New Member

[Guest guest]

Welcome to the family here on these great lists.We welcome you & look

forward to your post & your family happenings. So much info & knowledge

here. You'll love it.

LOVE & HUGS, grandmoMBEV

new member

Hi. My name is , and I have a 5 month old child that has a

totally different syndrome - Joubert Syndrome (JS). He had to have

an abdominal ultrasound to rule out some things with that syndrome,

and it turned out that we may be looking at a dual diagnosis of some

sort. The GI mentioned Cystic Fibrosis as a possibility. I'm a

member of a yahoo group for Joubert Sydrome - my 5 year old also has

JS, and I know that these groups of parents are the best resource

out there. So, I am turning to this group to ask some

questions...maybe you can shed some light on what we are seeing.

Basically, the head of his pancreas is small for age, and his spleen

was large for age. (He also had RSV, so this may account for the

spleen) He is a breast fed baby...yet his bowel movements are quite

stinky (the only time in his life they shouldn't be!) and they

aren't yellow and mustardy, they are a little mucousy and a little

dark. He has gas a lot, which is also quite stinky...again, not

really normal for a breast fed baby. He also seems to nurse a

little more frequently than he should at this point...every 2 1/2 -

3 hours instead of every 4 hours.

That's it...that's what prompted this doctor to say that CF is a

possibility. We are going to have the ultrasound redone to see if

the pancreas is still small, and if it is she said a sweat test and

a few other tests. He is off the charts...weighing 22 pounds at

only 5 months. Nothing strange came back in the bloodwork we've had

done so far. He doesn't seem to be in any pain (anymore...he used

to have bad pain with his gas, but then again MANY babies do!).

I guess my question is this...did any of you find out your child had

CF this way? Does this sound like CF to you? Do you think it might

be something different, or nothing really? My experience has been

that parents know more than doctors!

I appreciate your help! Thank you for reading, and sorry so long!

Tulumalo

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

[Guest guest]

I know this is a loaded question, but what was it that made you or

your doctors suspect CF in your children?

Thanks!

Tulumalo

[Guest guest]

,

My son was 13 months old before he was diagnosed with cf. His bowel

movements were dark but when I would wipe his bottom there would

always be some yellow on the wipe. This yellow stuff was the oil or

fat he was malabsorbing. If you are seeing any yellow in his stools

you might want to mention it to the doctor.

There could be other symptoms, but that was our experience.

Best of luck to you and your kids.

Sara

> Hi. My name is , and I have a 5 month old child that has a

> totally different syndrome - Joubert Syndrome (JS). He had to

have

> an abdominal ultrasound to rule out some things with that

syndrome,

> and it turned out that we may be looking at a dual diagnosis of

some

> sort. The GI mentioned Cystic Fibrosis as a possibility. I'm a

> member of a yahoo group for Joubert Sydrome - my 5 year old also

has

> JS, and I know that these groups of parents are the best resource

> out there. So, I am turning to this group to ask some

> questions...maybe you can shed some light on what we are seeing.

>

> Basically, the head of his pancreas is small for age, and his

spleen

> was large for age. (He also had RSV, so this may account for the

> spleen) He is a breast fed baby...yet his bowel movements are

quite

> stinky (the only time in his life they shouldn't be!) and they

> aren't yellow and mustardy, they are a little mucousy and a little

> dark. He has gas a lot, which is also quite stinky...again, not

> really normal for a breast fed baby. He also seems to nurse a

> little more frequently than he should at this point...every 2 1/2 -

> 3 hours instead of every 4 hours.

>

> That's it...that's what prompted this doctor to say that CF is a

> possibility. We are going to have the ultrasound redone to see if

> the pancreas is still small, and if it is she said a sweat test

and

> a few other tests. He is off the charts...weighing 22 pounds at

> only 5 months. Nothing strange came back in the bloodwork we've

had

> done so far. He doesn't seem to be in any pain (anymore...he used

> to have bad pain with his gas, but then again MANY babies do!).

>

> I guess my question is this...did any of you find out your child

had

> CF this way? Does this sound like CF to you? Do you think it

might

> be something different, or nothing really? My experience has been

> that parents know more than doctors!

>

> I appreciate your help! Thank you for reading, and sorry so long!

>

> Tulumalo

[Guest guest]

1) child: collapsed lung shortly after birth; 2) me, meconium ileus at

birth, followed by collapsed lung--given our family, we had little doubt,

nor did our doctors--I was born sometime before the Renaissance!

Love, n Rojas

Re: new member

I know this is a loaded question, but what was it that made you or

your doctors suspect CF in your children?

Thanks!

Tulumalo

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

------------------------------------------------------------------------------

[Guest guest]

Repeated lung infections, weight loss and the need to " rule it out " before being

seen by an allergy specialist is what led us to a sweat test at 9 months old.

mom of 5 with CF

Re: new member

I know this is a loaded question, but what was it that made you or

your doctors suspect CF in your children?

Thanks!

Tulumalo

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

------------------------------------------------------------------------------

[Guest guest]

My daughter was labeled " Failure to thrive " by the time she was about 6-8 weeks

old. At nearly 4 months she weighed a little under 8 lbs, but was consuming

about 40 oz of high calorie formula per day. So her new doc suggested the sweat

test, and here we are.

Katy

Mom to Austin 4 no CF & Piper 19 months w/CF

[Guest guest]

Welcome aboard, ! Thank you for joining us,

n Rojas, wcf, mom of 3 adults, one who also has cf

new member

I'm looking for Maggie Sheehan's mom.... If anyone knows her,

please let her know that I'm looking for her.

Thanks,

& Duke Reilly

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

------------------------------------------------------------------------------

[Guest guest]

Hi ,

First off welcome to our list. I don't know anything about the syndrome your

kids have. I always like to learn new things so is there a short explanation of

it? What made my daughters doctors suspect cf? Her pedi didn't. He thought she

had something wrong with her kidneys because she had an electrolyte imbalance.

He sent her to Childrens Hospital (of Orange County, CA). After hearing her

symptoms from me I don't think it took them long to suspect cf. She had a

cough, she had lost weight, she was salty (although I didn't realize what it

was), she had failure to thrive. Along with the electrolyte imbalance which I

found out later can be a presenting symptom of cf. She was there about 3 days

and they ordered a sweat test which was positive. The sweat test is very easy

and fast and most likely correct (in most cases). From reading about your baby

I doubt he has cf but it is possible. A sweat test when done properly is usually

diagnostic.

good luck,

M

mom of Nick age 21 nocf and age 20 wcf

[Guest guest]

Hi there.

I do know her, But haven't heard here in awhile. It is very busy time

for them-- Maggie is so active in projects & music at school . Her name

by the way is with a " K " erry :) & her email direct addy is

curecf52@... I hope that helps,I have her phone number but you can

call me at 1- to get that I don't know if she wants me to

put on the list.

LOVE & HUGS, GrandmoMBEV

Re: new member

Welcome aboard, ! Thank you for joining us,

n Rojas, wcf, mom of 3 adults, one who also has cf

new member

I'm looking for Maggie Sheehan's mom.... If anyone knows her,

please let her know that I'm looking for her.

Thanks,

& Duke Reilly

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

------------------------------------------------------------------------

------

[Guest guest]

Welcome ,

We know how you feel. Although it sounds like your baby has had a rough

beginning. Hopefully as she grows and gets stronger things will be easier for

her. I'm and I have 2 " kids " , my son Nick is almost 22 w/o cf and my

daughter is 20 w/cf. She is doing well. She was diagnosed at 8 months

and did not have as rough a start as your baby. Please write more any time and

vent. Please also tell us the good things. Also what is your baby's name? We

are happy to have you here but sorry for the reason. You will find many friends

here who understand more than your regular friends! Also where do you live?

love,

M

Orange Co. CA

[Guest guest]

,

Welcome. You are a young mother. I had my daughter when I was just

16, so I know how hard that can be. My daughter is now 27 and I

wouldn't change a thing.

I have a 2 year old grandaughter, Abigail, that has CF. It is heart

wrenching at first, but it really does get easier. Hang in there. I

am glad that you found this group.

Gale

> Hello to All,

>

> I am new to this group. I am 17 years old and the mother of a

> beautiful nine month old girl. She has been through so much all

ready

> it has been so hard to take. She had bowel obstruction right at

birth

> and with in two weeks she was diagnosed with CF. Then her liver

> functions became elevated and they thought it was her Cf makin her

> liver act up but went for a liver biospy and then was diagnosed

with

> a rare liver disease. After three and half months in the hospital

she

> came home. Since then it has been in and out of the hospital as she

> fights the battle with pseudomas twice. She is happy, sweet baby

with

> a smile always on her face you would never know to look at her that

> she ever had any difficulties. Though there are times when I feel

no

> one else really understands the pain I feel and fears I carry for

my

> baby girl. That is why I have come here. Just to hear from others

who

> understand.

>

>

[Guest guest]

You've come to the right place honey. While my kiddo with cf didn't have the

same complications as yours, I know your hurt and fear.

Welcome to the list.

Dawn mom of 4, 8 and under, the youngest wcf

[Guest guest]

Welcome! ! n Rojas

new member

Hello to All,

I am new to this group. I am 17 years old and the mother of a

beautiful nine month old girl. She has been through so much all ready

it has been so hard to take. She had bowel obstruction right at birth

and with in two weeks she was diagnosed with CF. Then her liver

functions became elevated and they thought it was her Cf makin her

liver act up but went for a liver biospy and then was diagnosed with

a rare liver disease. After three and half months in the hospital she

came home. Since then it has been in and out of the hospital as she

fights the battle with pseudomas twice. She is happy, sweet baby with

a smile always on her face you would never know to look at her that

she ever had any difficulties. Though there are times when I feel no

one else really understands the pain I feel and fears I carry for my

baby girl. That is why I have come here. Just to hear from others who

understand.

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Dear ,

I also have a 20 1/2 years old daughter, she was born with a blockage and

had surgery at 36 hours old. She had some rough years but has done fine

now. She is studying American Sign Language in College and is very active,

works in retail and volunteers with kids once a week. Talk to a lot of

people and read everything the more you know the better you'll be able to

handle this CF. Don't let it run your life you take control and you will do

fine.

Keep asking questions and reading and hugging her.

Have a good week,

judy (mom to 3, with CF and I have 3 beautiful grandchildren n/cf)

[Guest guest]

,

Welcome to the group. Sorry you need to be here but you won't find a better

place, anywhere. Here, you will find the most compassionate, understanding and

supportive people in the world. Throw in tons of knowledge and experience and

you have the people of this group. Feel free to vent or ask questions. I am not

a parent, but am aunt to a 10 yr old w/cf.

Love,

Jill

new member

Hello to All,

I am new to this group. I am 17 years old and the mother of a

beautiful nine month old girl. She has been through so much all ready

it has been so hard to take. She had bowel obstruction right at birth

and with in two weeks she was diagnosed with CF. Then her liver

functions became elevated and they thought it was her Cf makin her

liver act up but went for a liver biospy and then was diagnosed with

a rare liver disease. After three and half months in the hospital she

came home. Since then it has been in and out of the hospital as she

fights the battle with pseudomas twice. She is happy, sweet baby with

a smile always on her face you would never know to look at her that

she ever had any difficulties. Though there are times when I feel no

one else really understands the pain I feel and fears I carry for my

baby girl. That is why I have come here. Just to hear from others who

understand.

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Hi There and WELCOME.

You will love this groups & find many friends here. They are folks who

have " BEEN THERE, DONE THAT " .. So enjoy,,,,,,

I look forward to hearing from you as well

LOVE & HUGS, grandmomBEV

Welcome! ! n Rojas

new member

Hello to All,

I am new to this group. I am 17 years old and the mother of a

beautiful nine month old girl. She has been through so much all ready

it has been so hard to take. She had bowel obstruction right at birth

and with in two weeks she was diagnosed with CF. Then her liver

functions became elevated and they thought it was her Cf makin her

liver act up but went for a liver biospy and then was diagnosed with

a rare liver disease. After three and half months in the hospital she

came home. Since then it has been in and out of the hospital as she

fights the battle with pseudomas twice. She is happy, sweet baby with

a smile always on her face you would never know to look at her that

she ever had any difficulties. Though there are times when I feel no

one else really understands the pain I feel and fears I carry for my

baby girl. That is why I have come here. Just to hear from others who

understand.

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

[Guest guest]

Hi Janice,

Welcome.......I too have pancreas divisum and also started my

plight with this in May of 2000. We seem to be twins......

I think I may be able to answer some of your questions

concering the disease but I know nothing about food and stuff....I

am a veggie and rice and pasta only eater (with fruit and

chocolate and bread occasionally).

As far as the pancreatitis part....yes once you have chronic

pancreatitis, you always have it. There is no cure, just

management and even that is not too well done as many doctors

just don't know what to do. Mainly it is because the mechanism

of the damage is not known so they do not know how to stop it.

Mostly management is just trying to deal with the symptoms. You

use pain meds for the pain, anti-nause meds for the nausea,

surgery if and when needed, enzymes if appropriate, etc.....

Pancreas divisum, as you know, is not curable as it is a birth

defect. You always had it, you always will. They can stent the

dorsal pancreatic duct and / or cut the minor papilla to improve

pancreatic juice flow but that is with temporary stents and the

outcome of this treatment is not well known and is different for

every person. From what you wrote, your situation is not

necessarily treating the divisum but the biliary ducts. Stenting

there is different from stenting the pancreatic ducts as these

stents can be made permanent and more is known about the

outcome and problems associated with biliary blockage..

Pancreas ducts stents are not due to the corrosiveness of the

pancreas juice. It seems as if your diseased pancreas has

affected your bile duct, which is not that uncommon with some

forms of chronic pancreatitis. But, I think, though I could be

wrong...it is easier to treat and has a better chance of lasting

longer (?) than messing around with stenting a pancreas duct (I

could be really wrong here...it is just that the common bile duct is

bigger and easier to get at and image and mess with than the

pancreas ducts so I am speculating that the outcome may be

better......)

Anyways, I hope that you continue to do well since your stent and

that it takes a very long time, if ever, before it becomes blocked

again.! So the short answer is that CP and PD cannot be cured,

you will always have it. What I think he may have meant about it

coming back, is that the blockage could come back...which is a

result of the CP not a disease itself. Kinda like a blocked artery

from heart disease. They can unblock it, treat the disease so it

doesn't come back but in the end, the disease is still there and

the chance of becoming blocked is too. But as my surgeon

loves to say " we will cross that bridge when we come to it " .

Laurie

[Guest guest]

Chrissy,

Thanks so much! I am going to try and call Dr. Adam's office myself today

and see what the hold up is. My doc still has not gotten back to me yet and it

has been almost 3 weeks. Your comments and what I have read on here on some of

the stories about him make me feel really good about him.

I have been afraid of the pain meds but you make me feel much better about

it. I just need to be able to take something that I can still function. There

are times when it gets bad enough I need something to knock me out but I would

like to keep it under control without being a zombie! Any ideas on what I

should ask for?

Tnanks so much!

Angie in SC

[Guest guest]

Heidi,

Thanks so much for the info. I plan on taking all the info I can when I go

to MUSC. I am hoping to hear from them as soon as possible. My doc's office

" forgot " to fax my records for almost 3 weeks. I let them have it today and the

records should be there now. I intend to ask Dr. Adam's about the patches.

I live in Aiken, SC. I know where Bluffton is. It is really growing down

that way!!!!

I am so glad I found this group. I felt so alone! Thanks so much for sharing

your knowledge with me!

Angie in SC

[Guest guest]

Patty,

Thanks. I am not sure what I will do, I will take all things in

consideration and let the doc help me decide. I feel like the docs in ton

will do

alot more for me than my docs have been doing now. They don't know what to do

for the pain. It is very frustrating! I know you have all experienced the

feeling of them treating you like you are only coming to them for pain pills!

Angie in SC

[Guest guest]

Dear Angie,

The introduction of a pseudocyst with your chronic pancreatitis will cause you

to have more pain. Unfortunately, those nasty little buggers create types of

pain all on their own, above that you feel with the chronic pancreatitis. I've

been carrying around the same two pseudocysts for almost four years now.

Two years ago, my pancreas burned out and I became diabetic. The burn out

brought the expected cessation of pain, and I spent a fantastic month of pain-

free days, until the pseudocysts got inflamed and reared their ugly heads

again.

Because of them, I still need 24/7 pain medication. I've been using the

patches that you refer to, for the last three years. They are called Duragesic

patches, and they contain Fentanyl medication which is released

transdermally into the skin and bloodstream intermittently over a 72 hour

period of time. I have not experienced any untolerable side effects with them.

When I first started using them, there was a week or two of drowsiness that I

experienced, until I became accustomed to them. This is a common side

effect of many analgesics, and will pass as soon as your body adjusts to the

new medication. Some people have had difficulty wearing them because of

allergies to the adhesive that's used on side that adheres to your skin, with

itching that was so bothersome that they had to stop using them. To keep this

from bothering me, a nurse advised me to spray the area where the patch is

going to be applied with Benadryl Spray first, let it dry, and then apply the

patch. I've done this and never had a problem with itchiness at all. I have

tried all other kinds of narcotics; Oxycontin, Oxycontin IR, Morphine, Percocet,

Lortab, Hydrocodone, etc., and nothing has been as effective against my pain

as the Duragesic patch has been.

You need to understand that when a pain medication is used to treat chronic,

ongoing pain such as ours, it's very, very hard to become addicted to it. Only

if you were to abuse it, by taking excessive amounts to get " high " or enough to

completely knock you out all the time.......well, then you might find yourself

in

trouble. Yet when the medication is used to treat severe pain like ours is, all

it

does is subdue the pain enough so that you can function on a normal basis.

While it is true that after you've been taking analgesics for a long period of

time, your body builds up a physical dependence for the relief that the

medication brings, that dependence can be easily corrected with proper dose

managment.

An example of this is what I'm going through right now. I'd been using a 75

mg. patch for the last 12 months, and I've reached a point of wellness where I

don't feel that I need this much medication. Last month I asked my Pain

Mangement Doctor to let me try to see if I could get by with a reduced dose,

and I was able to drop down to a 50 mg. patch with no difficulty, and no

increased need for more breakthough medication. I plan to drop down to a 25

mg. patch next month, and if that's effective, start being weaned off the

medication entirely. An ideal end result would be that I would just use my

short acting medicine, Oxycodone, to treat the occasional pain episodes. It

may not be possible for me to do this because of the pain levels, but at least

now I'm using less than I was before.

If you were to use the patches, because of your high pain tolerance, I doubt

that you'd ever go above a 25 mg. patch. The doctors might not feel that this

is the best solution for you, due to your pain tolerance level. They may just

recommend a more effective short acting analgesic like Percocet 10, or

something similar to that.

I'd recommend that you see a Pain Mangement Doctor, who is experienced in

all the different medications and how they work, and let him work with you.

He could try a few different medications for trial period, see how they work,

and develop a medication plan that's suited to your individual needs and

requirements. That's what my PM doctor in Savannah did, and it really

worked out to be an effective solution.

BTW, Angie, where in our lovely state, are you? We have quite a handful of

SC members who would love to welcome you!

With love, hope and prayers,

Heidi

Heidi H. Griffeth

Bluffton, SC

South Carolina State Rep.

South Eastern Regional Rep., PAI

http://www.pancassociation.org/anthology#Heidi.html

Note: All comments or advice are from personal experiences or opinion only,

and should not be a substitute for consultation with your medical professional.

[Guest guest]

Don't worry about being addicted like the others said, if you have

pain, then the meds act differently than someone who just wants to

get " High " . The only thing that worries me is if my pain gets worse

over the years(I'm 37) the amount of meds will have to be increased

and if your taking alot now, how far can you go? I have been on

several meds like most here, been with pain for over 13 years with

CP, currently on Methadone 40 every 6 hours around the clock, started

with 80 same rate but reduced it slowely over time until its was

unbearable. Mine seems to change alot(the pain). At one point I

switched Dr.'s and went from diluid(sp?) to the patch, brace

yourself, 5 100mil patches, covered my whole front chest from chest

high up, or back side high,lol. Couldn't move without making weird

noises, also the sticky stuff is still on my leather chair and inside

of most of my shirts since with 5 patches, its hard to get the stuff

off. I didn't like them very much, at first the pain control was ok

since I think my body wasn't used to the new drug, but after 6 months

I asked to change since I like to be in control more, and if the pain

isn't that bad one day, I won't take as much meds, with the patch, it

was always the same. Next step my doctor wants is the pain pump, but

I think its the same as the patch for me, I like to have SOMETHING

under my control, am I crazy?

Mike

PS. I seem to always write a book when I reply,lol-Sorry...

[Guest guest]

Hi . Welcome to this group and good for you for looking more

into RSS on your own. I have a 3 year old son, who was

diagnosed with RSS at 17 months old. He had a good struggle on his

hands in the beginning as no one knew what was wrong with him, but we

saw the RSS expert in the US in New York and she totally changed his

life at that point. He was a different kids after following her

protocol. Anyway, is doing well now, and getting ready to start

GH. We have been so worried about him, but after talking with some of

the other RSS adults, we see that he is going to live and have a normal

life! ) I am so glad you found us and can't wait to hear more from

you!

Jodi R.

's mom

> Hello All~! My name is and I am a new member to this board.

I

> am an RSS adult (age 20 5'1 102#). I have been looking into RSS more

> on my own as I am getting older (rather than relying on my parents)

and

> found this board. Just wanted to tell everyone hi and I hope ya'all

> are having a great day!

>

>

> Southwest Missouri State University

[Guest guest]

Hi Welcome!!!! I am glad you found us.

New Member

Hello All~! My name is and I am a new member to this board. I

am an RSS adult (age 20 5'1 102#). I have been looking into RSS more

on my own as I am getting older (rather than relying on my parents)and

found this board. Just wanted to tell everyone hi and I hope ya'all

are having a great day!

Southwest Missouri State University

[Guest guest]

Hi

Amongst other problems I too have a narrow upper pallete and am to recieve upper

palletre expansion in 6 months- I had the expander years ago and not much help.

You will get a gap between your front teeth and theres already been a post about

that. Mine is said to be around 5 millimetres and its supposed to be closed back

up with braces within a couple of months. I am pretty freaked out about the gap

but i discovered that it can SORTOF be camouflaged with dental wax. But i mean

your gap may not be as big.. it all depends on the expansion. Recovery time for

this surgery I THINK is about a week.. but then again I am not entirely sure.

Hope this was helpful

M

rlpatr01 wrote:

Hey everyone! I just found out today that i have to have

orthognathic surgery. My upper palette is too narrow. We tried to

widen it with a palette expander, but to no avail. So, now I am in

the process of scheduling the surgery.

I was wondering if anyone has gone through this particular

surgery... I have no idea what to expect. How long is the recovery

time? Will I look different? etc etc

I orininally went to an orthodontist to get invisalign braces, and

foudn out that I had to have all of this other stuff done first.

So, basically, I do not really want to look different, and I am

really scared that I will. I am also a graduate student and am

really worried about missing alot of time from school for recovery.

If anyone has done this before and can help it would be much

appreciated. Also - I am not even sure of the name of my particular

surgery to try to get info off the web - so if you know that or any

good websites that would be great too. Searches including such key

words as " palette; expansion; oral surgery; narrow palette; " have

come up with nothing.

Thanks!