Re: Visit to Iowa City

[Guest guest]

So sorry you had trouble with the shoes/bar. If there is someone at

your Hospital (orthotis)that needs help with these maybe I can help.

I'd find out if Dr. Loder or any of his partners plan on dealing much

with Clubfeet, Ponseti style. We could figure out trainning for them

or suggest they visit Dr. Ponseti and his people for a few days.

-- In nosurgery4clubfoot , " and Claire "

wrote:

>

> ,

>

> It's great you'll be able to make the trip. You will be so glad you

> did! There have been several posts recently on this topic with good

> ideas for things to do; I know you'll get good tips, but in the

> meantime the following website might help:

> http://www.iowacitycoralville.org/

> It's a nice area to visit, easy to get around, and quite a few

family

> friendly things to do.

> Let us know how the appt. and trip go!

>

> and Claire

>

>

> >

> > Hello,

> >

> > We are going to see Ponseti on April 3rd for a consult on our

> daughters

> > foot. This will be our first trip to Ponseti/Iowa.....can any

one

> > share some information on fun family type things to do in Iowa

> City?

> > We are combining this trip with our older son's spring break and

so

> we

> > like to make it fun for him. I have started searching for

> > information online but then I thought about you guys and your

> wonderful

> > wealth of information!!!!! We are so excited to meet Dr.

Ponseti

> and

> > check out the correction on Mallory's foot and her adjustment to

> the

> > 's....because our doctor is not familiar with them!

> >

> > Thank you for any fun ideas!

> >

> > & Mallory (urcf supposed to be 23/7 in Markell's but

recasted

> due

> > to sores and waiting for 's to be mailed to us on

> Wednesday!!!!)

> >

>

[Guest guest]

Beth,

Thank you! Mallory had the Markell shoes on for 4 days and ended up

with pressure sores on the top and bottom of her non-cf. I called

Dr. Loder's office and his nurse was not familiar with the

shoes and indicated that she wasn't sure if Dr. Loder was familiar or

not. He was willing to write a script for her to get the 's

(which was kind of scary!) so we moved ahead with requesting the

impression kit but I'm nervous because Dr. Loder is not experienced

with them. Dr. Loder does deal alot with clubfeet Ponseti style(at

least from the number of people that I've had conversations with in

the waiting room!) As a novice to all of this...I think her foot

looks good and she has good dorsiflexion. I think Dr. Loder and/or

the Orthoist would benefit from information about the 's.

Although Dr. Loder wasn't very receptive when I tried to present the

information that I had Mallory is currently re-casted to hold

her correction and her non-cf is open to air and healing so hopefully

when we receive the 's (maybe as soon as Friday) we can start

again with the FAB process.

Thanks for your offer to help....it is greatly appreciated! I would

love for Riley Hospital to be more informed!

In nosurgery4clubfoot , " Beth " wrote:

>

> So sorry you had trouble with the shoes/bar. If there is someone at

> your Hospital (orthotis)that needs help with these maybe I can

help.

> I'd find out if Dr. Loder or any of his partners plan on dealing

much

> with Clubfeet, Ponseti style. We could figure out trainning for

them

> or suggest they visit Dr. Ponseti and his people for a few days.

>

>

> -- In nosurgery4clubfoot , " and Claire "

> <atemc@> wrote:

> >

> > ,

> >

> > It's great you'll be able to make the trip. You will be so glad

you

> > did! There have been several posts recently on this topic with

good

> > ideas for things to do; I know you'll get good tips, but in the

> > meantime the following website might help:

> > http://www.iowacitycoralville.org/

> > It's a nice area to visit, easy to get around, and quite a few

> family

> > friendly things to do.

> > Let us know how the appt. and trip go!

> >

> > and Claire

> >

> >

> > >

> > > Hello,

> > >

> > > We are going to see Ponseti on April 3rd for a consult on our

> > daughters

> > > foot. This will be our first trip to Ponseti/Iowa.....can any

> one

> > > share some information on fun family type things to do in Iowa

> > City?

> > > We are combining this trip with our older son's spring break

and

> so

> > we

> > > like to make it fun for him. I have started searching for

> > > information online but then I thought about you guys and your

> > wonderful

> > > wealth of information!!!!! We are so excited to meet Dr.

> Ponseti

> > and

> > > check out the correction on Mallory's foot and her adjustment

to

> > the

> > > 's....because our doctor is not familiar with them!

> > >

> > > Thank you for any fun ideas!

> > >

> > > & Mallory (urcf supposed to be 23/7 in Markell's but

> recasted

> > due

> > > to sores and waiting for 's to be mailed to us on

> > Wednesday!!!!)

> > >

> >

>

[Guest guest]

,

I was the one who introduced our ortho, and therefore the entire ortho practice

at the children's hospital here, to the shoes. My ortho was intrigued

by the concept and then, when I had the s to show him, he ran around

like a little kid showing all the other docs in the office. (all orthos) I had

to wait to leave so he could show everyone the shoes. LOL He is sending all

his club foot babies to get s now. Don't worry that your ortho has not

had experience with the s. If your baby's foot is fully corrected, then

the shoes are a breeze to use, in my opinion. They do come with some

instructions and you can get more info here if need be. But, anyway, I am glad

that we are introducing orthos all over the country to an alternative shoe for

club foot babies!

Carol and , 10-27-05, bcf, 23/7 in s

Re: Visit to Iowa City

Beth,

Thank you! Mallory had the Markell shoes on for 4 days and ended up

with pressure sores on the top and bottom of her non-cf. I called

Dr. Loder's office and his nurse was not familiar with the

shoes and indicated that she wasn't sure if Dr. Loder was familiar or

not. He was willing to write a script for her to get the 's

(which was kind of scary!) so we moved ahead with requesting the

impression kit but I'm nervous because Dr. Loder is not experienced

with them. Dr. Loder does deal alot with clubfeet Ponseti style(at

least from the number of people that I've had conversations with in

the waiting room!) As a novice to all of this...I think her foot

looks good and she has good dorsiflexion. I think Dr. Loder and/or

the Orthoist would benefit from information about the 's.

Although Dr. Loder wasn't very receptive when I tried to present the

information that I had Mallory is currently re-casted to hold

her correction and her non-cf is open to air and healing so hopefully

when we receive the 's (maybe as soon as Friday) we can start

again with the FAB process.

Thanks for your offer to help....it is greatly appreciated! I would

love for Riley Hospital to be more informed!

In nosurgery4clubfoot , " Beth " wrote:

>

> So sorry you had trouble with the shoes/bar. If there is someone at

> your Hospital (orthotis)that needs help with these maybe I can

help.

> I'd find out if Dr. Loder or any of his partners plan on dealing

much

> with Clubfeet, Ponseti style. We could figure out trainning for

them

> or suggest they visit Dr. Ponseti and his people for a few days.

>

>

> -- In nosurgery4clubfoot , " and Claire "

> <atemc@> wrote:

> >

> > ,

> >

> > It's great you'll be able to make the trip. You will be so glad

you

> > did! There have been several posts recently on this topic with

good

> > ideas for things to do; I know you'll get good tips, but in the

> > meantime the following website might help:

> > http://www.iowacitycoralville.org/<http://www.iowacitycoralville.org/>

> > It's a nice area to visit, easy to get around, and quite a few

> family

> > friendly things to do.

> > Let us know how the appt. and trip go!

> >

> > and Claire

> >

> >

> > >

> > > Hello,

> > >

> > > We are going to see Ponseti on April 3rd for a consult on our

> > daughters

> > > foot. This will be our first trip to Ponseti/Iowa.....can any

> one

> > > share some information on fun family type things to do in Iowa

> > City?

> > > We are combining this trip with our older son's spring break

and

> so

> > we

> > > like to make it fun for him. I have started searching for

> > > information online but then I thought about you guys and your

> > wonderful

> > > wealth of information!!!!! We are so excited to meet Dr.

> Ponseti

> > and

> > > check out the correction on Mallory's foot and her adjustment

to

> > the

> > > 's....because our doctor is not familiar with them!

> > >

> > > Thank you for any fun ideas!

> > >

> > > & Mallory (urcf supposed to be 23/7 in Markell's but

> recasted

> > due

> > > to sores and waiting for 's to be mailed to us on

> > Wednesday!!!!)

> > >

> >

>

[Guest guest]

It is my experience that if the physician and orthotist do not have a

working relationship to understand and respect the knowledge of the

other they are not on the same page. There MUST be open communication

between them. If they do not extend themselves to work the rest of

the puzzle by reaching out to the resources available they are

failing their patients.

This is a HUGE road block to accomplishing success with the Ponseti

method. This missing link can be fixed with some push to bring these

services together. You as parents have seen the teaching should not

be to physicians alone but to their ancilary staff as well.

> > > >

> > > > Hello,

> > > >

> > > > We are going to see Ponseti on April 3rd for a consult on our

> > > daughters

> > > > foot. This will be our first trip to Ponseti/Iowa.....can

any

> > one

> > > > share some information on fun family type things to do in

Iowa

> > > City?

> > > > We are combining this trip with our older son's spring break

> and

> > so

> > > we

> > > > like to make it fun for him. I have started searching for

> > > > information online but then I thought about you guys and your

> > > wonderful

> > > > wealth of information!!!!! We are so excited to meet Dr.

> > Ponseti

> > > and

> > > > check out the correction on Mallory's foot and her adjustment

> to

> > > the

> > > > 's....because our doctor is not familiar with them!

> > > >

> > > > Thank you for any fun ideas!

> > > >

> > > > & Mallory (urcf supposed to be 23/7 in Markell's but

> > recasted

> > > due

> > > > to sores and waiting for 's to be mailed to us on

> > > Wednesday!!!!)

> > > >

> > >

> >

>

[Guest guest]

Carol,

Thank you so much for sharing! It makes me feel better to know that

we aren't alone in this process and that you were able to introduce

the 's to your ortho and have it be successful. And because

of that...look at all the other children and their parents who were

helped because of you and ! It's hard because I've been so

excited for her 's to arrive but also scared because it's all

so new and unknown but you've helped me to know that we are doing the

right thing for Mallory!

Thank you!

& Mallory (11-21-05 urcf--waiting for 's to arrive )

> > > >

> > > > Hello,

> > > >

> > > > We are going to see Ponseti on April 3rd for a consult on

our

> > > daughters

> > > > foot. This will be our first trip to Ponseti/Iowa.....can

any

> > one

> > > > share some information on fun family type things to do in

Iowa

> > > City?

> > > > We are combining this trip with our older son's spring

break

> and

> > so

> > > we

> > > > like to make it fun for him. I have started searching

for

> > > > information online but then I thought about you guys and

your

> > > wonderful

> > > > wealth of information!!!!! We are so excited to meet Dr.

> > Ponseti

> > > and

> > > > check out the correction on Mallory's foot and her

adjustment

> to

> > > the

> > > > 's....because our doctor is not familiar with

them!

> > > >

> > > > Thank you for any fun ideas!

> > > >

> > > > & Mallory (urcf supposed to be 23/7 in Markell's but

> > recasted

> > > due

> > > > to sores and waiting for 's to be mailed to us on

> > > Wednesday!!!!)

> > > >

> > >

> >

>

>

>

>

>

>

>

[Guest guest]

Beth,

I feel like we have learned that lesson the hard way! Which is most

of the reason why we want to go have a consult with Dr. Ponseti and

make sure we are on the right path for the treatment of Mallory.

It's frustrating when you feel caught in the middle of office

politics and all you want is what's best for your child!

> > > > >

> > > > > Hello,

> > > > >

> > > > > We are going to see Ponseti on April 3rd for a consult on

our

> > > > daughters

> > > > > foot. This will be our first trip to Ponseti/Iowa.....can

> any

> > > one

> > > > > share some information on fun family type things to do in

> Iowa

> > > > City?

> > > > > We are combining this trip with our older son's spring

break

> > and

> > > so

> > > > we

> > > > > like to make it fun for him. I have started searching

for

> > > > > information online but then I thought about you guys and

your

> > > > wonderful

> > > > > wealth of information!!!!! We are so excited to meet Dr.

> > > Ponseti

> > > > and

> > > > > check out the correction on Mallory's foot and her

adjustment

> > to

> > > > the

> > > > > 's....because our doctor is not familiar with

them!

> > > > >

> > > > > Thank you for any fun ideas!

> > > > >

> > > > > & Mallory (urcf supposed to be 23/7 in Markell's but

> > > recasted

> > > > due

> > > > > to sores and waiting for 's to be mailed to us on

> > > > Wednesday!!!!)

> > > > >

> > > >

> > >

> >

>

[Guest guest]

(and our other Indy families),

I know that Dr. Ponseti and Dr. Morcuende will be doing a lot of

presentations in Chicago in March in conjunction with the AAOS.

Maybe you could put a bug in the ear of the doctors at Riley to

encourage them to attend the sessions being held regarding the

Ponseti method!

& (3-16-00, lcf)

> > > >

> > > > Hello,

> > > >

> > > > We are going to see Ponseti on April 3rd for a consult on

our

> > > daughters

> > > > foot. This will be our first trip to Ponseti/Iowa.....can

any

> > one

> > > > share some information on fun family type things to do in

Iowa

> > > City?

> > > > We are combining this trip with our older son's spring break

> and

> > so

> > > we

> > > > like to make it fun for him. I have started searching for

> > > > information online but then I thought about you guys and

your

> > > wonderful

> > > > wealth of information!!!!! We are so excited to meet Dr.

> > Ponseti

> > > and

> > > > check out the correction on Mallory's foot and her

adjustment

> to

> > > the

> > > > 's....because our doctor is not familiar with

them!

> > > >

> > > > Thank you for any fun ideas!

> > > >

> > > > & Mallory (urcf supposed to be 23/7 in Markell's but

> > recasted

> > > due

> > > > to sores and waiting for 's to be mailed to us on

> > > Wednesday!!!!)

> > > >

> > >

> >

>