Re: I am so STRESSED about what to do -

October 22, 2005

Hi ,

I don't write too often but I agree with everyone. My son Jordan got his g

tube when he was 14 months old. He had an NG tube first for about 8 months. My

husband and I agonized over this decision to get a G tube. He was totally

against it and Dr. H could sense his apprehension at Jordan's first visit with

her. And Dr. H told my husband like it is - she said I see you are in denial

and this is not something that's going to go away in a few months. I must tell

you getting the G tube was the best thing that ever happened to us. Granted

the surgery did scare me and he was hospitalized for 9 days but in the end it

was all worth it. My son is 4 years old now and doing fine in terms of his

gastric situation. Now we are dealing with hearing and behavior issues. Take

time

to think about your decision and do your research. We are all here for you.

mom to Jordan RSS G tube, GH, Tums, Vit D, 38 lbs and 41 inches;

4months

October 22, 2005

When I checked out the growth charts at

Maddison is about 3 squares below the 3rd percentile on the

weight-for-stature chart. And that IS pretty low.

It's great that Maddison is eating better right now, BUT we are heading into

the " colder, sicker " seasons, so it probably won't stay that way. and not

getting enough calories, only makes it harder to fight the germs that come

her way.

The decision to have a tube placed is a really hard one to make. I know tons

of people that believe if we just tried harder, or were more forceful with

, he wouldn't " need " his tube. They are SO wrong!! BUT ask anyone

that has agonized over this decision, then carried through, and I think ALL

of them would say they weren't sorry, once it was over and done.

Wish I could soothe the stress away, but only time will help. The horrors

that you imagine with the placement of the g-tube are so much worse than the

reality of it. Kids heal remarkably fast!

Just know that we're all here to support whatever decision you make.

HUGS!!

Pat (g-ma to , RSS, 3 yrs 10 months old, 25#, 34.6 " , G-tube, GHT)

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