Guest guest Posted October 27, 1999 Report Share Posted October 27, 1999 hello deb got your pic nice looking couple you two are Cheryl & Randy West Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 1999 Report Share Posted October 27, 1999 Debbie You are also a beautiful women. Seeing everyones picture kind of breaks my heart. I guess its different when you just see a note and name of someone, but when you see the picture of the real person who is suffering its heartbreaking Thanks for sending it to us! Elena --- Debbie <debbie1m@...> wrote: > Hi All: > > Lori your picture came through perfectly : ) > Beautiful woman you are. I am attaching mine which > was taken in March of this year. > > Debbie > AIH > Michigan > > > ATTACHMENT part 2 image/gif name=Deb & Steve.gif <HR> <html> > ===== Elena AIH San Diego, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 1999 Report Share Posted October 28, 1999 Thanks , got the pic, it's a nice one!! Have a Good Day! Lori C. [ ] PICS >Hey everyone, > >Here is my pic at the Pride festival in Cleveland this summer. The dog is my >five year old Chow, named Bob. He is my baby and he is spoiled rotten!!! > >Peace and Love > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 1999 Report Share Posted October 29, 1999 Debbie, Does everyone tell you how great you look for someone with a chronic disease? Nice photo. Hope you are doing as well as you look. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 1999 Report Share Posted October 29, 1999 Hi , Great smile, terrific " baby " . How come all of you look so vital? Whatever you're taking, I'm not getting my share! Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 1999 Report Share Posted October 29, 1999 Hi Geri: I wish I felt as good as I looked LOL. I do get compliments tho and yes people can't believe I have a chronic illness. I missed being listed for transplant by one point on the 7 point system. The only thing that is holding them back at this point from listing me is the fact that my LFT's are not abnormally high. My GI and the transplant team advised me that it would only take a slight move upward in my LFT's for them to list me. I have not been feeling so great lately and I am sure that I am having a hep flare up. I see my GI next Wednesday. Anyway, I guess we all get better looking with age don't we. : ) I am thankful that I've made it to 38 and look forward to many, many more years. I guess it is my positive attitude that keeps me going. I cheated death once when I had my massive variceal bleed in 1994 and I don't plan on going anywhere just yet. I fought too hard to make it to where I am now. Thank you for your kind words : ) Debbie AIH Michigan Re: [ ] Pics >From: Geri Spang <spangs@...> > >Debbie, >Does everyone tell you how great you look for someone with a chronic >disease? Nice photo. Hope you are doing as well as you look. >Take care, >Geri > >>Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 1999 Report Share Posted October 29, 1999 Debbie, You're lucky that you continue to look so good even though you probably have to deal with people who have a hard time believing you aren't in raging good health. At least you can retain your self esteem. How did you avoid the Prednisone Puff? My LFTs are also very good, comparatively speaking. They were high enough for the first months after biopsy and diagnosis, but when they dropped I earned the " remission " designation. I would be so happy to be where I am now if I didn't have to keep battling the medication side effects. Hopefully they won't amount to anything worth worrying about (though osteoporosis worries me a lot). I can deal with discomfort and pain as long as nothing major is going wrong. In fact, you can get used to pain so you hardly notice it. I have a friend who has multiple myeloma. They've replaced many bones and joints in his body (he lives in Italy and Italian medicine can be different than it is here) and he calls himself the " bionic man " because he sets off airport alarms every time he passes through a security checkpoint. He realizes that his prognosis is very poor (maybe 1 to 3 more years) and every day for him is incredibly painful. But, he has a family to support and he travels half of every year, all over the world, to some of the most remote 3rd.world countries because that's what he must do. He says that pain is the least of his concerns. Boy, do I admire him! My own problems seem so trivial by comparison. I'm sorry for not paying better attention, but when were you first diagnosed? Is this your first flareup or have you had multiple? Are you taking Prednisone and Imuran? Living with fear of a relapse is like living under a roof that's about to collapse. I'd like to believe that my liver has done what it's going to do and that there will never be a flareup in my future. My docs seem to believe that as long as I continue on the drugs, it won't happen to me. I think it's because of my exceptionally good response to treatment. I hope they're right. The fact that you look so good and so young is nature's way of compensating. Almost like handing out little treats for being such good sports. I've noticed that many if not all of the liver disease people are more vital by nature and good looking people in general. Most of us battle Prednisone induced weight but that's just a superficial irritation even if it does bring us so much grief. I hope you aren't having a flareup. Keep us posted about what's going on. Are you still working? Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 1999 Report Share Posted October 29, 1999 Hi Geri: First off, no I am not working. I was forced into retirement after my bleed in 1994. I am collecting SSD. Secondly, I was diagnosed in 1985 .. but I remember having symptoms of AIH as far back as 1980. Believe me, I have had my share of the prednisone puff LOL. I try to maintain my weight by walking as much as possible (when I am not sleeping that is). I started out by taking prednisone only in 1985 along with lasix and a potassium supplement. I was weaned down to 5 mg. I had my bleed in 1994 due to the fact that I was pregnant and unfortunately lost my daughter at 9 mos when I went in to deliver. Anyway, that was in October of 1994. In January of 1995 my LFT's started to skyrocket. I was evaluted for transplant at that time. The doctors then decided to try me on a regimen of prednisone along with imuran. That seemed to do the trick. I now take 10 mg of prednisone, 50 mg of imuran, 40 mg of lasix, lactulose and fosamax (which is calcium due to the fact that I now have severe bone loss from so many years of being on the prednisone). I have had multiple flare ups throughout the years. I know my body better than any of my doctors and know exactly when one is occurring. I guess having AIH for so many years will do that to a person. I am at the point now where the only thing that is keeping me alive are my meds, however, due to the strict rules and regs of the government and the hospital, they cannot list me until I meet all of the criteria. Right now I am extremely exhausted (a major sign of a flare up) and have increased ascites, nauseousness, diarreah, blah blah blah .. and the list goes on LOL. I guess it's just become a part of my life now .. a way of life for me. I really don't know anything other than AIH. I remember how good I felt as a teen though. But living with AIH for almost 20 years out of 38 makes you feel sometimes that enough is enough. Sure sometimes it is very hard to " keep my chin up " . But I never have been a quitter .. I have too much to live for. I know it will only be a matter of time before I am listed .. and if I know me .. I bet I will get listed next week. I'm keeping my fingers crossed. Debbie AIH Michigan Re: [ ] Pics >From: Geri Spang <spangs@...> > >Debbie, >You're lucky that you continue to look so good even though you probably >have to deal with people who have a hard time believing you aren't in >raging good health. At least you can retain your self esteem. How did you >avoid the Prednisone Puff? > >My LFTs are also very good, comparatively speaking. They were high enough >for the first months after biopsy and diagnosis, but when they dropped I >earned the " remission " designation. I would be so happy to be where I am >now if I didn't have to keep battling the medication side >effects. Hopefully they won't amount to anything worth worrying about >(though osteoporosis worries me a lot). I can deal with discomfort and >pain as long as nothing major is going wrong. In fact, you can get used to >pain so you hardly notice it. I have a friend who has multiple >myeloma. They've replaced many bones and joints in his body (he lives in >Italy and Italian medicine can be different than it is here) and he calls >himself the " bionic man " because he sets off airport alarms every time he >passes through a security checkpoint. He realizes that his prognosis is >very poor (maybe 1 to 3 more years) and every day for him is incredibly >painful. But, he has a family to support and he travels half of every >year, all over the world, to some of the most remote 3rd.world countries >because that's what he must do. He says that pain is the least of his >concerns. Boy, do I admire him! My own problems seem so trivial by >comparison. > >I'm sorry for not paying better attention, but when were you first >diagnosed? Is this your first flareup or have you had multiple? Are you >taking Prednisone and Imuran? Living with fear of a relapse is like living >under a roof that's about to collapse. I'd like to believe that my liver >has done what it's going to do and that there will never be a flareup in my >future. My docs seem to believe that as long as I continue on the drugs, >it won't happen to me. I think it's because of my exceptionally good >response to treatment. I hope they're right. > >The fact that you look so good and so young is nature's way of >compensating. Almost like handing out little treats for being such good >sports. I've noticed that many if not all of the liver disease people are >more vital by nature and good looking people in general. Most of us battle >Prednisone induced weight but that's just a superficial irritation even if >it does bring us so much grief. > >I hope you aren't having a flareup. Keep us posted about what's going >on. Are you still working? >Take care, >Geri > >>Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 1999 Report Share Posted October 29, 1999 Lord, Debbie, you have really been through it all. I'm sitting here with tears in my eyes and I'm not a weepy person. It's so DAMNED unfair. I know, things could be worse. I think about that, but I also think about the fact that each of us live only our own lives, not the lives of people who are worse or better off. We can only " feel " within our own existence. I had an aunt who had " everything " . A husband who adored her, a comfortable income, financial stability and comfort so she could have anything she wanted, yet she was always deeply depressed. In a more romantic era, it would have been called Meloncholy. Many had no patience with her depression, but I understood that it didn't help her to know that others didn't have the privileges she enjoyed. She only knew her own private misery. We have no right to demean someone else's unhappiness because they aren't suffering up to some unmeasured standard. To go undiagnosed, untreated and to even lose a baby over the years because of this insidious disease must have put a mark on you. I think that in your case it made you stronger. But that's a helluva way to become strong! I think that many of us have been sick for years but this is an elusive condition. We look healthy. Many of us even look terrific. It makes me angry to think about the failed diagnosis we've all experienced, the patronization, the impatience from those who could have helped us but who instead chose to believe that we were simply (irritatingly) neurotic. I can't complain that no one ever tried to figure out what my problem was, but it was scattershot medicine. Test for this, test for that, no conclusions. When an insightful specialist finally figured out that something was going seriously awry, it was during the only time I was on an HMO and my primary decided that my symptoms didn't merit further investigation. I don't know if he spared me a few years of anxiety or cost me a few years of my life. Too late to do anything about it anyhow. But you've been cheated out of your potential for a career, had a child stolen from you and you now must wait for your body to cause the right buttons to be pushed before you can perhaps be given the opportunity to go on with your life. When I was your age I was at the peak of my career (though I was already having early AIH symptoms and no one realized it.) Those were some of the most vital years of my life. You are far too young to be relegated to a status of " disabled. " Don't let that bone density problem get out of control. I hear that Fosomax is great, but does it restore bone density or just stop depletion? I couldn't take it so I'm taking Evista instead. Evista was recently approved for actual restoration of bone density and I'm counting on it to keep me from becoming crippled. If it's not too late. If Prednisone hasn't already done irreversible damage. I hope that Fosomax does the same thing (restores density.) I was actually on the list and taken off because of my labs, just like you. As long as my labs are good, I'm going to remain in limbo. I've been having nausea (mild) and bouts of diarrhea (not constant) recently, as well as fatigue and a bit of dizziness. I've decided to blame the flu shot I had last Monday. When you're listed, do you have any idea how long the wait will be for you? If you aren't " critical " , couldn't it be up to a couple of years? And then, would you go back off the list like I did, once you're labs stabilize and remain stable for awhile? It's a rough system but it's all we have, and not so many years ago, they couldn't even do liver transplants. There's one blessing and we need all we can get. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 Terry they are precious and you have every right to be proud... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 Good morning all. I hope you don't mind me being a proud Grandfather. But I just wanted to share athis picture of my grandkids. Terry Note: forwarded message attached. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 How sweet and adorable...... and still a reasonable age. LOL [ ] Fwd: pics Good morning all. I hope you don't mind me being a proud Grandfather. But I just wanted to share athis picture of my grandkids. Terry Note: forwarded message attached. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 Well I can't see my 3 grandkids and I too have along wait HOPEFULLY!!..My next one to make me a granny is my 14 yr. old and she better wait a while..A LONG WHILE.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 Be proud! I'm afraid I have a long wait to be a grandpa, my son's only 12. I have a 30 year old stepson though, and I'm hoping he'll make me a step-grandpa soon!! (he and his girlfriend got married a few months after my wife and I) -dz- Terry Long <pawpawto3@...> wrote: Good morning all. I hope you don't mind me being a proud Grandfather. But I just wanted to share athis picture of my grandkids. Terry Note: forwarded message attached. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2002 Report Share Posted June 14, 2002 Thank you , I just wish they were a lot closer. 1400 miles make's it tough only talking on the phone & seeing them for a week once a year. Terry WILLIAM A WALTKE <kbwaltke@...> wrote: How sweet and adorable...... and still a reasonable age. LOL [ ] Fwd: pics Good morning all. I hope you don't mind me being a proud Grandfather. But I just wanted to share athis picture of my grandkids. Terry Note: forwarded message attached. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2002 Report Share Posted June 14, 2002 Susy & I joke that we should have skiped the kids & just had the grandkids. With the kids we worried over them growing up into well adjusted aduilts "we made that 1 out of 2" the daghter is still giving us head aches at 25. With the grandkids we just love & spoil them. Let Mom & Dad worry about them growing up into well adjusted aduilts Terry imaganeer <imaganeer@...> wrote: Be proud! I'm afraid I have a long wait to be a grandpa, my son's only 12. I have a 30 year old stepson though, and I'm hoping he'll make me a step-grandpa soon!! (he and his girlfriend got married a few months after my wife and I) -dz- Terry Long <pawpawto3@...> wrote: Good morning all. I hope you don't mind me being a proud Grandfather. But I just wanted to share athis picture of my grandkids. Terry Note: forwarded message attached. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2002 Report Share Posted June 14, 2002 1400 miles away is close enough as they trun preteen. HA karen [ ] Fwd: pics Good morning all. I hope you don't mind me being a proud Grandfather. But I just wanted to share athis picture of my grandkids. Terry Note: forwarded message attached. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2002 Report Share Posted June 14, 2002 Jan when our daughter was 17. we knew that she wouldn't wait. So we had norplant insertered in her arm. So she wouldn't make us grandparents to soon. When she turned 20 she had it taken out. When she had about a year latter. She only had him home less then one week & the state took him away from her. She wasn't feeding him durring the night. We had him with us for around 26 weeks & she still was unfit to care for him. Before she had we had taken on the job of caring for Susy's Mom & it was going to be to much caring for both of them. At the same time some friends of Susy's sister was wanting to adopt a boy & was more then willing for Susy & I to have contact with him "but not ". They had a daughter Abby. So Susy & I made her our adopted granddaughter & love them both the same. Before we talked into signing her rights over we talked her into having her tube tighed. We knew with her mental problems she would never be able to care for a baby. If I have any more grandkids it will be up to . His wife was going to have one last year but misscaraged at 16 weeks. Terry Jannewilms43@... wrote: Well I can't see my 3 grandkids and I too have along wait HOPEFULLY!!..My next one to make me a granny is my 14 yr. old and she better wait a while..A LONG WHILE.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2002 Report Share Posted June 14, 2002 Terry I think we should all just skip the kids and go straight to the grandkids too...LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2002 Report Share Posted June 14, 2002 There is merit in that plan Jan...... till they get to Pre teen then once again Choas ensues.... If I could just wire her mouth shut I lover her to death. Re: [ ] Fwd: pics Terry I think we should all just skip the kids and go straight to the grandkids too...LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2008 Report Share Posted December 13, 2008 Hi Melinda, It's great to put a face with a name! You look wonderful....I'm glad to see your pictures! > > I FINALLY posted my revision pictures (from July 07). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2008 Report Share Posted December 13, 2008 Melinda, Great photo album! I loved seeing the progression through the hospital. The picture of you the first day after surgery says a thousand words! I also love the pic of you and Alpine. Its fun looking back 18 motnhs and realizing how far you have come. I betyou will notice progress slows down...but honestly, every few monthsyou will still find yourself saying " Hey! I can do such 'n such now! " Thanks for sharing. Take Care, Cam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 And they are awesome! Thanks for doing that! Kathy > > I FINALLY posted my revision pictures (from July 07). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2010 Report Share Posted January 2, 2010 where do i upload a pic of my son to, so maybe be a front page baby? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2010 Report Share Posted May 28, 2010 Wonderful....YEA! [ ] pics Just posted a couple of pics of Tyra standing-- THANKSBILL Quote Link to comment Share on other sites More sharing options...
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