Re: Problems Linked with CF

[Guest guest]

Hi, Christee. Actually, my son WAS born with congenital scoliosis, which we

didn't really realize until he was 7.5 months old and sitting up unsupported.

He was kinda leaning his body to one side and each time I straightened him, he

would go back and lean to that side again. He also had a slight rib hump. But

no hairy patches. A tiny sacral crease, but no dimple or anything really

noticeable or concerning on is back.

When we had a follow-up for his foot at 8 months old, I asked the ortho to

check out his spine and he did an x-ray right then and there and that's when it

was confirmed that there were vertebral anomalies--5 vertebrae fused together on

one side. (He just had spinal fusion surgery 6 weeks ago to this day, fusing

the other side of those vertebrae.)

That said, there are so many kids on this board with little dimples or hairy

patches and it means absolutely NOTHING, so please don't worry. Next time you

go to your ortho though, just have him take a look at your daughter's back.

Keep us posted!

mom to (12/15/04)

nosurgery4clubfoot wrote:

Message: 10

Date: Sun Jun 4, 2006 12:55 pm (PDT)

From: " Christee " christeedawson@...

Subject: Problems linked w/CF?

I found this online looking at another post.

NOW I AM REALLY CONCERNED! Lilee has a good hair patch on her lower

back where her spine meets her butt. We have always thought it was kinda

cute, but it has been a curiosity to me always. I myself have minor

scoliosis. So hereditary, she may have it. Do any other kids here have

scoliosis also along with CF? How did you know? Do they have the hair

patch? I have always thought her CF leg was longer than the other. This may

explain that? I am going to call her ped. Dr. tomorrow and set up an

appt. Any feedback GREATLY appreciated! Q: Are there any signs

that parents might look for? A: There may be signs such as a rib hump or

a small " bump " on the back. There may be foot problems, such as a

clubfoot, which could be a tip off. Quite commonly, one will find a hair

patch somewhere along the spine. If you notice any of these signs, take

your child to a scoliosis specialist immediately. Reprinted

by permission of

The National Scoliosis Foundation

72 Mt. Auburn Street

Watertown, MA 02172

TEF/Vater® International

is a nonprofit organization founded by Greg and Terri Burke after their

daughter, Jaclyn, was born with esophageal atresia in 1990. To those

children, born and unborn, with esophageal atresia, tracheo-esophageal

fistula, and/or the VATER/VACTERL Association, and to the very special

parents and medical staff who love and care for them, this organization

is dedicated

phone | fax | email info@...

Christee

Mother of...

*Josh (9)~Learning/Speech Delays

**Aspen (6)~ Bilateral Metatarsus Adductus

***Dylan (4)~PTSD/Anxiety

****Lilee (10 months)~A-Typical ®

*P/M Brace 10/24 by request of Dr. P

*Special tongue pads f/ due to chubbyness of foot

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