Re: New-

[Guest guest]

Hi ,

While I can't address all of your concerns, I did want

to let you know that a " normal " life as an RSS adult

*is* possible. I'm 22 and a first year law student at

Seattle University in Washington. I never had growth

hormone and my final adult height is 4'2 " . I can

honestly say that aside from being short and an

extremely picky eater, my life very much resembles

that of anyone else my age. I was an honor student

and ran cross country in high school, and I graduated

from the University of Colorado in May with a degree

in English Lit. I don't think RSS has ever kept me

from doing something that I've wanted to do.

Occassionally accomodations have to be made, but I've

never met a situation I couldn't fix with a little

creativity . If you were to ask me to name the

worst things that have ever happened to me, RSS

wouldn't even make the list. I know it's really hard

right now and probably very scary, but I am living

proof that RSS doesn't have to mean that your daughter

will have a diminished quality of life. All of the

other RSS adults that I've had the pleasure of meeting

and/or corresponding with are well-adjusted people

with successful careers and families. Please feel

free to contact me with any further questions. You

can either contact me via the list or email me

privately at hillaryjorgensen @yahoo.com (no space).

Best Wishes,

Hillary

22, RSS

--- imadaisy216 wrote:

> My daughter was diagnoised in June 2002. It has been

> very hard on me

> because her father and I are divorced. He is not

> giving her the

> growth hormone. I'm sorry,I'm very emotional.I ran

> into someone at

> work who told me to look up little people of

> America. I'm so

> overwhelmed I never thought that I would find a

> support group. My

> daughter Hannah will be six in November and she

> starts school next

> month. I'm so scared for her. The world is so cruel,

> especially when

> they don't understand something. Is their anyone in

> Indianapolis,

> Indiana? That is where we live. Her father has never

> been their for

> her and now he is exercising his summer visitaion.

> It has been hell.

> Everytime she goes over there she comes back with

> something. It's

> like he doesn't care to realize she already has

> enough on her plate.

> Her and I have never been away from each other more

> than a week. They

> won't let me talk to her it has become more of a

> complex situation

> than it should be. I feel so alone and that I have

> no one to talk to

> that truly understands how hard it is going back and

> forth to the

> doctor's officie, not being able to keep a steady

> job because of all

> the appointments. I just want someone to talk to

> that understands how

> I feel. I also have a one year eleven month old son

> who the doctor's

> think something is wrong with him to. They it isn't

> the same as

> Hannah's condition but I scared to let them pick and

> poke at him I've

> already scared one child, I don't want to scar him

> as well. I don't

> know what to do? If anyone could give me some advice

> I'm open for

> suggestions. With love and prayers,

>

>

>

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