Re: Eating lunch at school - Jeanne

[Guest guest]

Jeanne,

Does Olivia have an IEP?? If not, I think a 504 Plan would work for this.

But you need to have it written into either plan that she needs to eat at

such and such intervals, and this will FORCE the teachers to follow your

requests.

I would go over the teacher's head to the Principal and ask for some help

with the situation. Until something can be done, could you go into school

and insure that she eats well, at least at lunch??

Pat (g-ma to , RSS, 3 yrs 9 months old, 24.5#, 34 " , G-tube, GHT)

[Guest guest]

Pat,

Thanks for your reply. I most sound really naive, but I don't know what a IEP

or 504 plan is.

Like I said before, Olivia has done really well and she hasn't had my issues.

She is almost 6yrs and weighs 38lbs and is 42 " . She is on periatic and Zantac

2x/day and night feeds of 250ml of peptamin in g-tube - no GHT (yet). She has

had amazing progress since she got her g-tube 2 1/2yrs ago when she weighed

20lbs at 3 1/4yrs. So I know we are really lucky, but now I really have to

advocate for her and take this more seriously now that I have less control of

her day.

I would appreciate a little more info in IEP and 504 plan. But, in the meantime

I am going to talk to the primary school head. Her son is diabetic so she

should be understanding.

Thanks again,

Jeanne

Mom to Olivia-rss 5 3/4yrs and 22mos - non-rss.

pcpets wrote:

Jeanne,

Does Olivia have an IEP?? If not, I think a 504 Plan would work for this.

But you need to have it written into either plan that she needs to eat at

such and such intervals, and this will FORCE the teachers to follow your

requests.

I would go over the teacher's head to the Principal and ask for some help

with the situation. Until something can be done, could you go into school

and insure that she eats well, at least at lunch??

Pat (g-ma to , RSS, 3 yrs 9 months old, 24.5#, 34 " , G-tube, GHT)

[Guest guest]

Hi Jeanne,

My son is 8 and in the third grade. He is also on periactin and

growth hormone. The periactin works good. The growth hormone also

works good but for him the combination is great.

Anyway, 504 referrs to Section 504 of the Americans with Disabilities

Act. It requires a school or other public facility to make

accomadations for children with special needs. This can be anything

from smaller desk or chairs to a laptop or easier openig doors or

smaller toilets. Whatever is required for her to fully participate in

school.

An IEP stand for Individual Education Plan. It is a contract between

you and the school to provide services and accomodations for a child

if they have a medical condition that interferes with them obtaining

a " Free and Appropriate Education " in a " Least Restrictive

Environment " . This can be anything from speech therapy (which my son

needs) to an aid to help with lunch etc. However, to get these

services, the school must conduct an evaluation which you must

request. In some school districts this can be hard to do because it

is expensive and time consuming and some schools don't have the funds

or resources to do this even though they are required by law once

they have identified a child under the Child Find provisions. The

IEP, Child find, and FAPE are all part of IDEA Individuals with

Disabilities Education Act.

To find out more, I would suggest you have a friendly conversaation

with your schools Special Education Coordinator (SPED coordinator)

and discuss your concerns.

We had a similar problem and in our case the school let my wife come

in a few days a week to ahve lunch with my son. They also asked one

of the aids working wqith another child to make sure my son drank at

least 2 ounces of juice a day and ate some of the food we sent in. We

asked her not to push the food by to gently remind him to eat. It

worked OK but not great. The aid would often go too far and insist he

eat. We had to have more than one meeting on this. Anyway, eats

by himself now. Some days, he eats only his snack and other days, we

don't send enough food. It is hard to predict.

I hope this helps.

Ken M

> Jeanne,

>

> Does Olivia have an IEP?? If not, I think a 504 Plan would work for

this.

> But you need to have it written into either plan that she needs to

eat at

> such and such intervals, and this will FORCE the teachers to follow

your

> requests.

>

> I would go over the teacher's head to the Principal and ask for

some help

> with the situation. Until something can be done, could you go into

school

> and insure that she eats well, at least at lunch??

>

> Pat (g-ma to , RSS, 3 yrs 9 months old, 24.5#, 34 " , G-tube,

GHT)

>

>

>

>

>