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Re: Digest Number 3094

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Hi ,

Congratulations on your pregnancy!

Our son (8-28-05) has bilateral clubfeet. We live in Crystal River in

Florida and went to Dr Woo in Gainesville for his treatment. He follows the

Ponseti method and we were very satisfied with him, his team, and the results.

1- is their number.

Regards,

Corina

________________________________

From: nosurgery4clubfoot

[mailto:nosurgery4clubfoot ]

Sent: Tue 5/9/2006 10:04 AM

To: nosurgery4clubfoot

Subject: Digest Number 3094

There are 13 messages in this issue.

Topics in this digest:

1. Re: New to forum - Anyone live in Tampa Bay area?(Long reply to Step

From: " " mj_remington@...

2. ROBIN!!!!!!!!

From: " frogabog " frogabog@...

3. Baby's here...more confused than ever!

From: " jennlinmcl39 " jennmcl39@...

4. Re: Northern Virginia: Markell Boots & Bar Vendors?

From: " trumpcard9999 " trumpcard@...

5. Re: New to forum - Anyone live in Tampa Bay area?

From: " number23 " number23@...

6. Re: Baby's here...more confused than ever!

From: " number23 " number23@...

7. Re: New to forum - Anyone live in Tampa Bay area?(Long reply to Step

From: " number23 " number23@...

8. Re: New to forum - Anyone live in Tampa Bay area?(Long reply to Step

From: " needing prayers " novemberfable@...

9. Re: Baby's here...more confused than ever!

From: " needing prayers " novemberfable@...

10. Re: Baby's here...more confused than ever!

From: " " mj_remington@...

11. Re: Baby's here...more confused than ever!

From: " Naomi " powellbugs@...

12. Re: Baby's here...more confused than ever!

From: " childrenloveall " cjjidaho@...

13. Re: posting pics

From: " childrenloveall " cjjidaho@...

________________________________________________________________________

________________________________________________________________________

Message 1

From: " " mj_remington@...

Date: Mon May 8, 2006 3:02pm(PDT)

Subject: Re: New to forum - Anyone live in Tampa Bay area?(Long reply to Step

Hi ,

Sorry to hear that you were told of your baby's club foot so harshly!

It's too bad that these doc's are so darned busy! Ours was the same,

in fact the nurses where Grace was born made a few cracks about him.

Basically saying that he was one of those busy OB's that didn't show

up until you were at least 8 cm's, collected his $1500 for the

delivery and was outta there haha, (I can laugh about it now) and

honestly, the nurses were so great that I really didn't care at the

time....I had more important things on my mind....mainly, GET THIS

BABY OUT lol! I was happy to have my OB though because he did an

awesome job stitching me up (I tore from Grace's shoulders, she has

these massive shoulders from her dad).

For me, I was pissed because we had 7 US's - one was even one of

those new ones in colour and 3D and they never picked up on her right

club foot. But anyway, this group is far better than any doc (that

isn't Ponseti) or Ped for advise for club foot I have found

personally anyway :)

I am glad to hear that you are feelin better about the whole thing!

Once you find a good Ponseti doctor and get things set up, you will

feel so so so much better!!! He/She will explain the whole process to

you etc.

Smiles,

& Grace

>

We did use Orthotic Solutions in Februrary, as that was recommended

by our dr. We did see them 3 times, once for measuring, once for

fitting, and a final follow-up fit the Markell shoes. We definately

found them to be professional and helpful.

Unfortunately, the Markell shoes did not work out for us in the end,

and we had to order s. We had to order these directly from

the website. I got the impression that Orthodic Solutions

were not as familar with this type, and what they were going to

charge us was 3x the manufactor's price. Considering that the shoes

are not covered (I'm still fighting for it) by my ins., $1100 is

quite a bit that they were asking for the mitchells. The Markells

are more reasonably priced. Good luck!

> My son, Declan, has bi-lateral clubfeet & he is being treated by

Dr.

> Herzenberg in Baltimore. He's currently in his 10th and final

cast (7

> regular, 1 semi-ridged & 2 post-tenonomy), so now we need to find

a

> place that sells the boots & bar. Dr. H gave us a listing of

vendors

> in VA, but I'm wondering if anyone has any experience with the

> following companies that are close to us:

>

> Public Shoe Store, Arlington

> Bradshaaw / Kids Clothes, Arlington

> Nascott Rehab Services, Fairfax

> Orthotic Solutions, Fairfax

>

> Thanks!

>

> Mom to Declan, born 2/16/06

>

________________________________________________________________________

________________________________________________________________________

Message 5

From: " number23 " number23@...

Date: Mon May 8, 2006 8:45pm(PDT)

Subject: Re: New to forum - Anyone live in Tampa Bay area?

Just doin' our job, Ma'am.

;)

ee

Mother of 3 Clubfooted Sons:

- Bilateral Club Feet April 1998

Everett - Bilateral Club Feet September 2003

Garrison - Bilateral Club Feet March 2006

-----

I haven't cried in days, but as I read all of your responses, I broke

down again. This time, though, it wasn't because of fear and sadness.

My tears came with a feeling of relief. Thank you all so much for

being here and responding.

---

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Guest guest

Corina,

Thank you so much for the information. I feel very lucky that I seem

to be surrounded by Doctors who use the Ponseti method of treatment.

There are supposedly two in Tampa, another person on this forum went

to a Dr in Orlando and now your Dr in Gainesville. I love having the

choices.

I'm very glad that things went well for your son. Did you know about

the CF before birth? If so, did you already have Dr. Woo lined up to

treat him?

> >

> We did use Orthotic Solutions in Februrary, as that was recommended

> by our dr. We did see them 3 times, once for measuring, once for

> fitting, and a final follow-up fit the Markell shoes. We definately

> found them to be professional and helpful.

>

> Unfortunately, the Markell shoes did not work out for us in the end,

> and we had to order s. We had to order these directly from

> the website. I got the impression that Orthodic Solutions

> were not as familar with this type, and what they were going to

> charge us was 3x the manufactor's price. Considering that the shoes

> are not covered (I'm still fighting for it) by my ins., $1100 is

> quite a bit that they were asking for the mitchells. The Markells

> are more reasonably priced. Good luck!

>

> > My son, Declan, has bi-lateral clubfeet & he is being treated by

> Dr.

> > Herzenberg in Baltimore. He's currently in his 10th and final

> cast (7

> > regular, 1 semi-ridged & 2 post-tenonomy), so now we need to find

> a

> > place that sells the boots & bar. Dr. H gave us a listing of

> vendors

> > in VA, but I'm wondering if anyone has any experience with the

> > following companies that are close to us:

> >

> > Public Shoe Store, Arlington

> > Bradshaaw / Kids Clothes, Arlington

> > Nascott Rehab Services, Fairfax

> > Orthotic Solutions, Fairfax

> >

> > Thanks!

> >

> > Mom to Declan, born 2/16/06

> >

>

>

>

>

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

> Message 5

> From: " number23 " number23@...

> Date: Mon May 8, 2006 8:45pm(PDT)

> Subject: Re: New to forum - Anyone live in Tampa Bay area?

>

> Just doin' our job, Ma'am.

>

> ;)

>

> ee

> Mother of 3 Clubfooted Sons:

> - Bilateral Club Feet April 1998

> Everett - Bilateral Club Feet September 2003

> Garrison - Bilateral Club Feet March 2006

> -----

> I haven't cried in days, but as I read all of your responses, I broke

> down again. This time, though, it wasn't because of fear and sadness.

> My tears came with a feeling of relief. Thank you all so much for

> being here and responding.

>

>

> ---

>

>

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