RE: Bone age - very unusual

[Guest guest]

Hmmmm - I'll have to look into this. I know Ian's was very delayed -

but, I don't remember any " ossified " comments. At 9 mos his hand

was 3 months. At 22 mos - his phalangeal epiphyses (fingers)

appeared between 18 and 24 months. But, the other centers are less

mature with the carpals, metacarpals and distal forearm bones

appeared between 9 and 12 months. His chronological age is 22

months - the standard deviation at that age is 3 months. His

skeletal maturation is disharmonic, although overall delayed.

- H

> WE saw Emerence's endo last week and she called me today after she

> read a bone age xtray we took in May.

>

> At age 15 months last year her hand read at 9-12 months

> At age 27 months her hand read at 2y2m - 2y3m

>

> So she is caught up (help her - s hould she have caught up in a

> year?!) BUT in the row of bones across the palm one is completely

> not ossified/developed and is very delayed for bone age. I forgot

> to ask which one (duh - panic brain set in) and neither she nor

> the specialist she asked to read it had ever seen or heard of

> anything like it.

>

> She was calling me from a different satellite office and will

follow

> up with the top specialists in bone age/structure at Children's

next

> week. She was wondering if any other RSS kids had this funky

> feature or if it was a marker for a totally different syndrome?

>

> And she now is totally okay with GH (she was not opposed she just

> wanted to give me time to think through the options) so now I

wonder

> if the bone age triggered something??

>

> , mom to 5 and Emerence 2.5 22lb 32 "

[Guest guest]

MEGAN,

I DONT KNOW IF IT WILL HELP YOU BUT THA BONE AGE OF MY CHILD WAS NEVER

DELEID.

DR.H CHECKED HER X.RAYS AND CONFIRM RSS -SHE WAS NOT WORRIED ABOUT IT.

TIKVA,MOM TO MAI,3.8

>

>Reply-To: RSS-Support

>To: RSS-Support

>Subject: Bone age - very unusual

>Date: Sat, 17 Sep 2005 01:19:23 -0000

>

>WE saw Emerence's endo last week and she called me today after she

>read a bone age xtray we took in May.

>

>At age 15 months last year her hand read at 9-12 months

>At age 27 months her hand read at 2y2m - 2y3m

>

>So she is caught up (help her - s hould she have caught up in a

>year?!) BUT in the row of bones across the palm one is completely

>not ossified/developed and is very delayed for bone age. I forgot

>to ask which one (duh - panic brain set in) and neither she nor

>the specialist she asked to read it had ever seen or heard of

>anything like it.

>

>She was calling me from a different satellite office and will follow

>up with the top specialists in bone age/structure at Children's next

>week. She was wondering if any other RSS kids had this funky

>feature or if it was a marker for a totally different syndrome?

>

>And she now is totally okay with GH (she was not opposed she just

>wanted to give me time to think through the options) so now I wonder

>if the bone age triggered something??

>

>, mom to 5 and Emerence 2.5 22lb 32 "

>

>

>

[Guest guest]

,

Alyssa's bone age did the same kind of jump. The main thing is to keep her

bone age closely monitored. Often, an advancing bone age can be correlated

to early adrenarche. We learned at the convention this year how that truly

affects our children's growth. We had Alyssa's DHEA levels checked when her

bone age started advancing past her chronological age 6 months ago. Dr. H

ordered them. They did reveal high levels, much higher than they should be

and therefore indicative of early adrenarche. We are supposed to get

another bone age this month, and if it is still advancing Dr. H wants to

start her on an aromatase inhibitor, like Arimidex. This should prohibit

her bone age from advancing further and thereby allow more time for growth.

Dayna, Mom to Alyssa, 46mo RSS and Lauryn 11mo.

_____

From: RSS-Support [mailto:RSS-Support ] On

Behalf Of

Sent: Friday, September 16, 2005 8:19 PM

To: RSS-Support

Subject: Bone age - very unusual

WE saw Emerence's endo last week and she called me today after she

read a bone age xtray we took in May.

At age 15 months last year her hand read at 9-12 months

At age 27 months her hand read at 2y2m - 2y3m

So she is caught up (help her - s hould she have caught up in a

year?!) BUT in the row of bones across the palm one is completely

not ossified/developed and is very delayed for bone age. I forgot

to ask which one (duh - panic brain set in) and neither she nor

the specialist she asked to read it had ever seen or heard of

anything like it.

She was calling me from a different satellite office and will follow

up with the top specialists in bone age/structure at Children's next

week. She was wondering if any other RSS kids had this funky

feature or if it was a marker for a totally different syndrome?

And she now is totally okay with GH (she was not opposed she just

wanted to give me time to think through the options) so now I wonder

if the bone age triggered something??

, mom to 5 and Emerence 2.5 22lb 32 "

[Guest guest]

I remembered all this from the convention but wasnt' sure if this

was considererd a big jump. Thanks!

, mom to 5 and Emerence 31 mo 22 lb 32 "

> ,

>

>

>

> Alyssa's bone age did the same kind of jump. The main thing is to

keep her

> bone age closely monitored. Often, an advancing bone age can be

correlated

> to early adrenarche. We learned at the convention this year how

that truly

> affects our children's growth. We had Alyssa's DHEA levels

checked when her

> bone age started advancing past her chronological age 6 months

ago. Dr. H

> ordered them. They did reveal high levels, much higher than they

should be

> and therefore indicative of early adrenarche. We are supposed to

get

> another bone age this month, and if it is still advancing Dr. H

wants to

> start her on an aromatase inhibitor, like Arimidex. This should

prohibit

> her bone age from advancing further and thereby allow more time

for growth.

>

>

>

>

> Dayna, Mom to Alyssa, 46mo RSS and Lauryn 11mo.

>

> _____

>

> From: RSS-Support [mailto:RSS-

Support ] On

> Behalf Of

> Sent: Friday, September 16, 2005 8:19 PM

> To: RSS-Support

> Subject: Bone age - very unusual

>

>

>

> WE saw Emerence's endo last week and she called me today after she

> read a bone age xtray we took in May.

>

> At age 15 months last year her hand read at 9-12 months

> At age 27 months her hand read at 2y2m - 2y3m

>

> So she is caught up (help her - s hould she have caught up in a

> year?!) BUT in the row of bones across the palm one is completely

> not ossified/developed and is very delayed for bone age. I forgot

> to ask which one (duh - panic brain set in) and neither she nor

> the specialist she asked to read it had ever seen or heard of

> anything like it.

>

> She was calling me from a different satellite office and will

follow

> up with the top specialists in bone age/structure at Children's

next

> week. She was wondering if any other RSS kids had this funky

> feature or if it was a marker for a totally different syndrome?

>

> And she now is totally okay with GH (she was not opposed she just

> wanted to give me time to think through the options) so now I

wonder

> if the bone age triggered something??

>

> , mom to 5 and Emerence 2.5 22lb 32 "

>

>

>

>

>

>

>