Re: VENT:Autumn had her upper gi and ph probe...RESULTS &THANKS

[Guest guest]

Hi. THank you everyone who responded and everyone who responded to

my last e=mail before we went! I am sure we all have experiences

like this, it's so frustrating. I have to get my experience down on

paper and form a complaint. I havn't done anything yet, I havn't had

time, but i will do it this week. Thanks for the offer of help.

We got the results back last night. They said no signifigant reflux,

just normal like everyone else. My gut says that is right because

ihavn't had many problems with her, jsut basically when she is sick.

hanks again everyone!

>

> Hi. We got back yesterday from Autumn's studies, they were an

> absolute nightmare. We were there by 10:30 and got admitted then

> went to radiology for the probe. 2.5 hours later at 1 it got put

in

> over 2 hours late. Then they had problems with the room and

> transport to take us there, we were sent out to the waiting room

for

> a 'couple' of minutes. Autumn was screaming, gagging, vomiting

spit

> and mucous, drooling and we were in the waiting room! WE should

have

> been in the hospiatal room by then! Then 15 minutes passed, I went

> up to the desk adn they made phonecalls and then I was told the

room

> wouldn't be ready until 1:45 although it should have been ready at

> 10! Then transport never came. Autumn was still gagging and

vomitin

> and dripping wet with drool, she was too scared to swallow so her

> mouth was hanging open and by now summer was hungry and just

> screaming. I went up and said I needed a supervisor now, then I

just

> started to cry. Now I am not a crier, especially in public so it

was

> horrible. Finally a manager came and after about 15 more minutes

> later we were taken to a room but not in the place we originnaly

had

> a room reserved. We get up there I demand she drinks something

(she

> wouldn't immediatly after the probe but was thirsty) they tried

> saying no because her recording box wasn't hooked up yet but I said

> it had been hours since she had anything so they need to come up

now

> or she will drink! So she got a drink adn finally by 3 they

hooked

> the box up for recording. The probe was then loose around the nose

> (it was tape\d on the cheek) and no one could figure how to tape it

> right up there and keep it from moving so it made her gag and they

> kept tryign and didn't kow what to do. I ended up having to tell

> them to use one of those things that are used to keep oxygen tubes

in

> place, this was done at 10 p.m.

> Doctors were coming in and asking why is she having this done? Why

> did a surgeon order it and not a gi doctor? Why are we here? I

was

> asked this numerous times over the visit. There was constant

> misinformation and I kept being passed off to the next person. I

was

> told they would be back at 9 to take out the probe adn by 9:30 next

> morning no one came. Finally someone found out I was supposed to

> call some number to let them know when she had last ate and they

> would be there 2 hours later. I had another manager come and

> everything was just a big mess. No one told me anythign, no one in

> this wing knew about probes, it turns out the original place we

were

> told we were staying that morning was the place these tests were

> done, so they were clueless here. I was also told to push the

button

> during her eating and crying/ gagging but they failed to mention

push

> it 2 times to hear the beep, I realized this later on that night

> after a problem so a lot of stuff at first was not recorded.

>

> Then came the upper gi after the probe was out. We got in on time

> but over 1 hour of 3 people and me trying and we could not get

Autumn

> to drink any barium out of a bottle, cup/straw, syringe, some

strange

> contraption they made didn't work, they added chocolate to

> it....nothing, a couple of drops got down her throat so she threw

it

> up. Finally they needed to ng tube her to give her barium. The

> whole experience was a nightmare.

>

> I was advised by the manager in radiology to file a complaint

with

> the hospital about the problems with the probe and room. I will be

> doing that soon.

>

> Thanks for listening.

>

> mom to Autumn 20.5 mos RSS, Summer, Ocean, Skye

>