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Hi ,

Thanks for understanding. I had to let it go, and say whatever

happens...happens. I have to sleep, work, and function on high mode each day.

I can't let this get to me. I wish you Godspeed in your efforts to schedule.

When did you say you were hoping for? As the time gets closer, I am feeling

a little uneasy. Maybe its just the stress of it all. Getting a life

insurance policy, a will, etc. If something happened to me the most important

thing is that my children be taken care of. But at the same time I am doing

this so that I will be around for my children. Yes, maybe we will be november

8th littermates.!!!!!!!!

Sincerely,

Debbie L

Colorado pre-op

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---Yes I was hoping for nov.8th but I really, really doubt it.I feel

the same way, this is the hardest part, waiting, I feel like I'm in

limbo right now.I know I should be thankful I not waiting on ins. or

something but I guess you get to this point you want a dance date!!

And now,I'm trying to put it to the back of my mind & tell myself,

just a little loger till I can start my life.My birthday is saturday

& this is the only present I need!!! lol.

In MiniGastricBypass (AT) egroups (DOT) com, dkjlawson@a... wrote:

> Hi ,

> Thanks for understanding. I had to let it go, and say whatever

> happens...happens. I have to sleep, work, and function on high mode

each day.

> I can't let this get to me. I wish you Godspeed in your efforts to

schedule.

> When did you say you were hoping for? As the time gets closer, I

am feeling

> a little uneasy. Maybe its just the stress of it all. Getting a

life

> insurance policy, a will, etc. If something happened to me the most

important

> thing is that my children be taken care of. But at the same time I

am doing

> this so that I will be around for my children. Yes, maybe we will

be november

> 8th littermates.!!!!!!!!

> Sincerely,

> Debbie L

> Colorado pre-op

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H A P P Y B I R T H D A Y on Saturday, !! See, I've found another Libra!!

Hope you get your present!!

Trud10/03/47 (birthdate)

Re: To

---Yes I was hoping for nov.8th but I really, really doubt it.I feel

the same way, this is the hardest part, waiting, I feel like I'm in

limbo right now.I know I should be thankful I not waiting on ins. or

something but I guess you get to this point you want a dance date!!

And now,I'm trying to put it to the back of my mind & tell myself,

just a little loger till I can start my life.My birthday is saturday

& this is the only present I need!!! lol.

In MiniGastricBypass (AT) egroups (DOT) com, dkjlawson@a... wrote:

> Hi ,

> Thanks for understanding. I had to let it go, and say whatever

> happens...happens. I have to sleep, work, and function on high mode

each day.

> I can't let this get to me. I wish you Godspeed in your efforts to

schedule.

> When did you say you were hoping for? As the time gets closer, I

am feeling

> a little uneasy. Maybe its just the stress of it all. Getting a

life

> insurance policy, a will, etc. If something happened to me the most

important

> thing is that my children be taken care of. But at the same time I

am doing

> this so that I will be around for my children. Yes, maybe we will

be november

> 8th littermates.!!!!!!!!

> Sincerely,

> Debbie L

> Colorado pre-op

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Hi All:

It's time for another support group meeting. November 18th is the date and we'll

meet at a restaurant in Waldorf, land right on Route 301. I'm hoping to get

us a private room. I hear there's one at Olive Gardens..so we'll see. But in any

case, we'll shoot for that day at about 4 p.m. I'm making it early for those

who are coming a long distance. I will need to get a head count for the

restaurant but not yet...I'll let you know when I need the head count.

So...put November 18 on your calendar and we'll get together then.

go to www.mapquest.com to see where Waldorf is. It's about an hour from Richmond

and about 25 minutes from Washington, DC. Very central, lots closer for most of

the folks who came to my house.

For further info please contact me at florence@... or

AmyP@...

Any of you NC guys want to come up? Good time to sightsee in DC..cool,

uncrowded, lots to see.

Flo in land

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Happy Birthday to you Happy Birthaday to you. It's a little early but

that is OK. Pre-op waiting in IL , Amy

On Tue, 17 Oct 2000 10:57:32 -0000 " " writes:

> ---Yes I was hoping for nov.8th but I really, really doubt it.I feel

> the same way, this is the hardest part, waiting, I feel like I'm in

> limbo right now.I know I should be thankful I not waiting on ins. or

>

> something but I guess you get to this point you want a dance date!!

> And now,I'm trying to put it to the back of my mind & tell myself,

> just a little loger till I can start my life.My birthday is saturday

>

> & this is the only present I need!!! lol.

>

>

> In MiniGastricBypass (AT) egroups (DOT) com, dkjlawson@a... wrote:

> > Hi ,

> > Thanks for understanding. I had to let it go, and say whatever

> > happens...happens. I have to sleep, work, and function on high

> mode

> each day.

> > I can't let this get to me. I wish you Godspeed in your efforts to

>

> schedule.

> > When did you say you were hoping for? As the time gets closer, I

> am feeling

> > a little uneasy. Maybe its just the stress of it all. Getting a

> life

> > insurance policy, a will, etc. If something happened to me the

> most

> important

> > thing is that my children be taken care of. But at the same time I

>

> am doing

> > this so that I will be around for my children. Yes, maybe we will

> be november

> > 8th littermates.!!!!!!!!

> > Sincerely,

> > Debbie L

> > Colorado pre-op

>

>

>

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  • 3 weeks later...

In a message dated 11/3/00 9:44:09 PM Eastern Standard Time, SFRYE@...

writes:

<< How long were you in ?? >>

Hi , I was @ from 6:45 am on Thursday until 7:30 am on Friday.

Ruqayya

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Hi ,

Thanks so much for thinking of me, it really means alot. And trust me, I

wasn't just putting up w/ that treatment w/out a fight. And the good news is

Dr. R. moved me out of there this morning, down to " his wing " , where all of

his patients are treated appropriately.

Peace and love,

Ruqayya

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hi Jenn,

Glad to see you made it home safely. Congratulations on the weight loss.

You go Gurl!!!

Gwen in Durham

In a message dated 11/9/2000 4:14:55 PM Eastern Standard Time,

ChoctawGal@... writes:

<< 'm back in Vancouver, WA, now and doing fantasticly. The plane trip was a

bit trying... I guess I had some *ahem* gas in my system, and when we went

up in altitude it expanded. OUCH!!! I remember being concerned about

altitude related gas expansion when I used to do NICU (premature babies)

medical air transports.... but never though about it concerning myself.

LMAO

>>

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  • 1 year later...

In a message dated 12/14/01 5:49:43 PM, duodenalswitch writes:

<<

Speaking of the strawberry Isopure shakes, how are they? I'm curious. I

just bought some protein shakes from Bally's gym, which I recently joined.

They are actually pretty good, and they have 40 grams per shake. The problem

is that there is no WAY you can possibly finish one in one sitting. That's

not a problem though because I can just refrigerate the leftover part and

have it later.>>>>>

Hi, Pam: I really like the strawberry ISOPURE. It is really light and

easily mixed with water (only need a fork). The other shakes I've tried are

really quiet filling. This is refreshingly light. I started drinking it in

the summer and have ever since! :) I got the powders but I hear there are

pre-made shakes (someone posted a link for them on the list!).

I always divide the powder pack in two (no matter what powder it is) --

otherwise the shakes are just too thick. I don't know if we'd absorb any

more protein whether it's 1/2 packet at 25 gms (+ if made with milk) or one

whole package at 45-50 gms...

<<<<<The point is that I am looking for other pleasant tasting shakes so that

I

don't get bored with this kind. I've heard other people mention Isopure on

here, but I can't remember what was said about them.

Looking forward to your response. (meanwhile, I'm trying to figure out what

other uses those watermelon gushers may have!! LOL!!!)>>

I already have a naughty idea and it's something I've tried with jelly beans

and candy canes (just last night! My DH sure liked that - things are

looking up in that department! ROFL)... hmmmmmm.... If anyone is wondering

what I'm referring to, privately e-mail Steve -- I'm sure he's caught on and

can give an explanation without blushing (I think I might blush ROFL)....

:):)

All the best,

lap ds with gallbladder removal

January 25, 2001

10 months post-op and still feelin fabu

preop: 307 lbs/bmi 45

now: 198 lbs/bmi 28/size sweet 16 but squeezin' into a 14! :)

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  • 2 years later...

,

My pain is worse at night a lot of times. I am also much more likely to have an

attack late at night. My GI doc increased my pancrease to 3 with every meal and

snack and I think that is helping. I've gone a month without being in the

hospital and it's been a while since I've gone that long.

W

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-

I was reading your post back to ...I can't believe it! I too

have had attacks when hungry, those usually hit me around supper

time. It also seems that the hunger exasperates the spasms. I told

this to my Doctor once, and he just shook his head. I am relieved to

hear someone else say that hunger seems to bring on an attack. I

haven't completely lost my marbles...yet!!! :-)

And I completely agree that the pain is at its worst at night. I can

sleep till about 2 AM, then I awake to pain (lots of times I have

dreams I am being stabbed or in labor) and I am up fighting the

nausea and the pain till morning. I haven't slept through the night

in years!

Thanks for sharing!

Hugs,

Suzi

Colorado

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  • 2 weeks later...

,

I do still have my SOD but I still have the problems you speak of. My

jeans can be fine one moment and then WAY TO TIGHT the next. The elastic

from my panties can even be too tight, as well as my bra. I do not have

a problem with cold drinks as that actually makes my pancreas feel

better. I was told by the specialist in SF that once cut the SOD need

never be cut again...but have learned through this board that many

people have had theirs cut more than once and now I read that you say

yours is gone completely.

I love this board! I learn so much from all of you people than I ever

have from any doctor!

Sandy in Ca

dcward108 wrote:

>All of these symptoms I still get, even though I don't have a

>Sphincter of Oddi any more according to my GI. I can't drink cold

>drinks, have problems with carbonated drinks, too tight jeans or

>elastic, if my stomach feels etc, and also the bra causes pressure.

>

>I have told me GI about this and I don't believe I ever got an

>answer from him. I do know he looked incredulous that any of this

>could be happening.

>

>But I knew it wasn't in my mind and now that others have the same

>thing, makes it positive that i'm not abnormal *L*

>

>

>

>

>

>

>

>

>

>

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Well today was terrible for nausea, even the zofran didn't work. I

take the Zofran ODT 8mgs. It disolves on your tounge. It usually

stop it cold, even if I'm to the point of throwing up. I wonder if

the injectable stuff will work? Are yours tablets or the disolving

kind?

Hope you a great day

>

> -

> I have no idea how expensive injectable Zofran is, my insurance

> covered it all but the $20 co-pay. I do know that the pharmacy

had

> to order in the Zofran though. I actually got it because I was

going

> to my Grandmothers funeral and I had just gotten out of the

hospital

> after a terrible attack where I even coded in X-Ray, so I was

feeling

> really rough, but felt I needed to go to the funeral (which was

> across the country) Thank goodness for it, it did help! I do

agree

> with others though, Zofran doesn't work too well if you are

already

> ready to throw up. I take the tablets frequently in the morning

> before I let it get too bad. Keeping on top of the nausea is

nearly

> half the battle with me, the pain is bad, but throw in bad nausea

and

> throwing up and I am nearly sunk!

> I hope you can get the Zofran injectable if you need it. Oh, I

got

> my injectable 'script from my PCP.

> Hugs,

> Suzi

> Colorado

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,

Regarding the genetic testing issue. My mom died from breast cancer and

my grandmother died from cancer including breast cancer. I understand I

could have genetic testing for breca 1 and brec 2 to see if I have the

gene that causes it. I am scared silly about this. What if I do the

test and they say I do have that gene. Then do I wonder all my life when

I will get breast cancer? Or maybe I have the gene but never get breast

cancer but sweat my whole life wondering when it will come?

Maybe not knowing is the way to go. I don't know what to do on this

issue. Sounds as if you made up your mind regarding testing quite

easily except for your daughter anyway. Was it that easy or did you

have a lot of soul searching before hand? I just did my mamo on monday

and am scared of the results seeing that my mom just passed away in

February. I was ok with doing it the last 4 years, but it all changed

this year.

I know that you were not speaking of breast cancer specifically, but

cancer is cancer. I am so scared I am going to die from it.

I don't know what to do about the genetic testing. Do I have it or

not? Good question.

Sandy in Ca

dcward108 wrote:

>,

>

>I don't have hereditary CP, but I do have another hereditary

>condition, Familial Adenomatous Polyposis, which is a Pre Colon

>Cancer condition.

>

>My sister had the genetic testing done for this some years back when

>she had her surgery for removal of most of her colon, as did us

>other 3 kids when we were younger. We didn't actually know that the

>doctor had used some of her blood during surgery to do this, but

>even if we had known, we would have allowed it. Unless of course my

>sister was asked but forgot, which is highly likely. Anyway....

>

>Personally, I am greatful that this has been done for us. I was able

>to bring the results with me and pass on to the medical staff

>necessary, and hope that one day this information might be useful in

>a cure or a better treatment to eradicate it, but for now it means

>that because the doctors know what to look for, we can have our

>children tested for this illness just by having some blood drawn.

>

>In my opinion, it doesn't matter how minor or major the illness, if

>it is possible to detect through genetic testing whether a loved one

>has it, can't hurt anyone.

>

>

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  • 1 month later...
  • 1 month later...

Darren,

What do you need to do to have this type of surgery?So many docotrs won't do

it unless your near death. I found out yesterday my Sugar is 113.I don't

have diabetes that I know of...

in Ga. from Ohio

, I asked my local doctor for a referral to Minneapolis. I was seeing

a gastro doctor down there (Dr. Marty Freeman of HCMC) and had many ERCP's,

MRCP's, Celiac blocks, stents, etc. and ran out of options to end the pain I

had. He then refered me to Dr. Sutherland at Fairview Medical Center and I

met with him. I could have had a partial pancreatectomy but I had disease on

both the head and the tail and I told him I didn't want to have major

surgery a second time. We both agreed that the TP/ICT would be best for me

and it really was. Dr.Sutherland told me that my body wouldn't last more

than 10-12 years taking all the narcotics I was on. My insurance took about

one month to approve. Some people aren't so lucky. If you push the issue a

person will get approved Dr. Sutherland said. He has never had a patient yet

to be turned down he said. (A squeeky wheel gets the grease he says!).

How have you been feeling? A blood sugar level of 113 is good news. You want

it to be in the 80-120 range before meals.

Darren

----------------------------------------------------------------------------

----

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  • 7 months later...

,

You are talking about Amy Nikol. She did a huge fundraiser for

Magic last spring. Come to think of it, she has not posted too much

lately. I'm glad that you have spoken to her and that your doctor

knows about RSS.

Dasia's weight for height is good, so you don't have to worry about

the g-tube. But do the cornstarch as you said you would and

periodically check for ketones. You may be surprised to find a

correlation between that and her moods. I believe you add a

tablespoon to the bottle at night. I don't remember.

The convention is always in Chicago around the third week of July.

It's like a huge family reunion, even if you've never been there

before! My son always feels as if it's the only place he can really

hang out and be himself.

Right now he is pretty sick with hiccups again. The doctor had me

drug him to put him to sleep and hopefully break the cycle. Sigh.

I'm pretty stressed myself right now.

Jodi Z

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- I used to live in the Wheaton/Glen Ellyn area. Where did

you say you were from?

- H

> ,

>

> You are talking about Amy Nikol. She did a huge fundraiser for

> Magic last spring. Come to think of it, she has not posted too

much

> lately. I'm glad that you have spoken to her and that your doctor

> knows about RSS.

>

> Dasia's weight for height is good, so you don't have to worry

about

> the g-tube. But do the cornstarch as you said you would and

> periodically check for ketones. You may be surprised to find a

> correlation between that and her moods. I believe you add a

> tablespoon to the bottle at night. I don't remember.

>

> The convention is always in Chicago around the third week of

July.

> It's like a huge family reunion, even if you've never been there

> before! My son always feels as if it's the only place he can

really

> hang out and be himself.

>

> Right now he is pretty sick with hiccups again. The doctor had me

> drug him to put him to sleep and hopefully break the cycle.

Sigh.

> I'm pretty stressed myself right now.

>

> Jodi Z

>

>

>

>

>

>

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  • 4 months later...

Jodi,

We'll miss you by one day, Jon has an appointment on the 1st of Feb.

We fly in on the 31st.

Pattie

>

> ,

>

> What time is your appt. with Dr. H. on the 31st? My husband will be

> there with Max. He has a 2pm appt. I really wanted to go, but I have

> my first class of the spring semester that night. I HATE missing his

> Dr. H. appointments!

>

> Jodi Z

>

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