Re: Pat or anyone getting in touch with dr h

[Guest guest]

,

I did email you back this morning, so you chould have an eamil from

me. I gave you her phone number incase the one you had was different.

You mentioned that someone said that Dr. H would work with your

doctors. That is true, but you need to see her before she can work

with your doctors. She would need to see you child and have the

information she needs in order to tell your doctors what her opinion is

and what she recommends. She can't work with them without having seen

Maddison. Is there any way you could just go for a visit and let her

get to know Maddison and figure out the best corse of action that needs

to be taken for her? I forget where you said you lived???? But, I

would recommend going at least once to see her. I know it is hard. It

is hard for me too, but I saw her once in NY two years ago and that is

when was diagnosed. Then, I saw her in Chicago during the

cConvention the next two years. But, I am getting ready to go back to

NY because will be starting GH soon and I don't trust any other

doctor on this but her. So, I may be having to make those every three

month trips, but that is my choice. I will email you again and give

you some thoughts and information on the NY trip.

Take care,

Jodi R.

's mommy

>

> Someone mentioned that Dr H sometimes will talk with or work with

your

> own doctors if you are not a patient of hers or if you live to far

> away. How do I get that going, who do I call? I would love to do this

> like yesterday.

> Thanks

> Tolbert

> Maddison 4yrs 24lbs 38 inches

>

[Guest guest]

i do know that if you become a patient of hers (say go to her 2x a

year) she is willing to work with your doctors.

jodie c

>

> Someone mentioned that Dr H sometimes will talk with or work with

your

> own doctors if you are not a patient of hers or if you live to far

> away. How do I get that going, who do I call? I would love to do this

> like yesterday.

> Thanks

> Tolbert

> Maddison 4yrs 24lbs 38 inches

>