New to RSS????

[Guest guest]

Hi, my 4 years old son has just been told that he falls

within the " spectrum of RSS " (whatever that means?!). After suffering

for 4 years with repeated dr visits and tests, were relieved at a name

for the pain, yet left with yet more questions. We're in the process

of getting insur approval and apt with Dr. H in New York (after reading

all of your wonderful success stories on MAGIC Foundation)and hoping

you more experienced moms can help lead the way a little for us!

is 4 yrs 4 months, 27lbs and 37 inches. He had a fundo and

G-tube put in in March of 2004, with still no improvement. He has many

of the characteristics of RSS yet not all of them, yet so many of your

stories describe him to a T !

In any case I'm kind of alone in my efforts, researching and taking the

action to find help, yet unsure of my every move as well. I would just

really love to find someone who can take his history and give us hope

for his future, direction. THis spinning in circles is for the birds!

Any help or advice would be very appreciated!

-Siss@

P.S. I'm in California...Doctors dont give much credence to RSS or

hypoglysemia here!