Tori

[Guest guest]

I would call Jodi RIGHT AWAY and have her give you the er protocol for this.

She did this for me years ago and now I have a little less arguing in the ER.

We just whip it out, have our ped. call it in " formally " and we all are set to

go. Did they test ketones in blood? Does she have a tube? Keep giving her

sprite which has carbs, and gatorade if she will not drink pedialyte. Gatorade

also has popscicles now with thte electrolytes. We keep a supply in our closets

at all times. I would go back and INSIST or call Dr. H AGAIN or go to another

er.

jamtorrss wrote:I had to take Tori to the ER today.

She went to summer school this

morning and was fine her teacher called around 11 am and said Tori had

been crying and fussy all morning and said that she did not feel good

so I had go get her and bring her to me I was in town alreay. She

had vomited 5x with 2 hrs and when I got her she did 2 more times, she

was real tired and weak I called her ped and she said to take her to

the ER so I did she called and said to out her on IV fluids we sat

there for 2 hrs before they did and they drew blood pricked her finger

cked her temp. I called to DR H office they had already left for the

day so I paged the on call DR Macrdo she called me back then spoke to

the ER Dr. they said because her bllod work and elecrolites were good

that she could go home she had not eat anything all day and while in

the hospital she was not responding. I got scared I thought DR H said

if there sick they need to be admitted until eating again. Well we are

home she is still passing keytones and running a fever she did eat

some soup But they told me that it was just a virus. I do not agree

with them because it hit her so fast and she seems to be fine now.

[Guest guest]

This is Jodi Z. You have to take Tori back to that ER and insist

that she be admitted if she is spilling ketones. Anything above a

trace, especially at moderate to large, is NOT acceptable and very

dangerous. This means that her glycogen stores, her sources of food

for the brain, are used up and she is using muscle for food. (Thus

the ketones, or protein, in the urine.) She needs to be on

continuous IV fluids, preferable with D10, and on gut rest until she

stops vomiting and the ketones are gone. When she feels she can

eat, you have to go slowly. Start with clear liquids and jello. As

she increases her intake, the IV can be lowered, but should not be

stopped. Then, after a few hours, or however long it takes (it

usually takes Max a couple of days, but he's an exception), she can

advance to soft foods and then onto regular food. Once she is

tolerating her foods, then she can be disconnected from the IV, but

must be monitored to make sure she can maintain the negative

ketones. Only then should she go home. It could be a 2 day

hospital stay, or it could be several days.

We are experts at this. Max is hospitalized for this at least twice

a year now and the people at the hospital just leave it up to me,

for the most part. Even Max knows the protocol, so if I'm not

there, he is learning to speak up and tell the doctors himself. All

those residents have to do is look at his huge file and see that the

routine is the same each time. Sometimes someone new decides to act

like " God " and try something different, but that person risks my

anger and rage, so that is shortlived on his/her part.

Please do not fool around with Tori. Speak up for her and don't let

those ER doctors intimidate you. She needs the IV fluids and gut

rest. I don't care if the electrolytes come back okay. If she has

ketones, she is in need of the special care that only a hospital can

provide.

I do hope that by the time you read this Tori is feeling better. If

not, then get your fighting gloves on and go for it!

Jodi Z

[Guest guest]

Oh I am so sorry for you and your family. You are all in my thoughts and

prayers.

B

5 1/2 and Kelli 3

jamie xxxx wrote:

Well her ped said that it may not be realated but we will see. So I got some bad

news over the weekend my 13 year old cousin died saturday morning with a brain

tumor that begin to hemorage she went to have a catscan done on thursday and

found the tumor then friday it busted she passed away very quickly she did not

know anything was wrong. from what Ive heard she had started to get headaches

and loosing weight. That is all I know now. she lives in Alabama. Her 13th

birthday was also on saturday, very heard loos in our family.

Re: Tori

Sounds like you find the problem of when Tori was having all her " accidents. "

I hope Tori is feeling better.

B

5 1/2 and Kelli 3

jamtorrss wrote:

Tori seen the nutristionst on thursday she said we were doing with her

and to just add dry milk and heavy cream to her foods, and yesterday

she had blood work done and did great and also had an ultersound done,

they found a cyst on her left kidney that is about2 inches we have to

follow up with a urologist next week.But nothing on why shes not

gaining weight I can not wait to go back to see Dr H our apt is not

untill Nov 1. Hope everyone is doing well. Chrissy have you heard when

you can go home?

mom to tori 5 rss and gina 3 nonrss

[Guest guest]

jamie,

your family is in my thoughts and prayers!!

jodie c

[Guest guest]

I took Tori to the allergist this morning, the patch test come back

normal. Then I took her to school and spoke with her teacher she said

what all you said to give it awhile she will just keep letting her

know the boundries and who's the teacher. I am ok with that and told

her to make sure Tori looks her in the eye when she is trying to get

her to pay attention. When we were in Dr.H's in July she would grab

tori by her cheeks and look her in the eye when tori would not listen

eric and I have been doing since and it seeems to help. Well thats all

for now. Thanks allot for everyones input it really does help to be

able to talk with you all.