Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 Thank you so much for all your messages and emails. I will reply to everyone who has mailed me privately, but it may take a while. We have been overwhelmed by everyone's love and support both in the real world and the virtual world here and on another site i am a regular on. The coroner has completed the post mortem and the cause of death is heart failure- the official term is 'pulminary hypertension resultin in an enlargement of the right ventricle' From what we can gather it is one of those things that is virtually impossible to diagnose until it happens. They do not think it is linked to RSS, so we may have to get our daughter checked out just in case- they can check for enlargement, but thats about all. The upd[7] blood test is still being carried out, so we will find out whether his RSS was inherited or not. As a result, we have been able to arrange his funeral service for Weds 29th June. We have planned a unique celebration of his life, as he was always such a happy smiley child who loved everybody. Thank you all again T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 --julie, you contunue to be in my prayers as you continue in your hard time, thanks for giving us the update, and again sorry for your loss,. stephanie - In RSS-Support , " sickybear " <sickybear@y...> wrote: > Thank you so much for all your messages and emails. I will reply to > everyone who has mailed me privately, but it may take a while. > > We have been overwhelmed by everyone's love and support both in the > real world and the virtual world here and on another site i am a > regular on. > > The coroner has completed the post mortem and the cause of death is > heart failure- the official term is 'pulminary hypertension resultin > in an enlargement of the right ventricle' From what we can gather it > is one of those things that is virtually impossible to diagnose until > it happens. They do not think it is linked to RSS, so we may have to > get our daughter checked out just in case- they can check for > enlargement, but thats about all. > > The upd[7] blood test is still being carried out, so we will find out > whether his RSS was inherited or not. > > As a result, we have been able to arrange his funeral service for Weds > 29th June. We have planned a unique celebration of his life, as he > was always such a happy smiley child who loved everybody. > > Thank you all again > > T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 , Thank you so much for the update. I have been thinking about you so much. I can't tell you how sorry I am that you are going through this. Please continue to be a part of this group. And we would love for his pictures to stay. He was a beautiful baby boy. Loving thoughts, Jodi R. 's mommy > Thank you so much for all your messages and emails. I will reply to > everyone who has mailed me privately, but it may take a while. > > We have been overwhelmed by everyone's love and support both in the > real world and the virtual world here and on another site i am a > regular on. > > The coroner has completed the post mortem and the cause of death is > heart failure- the official term is 'pulminary hypertension resultin > in an enlargement of the right ventricle' From what we can gather it > is one of those things that is virtually impossible to diagnose until > it happens. They do not think it is linked to RSS, so we may have to > get our daughter checked out just in case- they can check for > enlargement, but thats about all. > > The upd[7] blood test is still being carried out, so we will find out > whether his RSS was inherited or not. > > As a result, we have been able to arrange his funeral service for Weds > 29th June. We have planned a unique celebration of his life, as he > was always such a happy smiley child who loved everybody. > > Thank you all again > > T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 , My thoughts and payers go out to you and your family. Please keep us posted on you and your family. I will say a prayer and will have a moment of silence for Sterling on the 29th as he has touch so many lives around the world. Marcy sickybear wrote: Thank you so much for all your messages and emails. I will reply to everyone who has mailed me privately, but it may take a while. We have been overwhelmed by everyone's love and support both in the real world and the virtual world here and on another site i am a regular on. The coroner has completed the post mortem and the cause of death is heart failure- the official term is 'pulminary hypertension resultin in an enlargement of the right ventricle' From what we can gather it is one of those things that is virtually impossible to diagnose until it happens. They do not think it is linked to RSS, so we may have to get our daughter checked out just in case- they can check for enlargement, but thats about all. The upd[7] blood test is still being carried out, so we will find out whether his RSS was inherited or not. As a result, we have been able to arrange his funeral service for Weds 29th June. We have planned a unique celebration of his life, as he was always such a happy smiley child who loved everybody. Thank you all again T --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 Oh , I am so sorry to hear the cause of Stirling's death was something unknown. Definitely get your daughter checked. was 3 1/2 before anyone ever heard a heart murmur on her and it turned out she had a large hole in her heart called an ASD (atrium secondum defect) a hole between the two chambers. I continue to pray for you and your family. You can always count on us for support. God Bless You B 5 1/2 and Kelli 2 3/4 sickybear wrote: Thank you so much for all your messages and emails. I will reply to everyone who has mailed me privately, but it may take a while. We have been overwhelmed by everyone's love and support both in the real world and the virtual world here and on another site i am a regular on. The coroner has completed the post mortem and the cause of death is heart failure- the official term is 'pulminary hypertension resultin in an enlargement of the right ventricle' From what we can gather it is one of those things that is virtually impossible to diagnose until it happens. They do not think it is linked to RSS, so we may have to get our daughter checked out just in case- they can check for enlargement, but thats about all. The upd[7] blood test is still being carried out, so we will find out whether his RSS was inherited or not. As a result, we have been able to arrange his funeral service for Weds 29th June. We have planned a unique celebration of his life, as he was always such a happy smiley child who loved everybody. Thank you all again T --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 JULIE- i will keep you, your family, and your little angel stirling in my thoughts and prayers!! words cannot express the grief you all must be feeling right now!! ((HUGS)) jodie c > Thank you so much for all your messages and emails. I will reply to > everyone who has mailed me privately, but it may take a while. > > We have been overwhelmed by everyone's love and support both in the > real world and the virtual world here and on another site i am a > regular on. > > The coroner has completed the post mortem and the cause of death is > heart failure- the official term is 'pulminary hypertension resultin > in an enlargement of the right ventricle' From what we can gather it > is one of those things that is virtually impossible to diagnose until > it happens. They do not think it is linked to RSS, so we may have to > get our daughter checked out just in case- they can check for > enlargement, but thats about all. > > The upd[7] blood test is still being carried out, so we will find out > whether his RSS was inherited or not. > > As a result, we have been able to arrange his funeral service for Weds > 29th June. We have planned a unique celebration of his life, as he > was always such a happy smiley child who loved everybody. > > Thank you all again > > T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2005 Report Share Posted June 25, 2005 , Our thoughts thoughts and prayers go out to you and your family. God Bless You, le Quote Link to comment Share on other sites More sharing options...
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