Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Hi , I am so happy to hear that na is doing so well!! Give yourself a big pat on the back mama!! I know some of your story and well, I am just thrilled that you have seen much better results with Dr. Pirani!!! Good luck with getting your hours reduced - when were you thinkin of going in? Grace is due for a check up soon, would love to meet you guys! Maybe Hayden is due for a check up too (hint hint haha) and we could all get together for lunch or something. & Grace > > Hi miia, > My name is and I have an 11 month old baby girl, na and we have > had a long haul as well. She just started the DBB and I feel the same way > you do. However, babies are very adaptable and she is crawling all over the > place and pulling herself up on furniture with the brace on, as she is > wearing them 23/7 for 2 months...I am actually going back to see the doc to > see if we can recuce hours a little bit since she has had them for a month > now. It definitely takes a while to get used to them but once the little > one gets used to them, you will too. I was fed up with them for a while > too, but now its just a part of everyday life and its just fine!! > > and na > > > > > >Reply-To: nosurgery4clubfoot > >To: nosurgery4clubfoot > >Subject: Just joined the group: Pinja & Miia > >Date: Fri, 19 May 2006 18:53:31 -0000 > > > >Hi! > > > >I just found this amazing group that has already helped me a lot. I > >want to introduce myself and Pinja, my daughter. She is 6 months old > >and has a right clubfoot (the leg is also affected by amniotic > >banding, as well as her right hand fingers) that has been treated > >with casting, DBB for 3 months, then a tenotomy after relapse and now > >DBB again. We live in Finland. > > > >Pinja has accepted the casts and the DBB without any problems. We had > >a problem with the DBB before the tenotomy, her heel just wouldn't > >stay down in the shoe and she often kicked the shoe of her clubfoot. > >Now after the tenotomy, the heel is apparently better shaped to stay > >in the right place. > > > >I have a problem on my mind. Our doctor adviced us to use the DBB > >23/7 for the next three months, after the tenotomy was made and the > >foot casted for 3 weeks. In three months, Pinja will be 9 months and > >still wearing the brace full time. I feel sorry for her, because she > >can't do the things that she would do without the brace even now > >(rolling over), how will she be able to crawl, sit and stand up... We > >wrote to Dr. Ponseti and he told us to wear the DBB for 20 hours, > >then after a month 18 hours, and then 16. I totally believe in dr. > >Ponseti's expertise, but it is very hard to make a decision in this > >situation. What if we decide to wear the DBB for less than 23 hours > >and the result is a relapse. I am, at this moment, so annoyed with > >the shoes and the brace, that it is very tempting to go with dr. > >Ponseti's advice... would I be a lazy, irresponsible mom to do so... > > > > > > > > > > > > _________________________________________________________________ > Take advantage of powerful junk e-mail filters built on patented Microsoft® > SmartScreen Technology. > http://join.msn.com/?pgmarket=en- ca & page=byoa/prem & xAPID=1994 & DI=1034 & SU=http://hotmail.com/enca & HL=Mar ket_MSNIS_Taglines > Start enjoying all the benefits of MSN® Premium right now and get the > first two months FREE*. > Quote Link to comment Share on other sites More sharing options...
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