Update

[Guest guest]

Hi, everyone!

We came home yesterday from the hospital. It's been rough, but is such a

trooper. We stayed in ICU the whole week. Actually, they moved us to the

regular pediatric floor on Wednesday and when his ortho came a couple of hours

later and found out he had a FIT. He went off on the residents at ICU and the

intensivist, and back to ICU we went. It was so much better there. I was

actually very impressed that he fought for us that much. It meant a lot.

Besides, he still had his chest tube in and his back drain and the NG tube.

Sigh. No one ever wants to see their child with all those tubes and stuff, but

let me tell you, he handled it all like such a good boy. Even painwise, he was

on morphine the first two days, and after that he was on regular Tylenol. The

post-op gas pains have been worse than his surgery pains. Of course, now there

is the matter of the big bulky brace that he has to get used to. He's adjusting

to it pretty well. He can't really sit up straight in

it, though, so it may need some tweaking. It's also very hard to hold him and

to change his diaper. We had a messy little accident and it got dirty

yesterday. I just cant get his diaper on properly. It's hard to dress him,

too. Nothing fits OVER the brace. And he gets sooooo sweaty and hot underneath

the brace. Last night was also the first night he wore his FAB since Monday. I

have been watching his foot like a hawk. I was so nervous that it would start

relapsing, but I was trying to gently dorsiflex it and stretch it into position

while he was in the hospital, without annoying him too much. He will have trust

issues for a while. Anytime anyone would eve walk past his room, he would

scream and cry becasue he was scared that they were coming to do something else

to him. The way he kept his eye on all the nurses and docs....He would follow

them with his eyes until they were gone, to make sure they weren't coming for

him.

Anyway, I guess I should go prepare his meal. Thank you all for you prayers

and thoughts.

mommy to

__________________________________________________