Re: Re: Torticollis: head tilt has changed direction - why??

[Guest guest]

Thank you for your information...it is always good to connect with others

about similar issues and it's amazing what you find!

Do you have a good website or two you could recommend about the BPT?

Thanks,~, mom to seven

> Thanks for your post. I'm delighted you baby has stopped the head tilt.

> That's wonderful.

>

> My poppet has a few things in common:

> - the 'C' shape of her body, like an extension of the tilted head (this

> has now got much better)

> - the tilt switching sides is perplexing everyone, as she has no other

> symptoms of BPT (and no-one has heard of it as its very rare)

> - the gentle head manipulation by the specialist worked wonders.

>

> We have had to have a fair few sessions with the cranial osteopath, but

> she seems to enjoy it and likes the guy. Each session showed real

> improvement: the eyes evened out in size, and her cheeks balanced up (one

> was VERY full). Now her face is symmetrical and the ears are almost in

> line. There is a little more to do but we are getting there.

>

> I've also joined a Torticollis group who have advised me to see a

> neurologist, as it seems you do not need to have any other symptoms for

> BPT. So, if you are concerned, or your child has a relapse, you might

> want to look into this. There is also a BPT Group on Facebook which has

> been very helpful.

>

> Good luck for the future.

>

>

>

>>

>> I experienced the head tilt switching sides.

>>

>> This is a copy of my post back in Nov:

>>

>> " My daughter has recently been diagnosed with torticollis and when I

>> first

>> took her in she had left tort, within a few days of doing the stretching

>> it was center and then went right tort...the doc and PT looked at me

>> like

>> I was crazy and gave me exercises for the other side and now she's back

>> to

>> left tort...and more extreme than she was originally.  I am now taking

>> daily pictures and will be meeting with a PT that does CST.

>> Any input would be great!

>> "

>>

>> Interestingly, no one could offer any answers...not here in this group,

>> pediatricians, PT or even CST...some peds even suggested that I just got

>> mixed up as to which side it was!  I was even told that torticollis

>> CAN " T

>> change sides but the doctor didn't offer any other diagnosis.  To this

>> day

>> I still haven't received any new information, but I thought I'd share

>> what

>> we've experienced.

>>

>> Basically, our PT who does the CST said she would treat what ever she

>> saw

>> at each visit and I should do the same at home.  She was the first to

>> believe me about the side change  and it was finally documented, but

>> again

>> nothing different was diagnosed.  This is what I posted after a couple

>> of

>> visits to the CST:

>>

>> " We started CST about 3 weeks ago for our daughter who has torticollis

>> and

>> the kind of head-flattening where her head is narrow behind her

>> ears...she

>> has/had asymmetry with her ears, eyes(one smaller), and cheek as well as

>> with her tort her whole body curved in a " C " shape.  Even with the PT

>> she

>> was up and down...some days better than others.

>>

>> While my daughter was having her 1st CST session I watched her eye open

>> up, so that by the end of the session her eyes were almost symmetrical!

>> Also her tort was so much better that she was able to fully turn her

>> head

>> to each side...I started crying...she was 3 1/2 months old and hadn't

>> been

>> able to do that, yet!  Her nursing was better, she slept better and her

>> digestion was better!  Oh yea, my husband (who was skeptical)noticed

>> when

>> I got home that her head was widening in her narrow spots.  All this

>> after

>> one treatment!  She goes today for her third treatment and might not

>> need

>> anymore!  She is a different child all together! Even family and

>> friends

>> have noticed.  I can't say enough about this treatment.  You can check

>> out

>> this website to find a therapist:  www.upledger.com "

>>

>> After this post my daughter has continued to improve and I haven't seen

>> any head tilt since December!  I also feel her head shape is improved

>> and

>> within normal.  Although, her one eye is sometimes smaller and her one

>> cheek is sometimes fuller, but not usually even noticeable unless I

>> point

>> it out.  She sleeps much better and her general attitude is brighter.

>>  She

>> is 7 1/2 months old and has been able to rock back and forth on her

>> hands

>> and knees since about 5 1/2 months, but not crawling and has always

>> loved

>> being on her tummy.  She's working towards sitting on her own but

>> frequently kicks her leg out to the side and falls over...the leg goes

>> out

>> on the side of her head tilt(the original and final side).  The one

>> thing

>> I feel is still a concern for her is her bowel movements.  She is my

>> seventh child and I have breast fed all of them.  All of my children,

>> as

>> infants, pooped multiple times a day.  This daughter has been different

>> from the start; she regularly pooped once every 4-5 days!  I have read

>> and

>> been told that this is unrelated to the tort and is actually within the

>> range of normal for a baby her age, but I've raised six babies before

>> her

>> and never experienced it.  The other thing she was diagnosed with was

>> acid

>> reflux...again six babies and never had that either.  While I believe

>> the

>> acid reflux is gone, she does not poop daily; usually every 2-3 days.

>> Because of this I have chosen to start solids more slowly than I did

>> with

>> my other kids and she seems to be doing fine (no new symtoms, but no

>> improved BM frequency/consistency).  I continue the CST at home, for

>> her

>> digestion, and am hoping that this will improve with age.

>>

>> I know that all this info about the digestion wasn't what you were

>> asking

>> about but I'm curious if you've experience any of the same?  I did look

>> up

>> the BPT and my daughter didn't have anything like the " seizure " episodes

>> described, but I could relate to the " banana shape " one parent called

>> her

>> child's tilt.  My daughter's whole body was curved and she had a hard

>> time

>> latching on to nurse because of this shape which I feel was related to

>> her

>> acid reflux.

>>

>> I hope this helps!

>> ~, Mom to seven

>>

>>

>>

>> Does anyone have experience, or detailed knowledge on the head tilt

>> changing direction?

>>

>> Background:

>>

>> My 9 month old, has moderate torticollis (with mild plagiocephaly).

>>  She

>> has been treated with physical therapy since 3 months.  Periodically,

>> the

>> left tilt would correct itself but then relapse regularly (every couple

>> of

>> weeks - and marked).

>>

>> However, 2 months ago, her tilt switched sides, from the left to the

>> right.  It then improved to upright; relapsed to the original left side

>> (I

>> think after a growth spurt); went upright again (even during a 4 day

>> period when she has a very high temperature due to a cold); then

>> relapsed

>> again to the 'new' right side a day after her temperature dropped.  It

>> has

>> now settled on the 'new' right side.

>>

>> I'm perplexed as to how to treat her now.  Also why:

>> 1) it has switched sides - and currently seems to have settled on this

>> new

>> side

>> 2) why her relapses are so pronounced and relentless (I think more than

>> is

>> normal)

>> 3) why her head was upright during a time she was clearly very sick.

>> Normally I'd have expected it to cause a head tilt!

>>

>> I've looked up 'Benign Paroxysmal Torticollis' which describes the tilt

>> switching sides, but none of the other symptoms match her.  Also, from

>> birth she always rested her head in one direction when sleeping (despite

>> repositioning,) so I believed it was this (and possibly a forceps birth)

>> that had caused classic Torticollis.

>>

>> Your experiences would be welcome.

>>

>> (BTW - for those interested, her plagiocephaly was fortunately mild -

>> hence we did not go down the helmet route.  It was successfully

>> prevented/treated using: a) goi goi pillow which they use in Sweden up

>> until babies start rolling following that, she had a memory foam cot

>> mattress c) lots of tummy time and d) a cranial osteopath gently shaping

>> her head which was very effective.)

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>> ------------------------------------

>>

>> For more plagio info

[Guest guest]

Perfect! Thank you!

> Actually I've not found much on web sites as I guess it's so rare. There

> is a lot of good information though in the 'groups'. The

> Torticollis group was some help, but of huge help was the Face book:

> Benign Paroxysmal Torticollis Group. They have links off to reference

> materials and numerous sites. They would be a good starting point. Hope

> this helps.

>

>

>> >>

>> >> I experienced the head tilt switching sides.

>> >>

>> >> This is a copy of my post back in Nov:

>> >>

>> >> " My daughter has recently been diagnosed with torticollis and when I

>> >> first

>> >> took her in she had left tort, within a few days of doing the

>> stretching

>> >> it was center and then went right tort...the doc and PT looked at me

>> >> like

>> >> I was crazy and gave me exercises for the other side and now she's

>> back

>> >> to

>> >> left tort...and more extreme than she was originally.  I am now

>> taking

>> >> daily pictures and will be meeting with a PT that does CST.

>> >> Any input would be great!

>> >> "

>> >>

>> >> Interestingly, no one could offer any answers...not here in this

>> group,

>> >> pediatricians, PT or even CST...some peds even suggested that I just

>> got

>> >> mixed up as to which side it was!  I was even told that torticollis

>> >> CAN " T

>> >> change sides but the doctor didn't offer any other diagnosis.  To

>> this

>> >> day

>> >> I still haven't received any new information, but I thought I'd share

>> >> what

>> >> we've experienced.

>> >>

>> >> Basically, our PT who does the CST said she would treat what ever she

>> >> saw

>> >> at each visit and I should do the same at home.  She was the first

>> to

>> >> believe me about the side change  and it was finally documented, but

>> >> again

>> >> nothing different was diagnosed.  This is what I posted after a

>> couple

>> >> of

>> >> visits to the CST:

>> >>

>> >> " We started CST about 3 weeks ago for our daughter who has

>> torticollis

>> >> and

>> >> the kind of head-flattening where her head is narrow behind her

>> >> ears...she

>> >> has/had asymmetry with her ears, eyes(one smaller), and cheek as well

>> as

>> >> with her tort her whole body curved in a " C " shape.  Even with the

>> PT

>> >> she

>> >> was up and down...some days better than others.

>> >>

>> >> While my daughter was having her 1st CST session I watched her eye

>> open

>> >> up, so that by the end of the session her eyes were almost

>> symmetrical!

>> >> Also her tort was so much better that she was able to fully turn her

>> >> head

>> >> to each side...I started crying...she was 3 1/2 months old and hadn't

>> >> been

>> >> able to do that, yet!  Her nursing was better, she slept better and

>> her

>> >> digestion was better!  Oh yea, my husband (who was skeptical)noticed

>> >> when

>> >> I got home that her head was widening in her narrow spots.  All this

>> >> after

>> >> one treatment!  She goes today for her third treatment and might not

>> >> need

>> >> anymore!  She is a different child all together! Even family and

>> >> friends

>> >> have noticed.  I can't say enough about this treatment.  You can

>> check

>> >> out

>> >> this website to find a therapist:  www.upledger.com "

>> >>

>> >> After this post my daughter has continued to improve and I haven't

>> seen

>> >> any head tilt since December!  I also feel her head shape is

>> improved

>> >> and

>> >> within normal.  Although, her one eye is sometimes smaller and her

>> one

>> >> cheek is sometimes fuller, but not usually even noticeable unless I

>> >> point

>> >> it out.  She sleeps much better and her general attitude is

>> brighter.

>> >>  She

>> >> is 7 1/2 months old and has been able to rock back and forth on her

>> >> hands

>> >> and knees since about 5 1/2 months, but not crawling and has always

>> >> loved

>> >> being on her tummy.  She's working towards sitting on her own but

>> >> frequently kicks her leg out to the side and falls over...the leg

>> goes

>> >> out

>> >> on the side of her head tilt(the original and final side).  The one

>> >> thing

>> >> I feel is still a concern for her is her bowel movements.  She is my

>> >> seventh child and I have breast fed all of them.  All of my

>> children,

>> >> as

>> >> infants, pooped multiple times a day.  This daughter has been

>> different

>> >> from the start; she regularly pooped once every 4-5 days!  I have

>> read

>> >> and

>> >> been told that this is unrelated to the tort and is actually within

>> the

>> >> range of normal for a baby her age, but I've raised six babies before

>> >> her

>> >> and never experienced it.  The other thing she was diagnosed with

>> was

>> >> acid

>> >> reflux...again six babies and never had that either.  While I

>> believe

>> >> the

>> >> acid reflux is gone, she does not poop daily; usually every 2-3 days.

>> >> Because of this I have chosen to start solids more slowly than I did

>> >> with

>> >> my other kids and she seems to be doing fine (no new symtoms, but no

>> >> improved BM frequency/consistency).  I continue the CST at home, for

>> >> her

>> >> digestion, and am hoping that this will improve with age.

>> >>

>> >> I know that all this info about the digestion wasn't what you were

>> >> asking

>> >> about but I'm curious if you've experience any of the same?  I did

>> look

>> >> up

>> >> the BPT and my daughter didn't have anything like the " seizure "

>> episodes

>> >> described, but I could relate to the " banana shape " one parent called

>> >> her

>> >> child's tilt.  My daughter's whole body was curved and she had a

>> hard

>> >> time

>> >> latching on to nurse because of this shape which I feel was related

>> to

>> >> her

>> >> acid reflux.

>> >>

>> >> I hope this helps!

>> >> ~, Mom to seven

>> >>

>> >>

>> >>

>> >> Does anyone have experience, or detailed knowledge on the head tilt

>> >> changing direction?

>> >>

>> >> Background:

>> >>

>> >> My 9 month old, has moderate torticollis (with mild plagiocephaly).

>> >>  She

>> >> has been treated with physical therapy since 3 months.

>>  Periodically,

>> >> the

>> >> left tilt would correct itself but then relapse regularly (every

>> couple

>> >> of

>> >> weeks - and marked).

>> >>

>> >> However, 2 months ago, her tilt switched sides, from the left to the

>> >> right.  It then improved to upright; relapsed to the original left

>> side

>> >> (I

>> >> think after a growth spurt); went upright again (even during a 4 day

>> >> period when she has a very high temperature due to a cold); then

>> >> relapsed

>> >> again to the 'new' right side a day after her temperature dropped.

>>  It

>> >> has

>> >> now settled on the 'new' right side.

>> >>

>> >> I'm perplexed as to how to treat her now.  Also why:

>> >> 1) it has switched sides - and currently seems to have settled on

>> this

>> >> new

>> >> side

>> >> 2) why her relapses are so pronounced and relentless (I think more

>> than

>> >> is

>> >> normal)

>> >> 3) why her head was upright during a time she was clearly very sick.

>> >> Normally I'd have expected it to cause a head tilt!

>> >>

>> >> I've looked up 'Benign Paroxysmal Torticollis' which describes the

>> tilt

>> >> switching sides, but none of the other symptoms match her.  Also,

>> from

>> >> birth she always rested her head in one direction when sleeping

>> (despite

>> >> repositioning,) so I believed it was this (and possibly a forceps

>> birth)

>> >> that had caused classic Torticollis.

>> >>

>> >> Your experiences would be welcome.

>> >>

>> >> (BTW - for those interested, her plagiocephaly was fortunately mild -

>> >> hence we did not go down the helmet route.  It was successfully

>> >> prevented/treated using: a) goi goi pillow which they use in Sweden

>> up

>> >> until babies start rolling following that, she had a memory foam

>> cot

>> >> mattress c) lots of tummy time and d) a cranial osteopath gently

>> shaping

>> >> her head which was very effective.)

>> >>

>> >>

>> >>

>> >>

>> >>

>> >>

>> >>

>> >>

>> >>

>> >>

>> >> ------------------------------------

>> >>

>> >> For more plagio info