, the kind they

> use for seasickness. It worked! I'd hate to have to go that

route

> again because Max hated it when people asked what it was, but if

we

> must, we must. There always seems to be something.

>

> Jodi Z