To Sheryl, re: Dakoda

[Guest guest]

Sheryl,

There are many other meds to try if Adderall is not the right one.

Max was started on Ritalin and had bad effects from that one. After

attempts with several other meds, we wound up trying Wellbutrin.

It's an antidepressant, but for kids who cannot tolerate stimulants,

it is frequently used for ocd, adhd, add, etc. If the neurologist

is not too helpful, you can try a psychiatrist. Actually, that

might be a beter choice. A psychiatrist is more in tune with

behavioral, social, emotional issues and is willing to try other

meds that the neurologist might not think of.

I know that someone mentioned that Dr. H. likes

Risperdal/risperadone (sp?). It is a good medication, but you have

to be very careful with it. If a child is prone to tics (Max is -

he has Tourette Syndrome, brought on by the stimulants), the child

can develop a mouth twitch that will not go away even if the med is

stopped. One thing I don't like that Dr. H. does is recommend

medications that are not within her area of specialty. We are lucky

in that we take Max to a psychiatrist that she knows and likes, so

there is no conflict with the medications we use for him. She

always bows in respect to 's professional advice and choices of

meds for Max.

By the way, Max does have OCD tendencies, too. He is much better

now, either because they are under control and/or we have learned

how to help him deal with it and he has matured and learned to relax

a bit. I hope that someday there are studies on the behavioral

aspects of RSS/SGA kids. I think there are more similarities than

most doctors realize. Too many of our kids are said to have OCD,

ADD, PDD, etc. for it to be just chance.

Gosh, I remember when Dr. H. first wondered if reflux was a

characteristic! Max was the first RSS baby she had seen with it.

Now look where we are with it! Amazing.

Oh, I feel old....

Jodi Z