Guest guest Posted June 4, 2006 Report Share Posted June 4, 2006 What exactly do you mean by a " hair patch " ? Lucas has one at the top of his spine- but he was born very hairy! Dr Ponseti looked him over very well (spine included) and said he was fine, so just curious. Jenn > > I found this online looking at another post. NOW I AM REALLY CONCERNED! Lilee has a good hair patch on her lower back where her spine meets her butt. We have always thought it was kinda cute, but it has been a curiosity to me always. I myself have minor scoliosis. So hereditary, she may have it. Do any other kids here have scoliosis also along with CF? How did you know? Do they have the hair patch? I have always thought her CF leg was longer than the other. This may explain that? I am going to call her ped. Dr. tomorrow and set up an appt. Any feedback GREATLY appreciated! Q: Are there any signs that parents might look for? A: There may be signs such as a rib hump or a small " bump " on the back. There may be foot problems, such as a clubfoot, which could be a tip off. Quite commonly, one will find a hair patch somewhere along the spine. If you notice any of these signs, take your child to a scoliosis specialist immediately. Reprinted > by permission of > The National Scoliosis Foundation > 72 Mt. Auburn Street > Watertown, MA 02172 > > > > > > TEF/Vater® International > is a nonprofit organization founded by Greg and Terri Burke after their daughter, Jaclyn, was born with esophageal atresia in 1990. To those children, born and unborn, with esophageal atresia, tracheo- esophageal fistula, and/or the VATER/VACTERL Association, and to the very special parents and medical staff who love and care for them, this organization is dedicated > > > > > phone | fax | email info@... > > > Christee > Mother of... > *Josh (9)~Learning/Speech Delays > **Aspen (6)~ Bilateral Metatarsus Adductus > ***Dylan (4)~PTSD/Anxiety > ****Lilee (10 months)~A-Typical ® > *P/M Brace 10/24 by request of Dr. P > *Special tongue pads f/ due to chubbyness of foot > > > > > > > --------------------------------- > Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2006 Report Share Posted June 4, 2006 Both my husband and I are not hairy people. it takes him a month to grow somewhat of a mustache...lol...Neither any relatives on either side of the family. She too is not hairy, except right above her butt crack. There is a dark patch (she has strawberry blond hair), about Lt. brown hair there. Probably 1 " across by 2 1/2 " tall. No Sacral dimples, just Sacral hair patch. The hair is fairly long for an infant. I cant brade it or anything...lol...I think Kori has seen it. Christee Mother of... *Josh (9)~Learning/Speech Delays **Aspen (6)~ Bilateral Metatarsus Adductus ***Dylan (4)~PTSD/Anxiety ****Lilee (10 months)~A-Typical ® *P/M Brace 10/24 by request of Dr. P *Special tongue pads f/ due to chubbyness of foot --------------------------------- Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2006 Report Share Posted June 4, 2006 Hairy patches can be nothing, but it is worth looking into. My sister's little girl had a hairy patch they would watch, but since she was walking at 9 months and everything looked good, they didn't do anything else about it. Christee wrote: I found this online looking at another post. NOW I AM REALLY CONCERNED! Lilee has a good hair patch on her lower back where her spine meets her butt. We have always thought it was kinda cute, but it has been a curiosity to me always. I myself have minor scoliosis. So hereditary, she may have it. Do any other kids here have scoliosis also along with CF? How did you know? Do they have the hair patch? I have always thought her CF leg was longer than the other. This may explain that? I am going to call her ped. Dr. tomorrow and set up an appt. Any feedback GREATLY appreciated! Q: Are there any signs that parents might look for? A: There may be signs such as a rib hump or a small " bump " on the back. There may be foot problems, such as a clubfoot, which could be a tip off. Quite commonly, one will find a hair patch somewhere along the spine. If you notice any of these signs, take your child to a scoliosis specialist immediately. Reprinted by permission of The National Scoliosis Foundation 72 Mt. Auburn Street Watertown, MA 02172 TEF/Vater® International is a nonprofit organization founded by Greg and Terri Burke after their daughter, Jaclyn, was born with esophageal atresia in 1990. To those children, born and unborn, with esophageal atresia, tracheo-esophageal fistula, and/or the VATER/VACTERL Association, and to the very special parents and medical staff who love and care for them, this organization is dedicated phone | fax | email info@... Christee Mother of... *Josh (9)~Learning/Speech Delays **Aspen (6)~ Bilateral Metatarsus Adductus ***Dylan (4)~PTSD/Anxiety ****Lilee (10 months)~A-Typical ® *P/M Brace 10/24 by request of Dr. P *Special tongue pads f/ due to chubbyness of foot --------------------------------- Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
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