UK fundraiser for the Child Growth Foundation

[Guest guest]

Hello everyone,

It's been quite a while since I last posted - I am mum to , now

aged 3 and we live in the UK. is doing fine - the usual ups and

downs with weight gain/loss and recurrent chest infections, but on the

whole things are good. She's still gaining weight with the help of

Nutrini Hi-Energy milk and Duocal added to her food. We're lucky as

she enjoys a good variety of foos .. she just doesn't eat much at once

(but then you all know what that's like ...LOL). She's now 86cm

(33.8 " ) and weighs 22lbs 11oz, she was 3 in March.

I wanted to let you all know that we've been organising a fundraiser

for the Child Growth Foundation here in the UK, which has been such a

support to us since 's diagnosis, and I know work alongside MAGIC

with trying to increase awareness into RSS and other growth disorders.

My husband and I, along with a group of 18, are walking the length of

Hadrian's Wall which cuts from the West side of England to the East,

close to the ish border. It's 87 miles ni total and we are hoping

to do it in 4.5 days. is staying with Nan & Gramps for 4 days,

but ehn they will all be walking the last 11 miles on the Sunday with

us (I'm guessing ni a pushchair/on shoulders, otherwise it will

take forever!!)

If you are interested, we have put together a website, please take a look:

http://www.justgiving.co.uk/cgfhadrianswall

If you have any family/friends/colleagues who you think would like to

contribute to this worthy cause, please pass on the link. We're hoping

to raise enough to fund more research into RSS.

Thanks for reading this far!

Love Rae,

mum to , 3, RSS, 86cm, 22lbs 11oz, London, UK