Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 As is true for probably most of you, feeding has become the bane of my existence. I must have the caloric content of every food memorized and can estimate the serving size of just about anything. I can't wait until these days are over! I have been keeping a log of everything that my son eats on a daily basis. Basically, he gets 3/4 of his calories through milk (which is really milk and 1/2 and 1/2 combined). I know that it sounds disgusting but based on everything else I've tried it " works " best. He can't tolerate " rich foods " -- Boost, milkshakes etc. and has a tough time w/ mixed textures. He " likes: crunchy and prefers that foods like veggies not be cooked. He's been known to eat some foods frozen that would normally be cooked (refrigerated ravioli etc.). We've worked w/ a nutritionist feeding therapists OT and sp/lang. professionals who all have great ideas but the bottom line is that my son, Jack, has NO interest in eating and would probably go for days w/o eating if he didn't have to. Because of this and an anxious mom, there are numerous behavioral issues surrounding eating. While the diagnosis of RSS was really hard for me, I remember my initial reaction being of relief. I know that it sounds ridiculous, but I was so tired of everyone (friends and relatives included) looking at me as if I had created this child who had all of these " food issues " . I guess what I'm wondering is how you have all dealt w/ this. Part of me wants my son to have " normal " eating habits and then the other part of me just wants him to maintain being able to eat on his own w/o any kind of feeding intervention. Any tips that you have would be great. One thing that frustrates me is that many professionals have great ideas but they are not foods that I can get my son to eat. Is there anyone who lives in the NY metro area that has the name of a feeding therapist who has worked w/ RSS kids. Does this problem ever go away? Am I going to experience these same problems w/ my son when he's 8 or 15? ( I don't think I can imagine this!) **Also, my son's head sweats profusely at night. Is that in and of itself cause for concern? Does it mean that he is definitely hypoglycemic or is it possible that it is just symptomatic of RSS? I have an appt. w/ Dr. Harbison in about 6 weeks. I have never met w/ her. Are these the kinds of questions and concerns that she can help me with? I've seen many of you refer to her. What should I expect from my initial consultation? Well I can't imagine anyone reading all of this. (I barely could when aI went back to reread it to see if makes any sense. Any ideas, thoughts would be greatly appreciated, (one of the many J's) Quote Link to comment Share on other sites More sharing options...
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