RE: Too old at 9 months corrected??!

[Guest guest]

Definitely a surprise since most dont consider that horribly late.

There have been many kids on here and i know irl who didnt even try to

take it off at 18 mo. My son got his off at 12 mo and never even

tried.

On 6/5/10, chuhner <chuhner@...> wrote:

> I live in Nashville TN and just saw Dr. at Vanderbilt Childrens

> Hospital. (We don't have a docband or starband office here.) made us

> get a cat scan before we could even see him --which we did and there were no

> premature fusions. But now at our office visit, he told my husband and me

> that my son was too old to get a helmet. My son is 1yr actual and 9months

> corrected. I was pretty shocked. (Most people, including med professionals,

> said that as long as we had a Rx and a clean CT scan, he'd helmet in even

> the mildest of cases --and I believe our case, which is plagio, is closer to

> the moderate rating)

>

> Anyway, he gave two reasons for refusing us, 1) that my son was old enough

> to keep taking the helmet off, and 2)that the studies he relies on and his

> own experince is that the skull plates have done their majority of growing

> during that first year of life, so the helmet really won't impact its shape

> to any significant degree. I asked if we could still do it knowing and

> being okay with whatever minimal changes we could get, and he pretty much

> just said that he won't do it for us. Anyone have any conversations like

> this where you went? Did you have to conjole the person into agreeing to do

> it? Did any of you have problems with your child taking the helmet off all

> the time?

>

> We do have a Hangar office here in Nashville so they'll probably be our next

> step. I'm just so shocked over the Vandy appointment that I'm still trying

> to get my bearings. Thanks for any feedback.

> Carla

>

>

>

>

--

Sent from my mobile device

-mommy to Emma, Becca, ,

, , and baby girl no name (yeah I know, nothing new, does

ever pick a name in a timely manner?) July 2010

[Guest guest]

Carla,don't believe him. You will still see relevant changes if you band him now. And the adjusted age should work in your favor. Something similar happened to us. I finally insisted with my son's ped to go see a craniofacial surgeon when he was 13 mos ( 10 adj). The first specialist said helmets don't work and that he was too old anyway. The second specialist talked me out of it saying he was too old and too mild anyway, that any improvement would be minimal (?!). After finding this group I went back again later and talked her into banding. He started at 18 mos ( 15 adj). He wore his Starband for 8 1/2 mos with no problem whatsoever. At one point he started messing with the strap when he was in the car so the ortho added something so he wouldn't be able to open it anymore. he tried once and that was it. He graduated at the end of March and not because we couldn't take it anymore. For how much trouble the band was for him and for me we could have gone longer but he just was not growing any more. And our ortho was acting like she was just indulging me. It was quite frustrating. Had we started when he was 13 mos we would have got more correction. To this day I don't even want to see how much his head exactly grew from 12 to 18 mos. If I see how much growth we missed I think I will completely lose it. In the helmet he grew only 6-7 mm but we still got noticeable improvement, definetly worth it.If possible I would suggest you look into Cranial Technologies too. They usually have more experience with banding older babies and are also more open to it. You can find my son's scan and photostudy in the Older plagio kids folder: his name is .

Feel free to e-mail me if you have any questions. , Tampa, FL, 29 mos, Starband grad Mar 2010

Plagiocephaly From: chuhner@...Date: Sat, 5 Jun 2010 04:40:46 +0000Subject: Too old at 9 months corrected??!

I live in Nashville TN and just saw Dr. at Vanderbilt Childrens Hospital. (We don't have a docband or starband office here.) made us get a cat scan before we could even see him --which we did and there were no premature fusions. But now at our office visit, he told my husband and me that my son was too old to get a helmet. My son is 1yr actual and 9months corrected. I was pretty shocked. (Most people, including med professionals, said that as long as we had a Rx and a clean CT scan, he'd helmet in even the mildest of cases --and I believe our case, which is plagio, is closer to the moderate rating)Anyway, he gave two reasons for refusing us, 1) that my son was old enough to keep taking the helmet off, and 2)that the studies he relies on and his own experince is that the skull plates have done their majority of growing during that first year of life, so the helmet really won't impact its shape to any significant degree. I asked if we could still do it knowing and being okay with whatever minimal changes we could get, and he pretty much just said that he won't do it for us. Anyone have any conversations like this where you went? Did you have to conjole the person into agreeing to do it? Did any of you have problems with your child taking the helmet off all the time?We do have a Hangar office here in Nashville so they'll probably be our next step. I'm just so shocked over the Vandy appointment that I'm still trying to get my bearings. Thanks for any feedback.Carla

[Guest guest]

I would also agree that you should look into getting a helmet. My daugther, Norah, was 10 months at the start of therapy and we have seen a dramatic change in just 3 months! All the information we have been told and researched state growth can occur up to 18 months. We used Cranial Technologies and have been very pleased! Good luck!!

plagiocephaly From: cllulei@...Date: Sat, 5 Jun 2010 16:13:53 -0400Subject: RE: Too old at 9 months corrected??!

Carla,don't believe him. You will still see relevant changes if you band him now. And the adjusted age should work in your favor. Something similar happened to us. I finally insisted with my son's ped to go see a craniofacial surgeon when he was 13 mos ( 10 adj). The first specialist said helmets don't work and that he was too old anyway. The second specialist talked me out of it saying he was too old and too mild anyway, that any improvement would be minimal (?!). After finding this group I went back again later and talked her into banding. He started at 18 mos ( 15 adj). He wore his Starband for 8 1/2 mos with no problem whatsoever. At one point he started messing with the strap when he was in the car so the ortho added something so he wouldn't be able to open it anymore. he tried once and that was it. He graduated at the end of March and not because we couldn't take it anymore. For how much trouble the band was for him and for me we could have gone longer but he just was not growing any more. And our ortho was acting like she was just indulging me. It was quite frustrating. Had we started when he was 13 mos we would have got more correction. To this day I don't even want to see how much his head exactly grew from 12 to 18 mos. If I see how much growth we missed I think I will completely lose it. In the helmet he grew only 6-7 mm but we still got noticeable improvement, definetly worth it.If possible I would suggest you look into Cranial Technologies too. They usually have more experience with banding older babies and are also more open to it. You can find my son's scan and photostudy in the Older plagio kids folder: his name is . Feel free to e-mail me if you have any questions. , Tampa, FL, 29 mos, Starband grad Mar 2010

Plagiocephaly From: chuhner Date: Sat, 5 Jun 2010 04:40:46 +0000Subject: Too old at 9 months corrected??!

I live in Nashville TN and just saw Dr. at Vanderbilt Childrens Hospital. (We don't have a docband or starband office here.) made us get a cat scan before we could even see him --which we did and there were no premature fusions. But now at our office visit, he told my husband and me that my son was too old to get a helmet. My son is 1yr actual and 9months corrected. I was pretty shocked. (Most people, including med professionals, said that as long as we had a Rx and a clean CT scan, he'd helmet in even the mildest of cases --and I believe our case, which is plagio, is closer to the moderate rating)Anyway, he gave two reasons for refusing us, 1) that my son was old enough to keep taking the helmet off, and 2)that the studies he relies on and his own experince is that the skull plates have done their majority of growing during that first year of life, so the helmet really won't impact its shape to any significant degree. I asked if we could still do it knowing and being okay with whatever minimal changes we could get, and he pretty much just said that he won't do it for us. Anyone have any conversations like this where you went? Did you have to conjole the person into agreeing to do it? Did any of you have problems with your child taking the helmet off all the time?We do have a Hangar office here in Nashville so they'll probably be our next step. I'm just so shocked over the Vandy appointment that I'm still trying to get my bearings. Thanks for any feedback.Carla

The New Busy is not the old busy. Search, chat and e-mail from your inbox. Get started.

[Guest guest]

Carla, I believe we spoke over the phone.  My son Evan sees Dr. .  I'm surprised he said that, but I do get the feeling that he is a doctor that is more on the conservative side.  I do believe that it's not too late.  If you can get a prescription directly from the pediatrician, then you can see BJ at Hanger.  I like having Dr. 's input on Evan's progression, but the good thing about not having to go thru Dr. is that you save $1350 for his services if your insurance ends up not covering it.  Please feel free to give me a call if you have any questions.  

On Fri, Jun 4, 2010 at 11:40 PM, chuhner <chuhner@...> wrote:

 

I live in Nashville TN and just saw Dr. at Vanderbilt Childrens Hospital. (We don't have a docband or starband office here.) made us get a cat scan before we could even see him --which we did and there were no premature fusions. But now at our office visit, he told my husband and me that my son was too old to get a helmet. My son is 1yr actual and 9months corrected. I was pretty shocked. (Most people, including med professionals, said that as long as we had a Rx and a clean CT scan, he'd helmet in even the mildest of cases --and I believe our case, which is plagio, is closer to the moderate rating)

Anyway, he gave two reasons for refusing us, 1) that my son was old enough to keep taking the helmet off, and 2)that the studies he relies on and his own experince is that the skull plates have done their majority of growing during that first year of life, so the helmet really won't impact its shape to any significant degree. I asked if we could still do it knowing and being okay with whatever minimal changes we could get, and he pretty much just said that he won't do it for us. Anyone have any conversations like this where you went? Did you have to conjole the person into agreeing to do it? Did any of you have problems with your child taking the helmet off all the time?

We do have a Hangar office here in Nashville so they'll probably be our next step. I'm just so shocked over the Vandy appointment that I'm still trying to get my bearings. Thanks for any feedback.

Carla

[Guest guest]

Actually, it can occur past 18 months.  We've seen improvement from 18

to 24 months.  We didn't see a noticeable slow down in improvement

since 12 months until a couple months ago at around 22 months.  And I

believe there has been a little improvement even from 22 to 24 months. 

My hope is there will be yet more improvement.

-Kathy, mom to 24 months

Hoffman wrote:

 

I would also agree that you should look into getting a helmet. My

daugther, Norah, was 10 months at the start of therapy and we have seen

a dramatic change in just 3 months!  All the information we have been

told and researched state growth can occur up to 18 months.  We used

Cranial Technologies and have been very pleased!  Good luck!!

 

plagiocephaly

From: clluleihotmail

Date: Sat, 5 Jun 2010 16:13:53 -0400

Subject: RE: Too old at 9 months corrected??!

 

Carla,

don't believe him. You will still see relevant changes if you band him

now. And the adjusted age should work in your favor.

Something similar happened to us.

I finally insisted with my son's ped to go see a craniofacial surgeon

when he was 13 mos ( 10 adj). The first specialist said helmets don't

work and that he was too old anyway. The second specialist talked me

out of it saying he was too old and too mild anyway, that any

improvement would be minimal (?!). After finding this group I  went

back again later and talked her into banding.

 

 He started at 18 mos ( 15 adj).  He wore his Starband for 8 1/2 mos

with no problem whatsoever. At one point he started messing with the

strap when he was in the car so the ortho added something so he

wouldn't be able to open it anymore. he tried once and that was it.

 He graduated at the end of March and not because we couldn't take it

anymore. For how much trouble the band was for him and for me we could

have gone longer but he just was not growing any more. And our ortho

was acting like she was just indulging me. It was quite frustrating.

Had we started when he was  13  mos we would have got more correction.

To this day I don't even want to see how much his head exactly grew

from 12 to 18 mos. If I see how much growth we missed I think I will

completely lose it.

In the helmet he grew only 6-7 mm but we still got noticeable

improvement, definetly worth it.

If possible I would suggest you look into Cranial Technologies too.

They usually have more experience with banding older babies and are

also more open to it. 

 

You can find my son's scan and photostudy in the Older plagio kids

folder: his name is . 

 Feel free to e-mail me if you have any questions.

 

 

 

 

, Tampa, FL

, 29 mos, Starband grad Mar 2010

 

 

Plagiocephaly

From: chuhner

Date: Sat, 5 Jun 2010 04:40:46 +0000

Subject: Too old at 9 months corrected??!

 

I live in Nashville TN and just saw Dr.

at Vanderbilt Childrens Hospital. (We don't have a docband or

starband office here.) made us get a cat scan before we could

even see him --which we did and there were no premature fusions. But

now at our office visit, he told my husband and me that my son was too

old to get a helmet. My son is 1yr actual and 9months corrected. I was

pretty shocked. (Most people, including med professionals, said that as

long as we had a Rx and a clean CT scan, he'd helmet in even the

mildest of cases --and I believe our case, which is plagio, is closer

to the moderate rating)

Anyway, he gave two reasons for refusing us, 1) that my son was old

enough to keep taking the helmet off, and 2)that the studies he relies

on and his own experince is that the skull plates have done their

majority of growing during that first year of life, so the helmet

really won't impact its shape to any significant degree. I asked if we

could still do it knowing and being okay with whatever minimal changes

we could get, and he pretty much just said that he won't do it for us.

Anyone have any conversations like this where you went? Did you have to

conjole the person into agreeing to do it? Did any of you have problems

with your child taking the helmet off all the time?

We do have a Hangar office here in Nashville so they'll probably be our

next step. I'm just so shocked over the Vandy appointment that I'm

still trying to get my bearings. Thanks for any feedback.

Carla

The New Busy is not the old busy. Search, chat and e-mail from

your inbox. Get started.

[Guest guest]

Our son got his DOC band at nine months and he's been wearing it for 7 weeks.

We're thrilled with how his head shape has improved. His gross motor skills

also improved greatly after getting the band. I don't think your son is too old

by any means! Good luck!

> >

> >

> > I would also agree that you should look into getting a helmet. My

> > daugther, Norah, was 10 months at the start of therapy and we have

> > seen a dramatic change in just 3 months! All the information we

> > have been told and researched state growth can occur up to 18 months.

> > We used Cranial Technologies and have been very pleased! Good luck!!

> >

> >

> > ------------------------------------------------------------------------

> > plagiocephaly

> > From: cllulei@...

> > Date: Sat, 5 Jun 2010 16:13:53 -0400

> > Subject: RE: Too old at 9 months corrected??!

> >

> >

> > Carla,

> > don't believe him. You will still see relevant changes if you band him

> > now. And the adjusted age should work in your favor.

> > Something similar happened to us.

> > I finally insisted with my son's ped to go see a craniofacial surgeon

> > when he was 13 mos ( 10 adj). The first specialist said helmets don't

> > work and that he was too old anyway. The second specialist talked me

> > out of it saying he was too old and too mild anyway, that any

> > improvement would be minimal (?!). After finding this group I went

> > back again later and talked her into banding.

> >

> > He started at 18 mos ( 15 adj). He wore his Starband for 8 1/2 mos

> > with no problem whatsoever. At one point he started messing with the

> > strap when he was in the car so the ortho added something so he

> > wouldn't be able to open it anymore. he tried once and that was it.

> > He graduated at the end of March and not because we couldn't take it

> > anymore. For how much trouble the band was for him and for me we could

> > have gone longer but he just was not growing any more. And our ortho

> > was acting like she was just indulging me. It was quite frustrating.

> > Had we started when he was 13 mos we would have got more correction.

> > To this day I don't even want to see how much his head exactly grew

> > from 12 to 18 mos. If I see how much growth we missed I think I will

> > completely lose it.

> > In the helmet he grew only 6-7 mm but we still got noticeable

> > improvement, definetly worth it.

> >

> > If possible I would suggest you look into Cranial Technologies too.

> > They usually have more experience with banding older babies and are

> > also more open to it.

> >

> >

> > You can find my son's scan and photostudy in the Older plagio kids

> > folder: his name is .

> > Feel free to e-mail me if you have any questions.

> >

> >

> >

> >

> > , Tampa, FL

> > , 29 mos, Starband grad Mar 2010

> >

> >

> >

> >

> > /

> > /

> >

> >

> >

> >

> >

> > ------------------------------------------------------------------------

> > Plagiocephaly

> > From: chuhner@...

> > Date: Sat, 5 Jun 2010 04:40:46 +0000

> > Subject: Too old at 9 months corrected??!

> >

> >

> > I live in Nashville TN and just saw Dr. at Vanderbilt Childrens

> > Hospital. (We don't have a docband or starband office here.)

> > made us get a cat scan before we could even see him --which we did and

> > there were no premature fusions. But now at our office visit, he told

> > my husband and me that my son was too old to get a helmet. My son is

> > 1yr actual and 9months corrected. I was pretty shocked. (Most people,

> > including med professionals, said that as long as we had a Rx and a

> > clean CT scan, he'd helmet in even the mildest of cases --and I

> > believe our case, which is plagio, is closer to the moderate rating)

> >

> > Anyway, he gave two reasons for refusing us, 1) that my son was old

> > enough to keep taking the helmet off, and 2)that the studies he relies

> > on and his own experince is that the skull plates have done their

> > majority of growing during that first year of life, so the helmet

> > really won't impact its shape to any significant degree. I asked if we

> > could still do it knowing and being okay with whatever minimal changes

> > we could get, and he pretty much just said that he won't do it for us.

> > Anyone have any conversations like this where you went? Did you have

> > to conjole the person into agreeing to do it? Did any of you have

> > problems with your child taking the helmet off all the time?

> >

> > We do have a Hangar office here in Nashville so they'll probably be

> > our next step. I'm just so shocked over the Vandy appointment that I'm

> > still trying to get my bearings. Thanks for any feedback.

> > Carla

> >

> >

> >

> >

> > ------------------------------------------------------------------------

> > The New Busy is not the old busy. Search, chat and e-mail from your

> > inbox. Get started.

> >

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