Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Hi I am new to the group. My daughter is SGA- born weughing 3 pounds 14 ounces with head and length also well below 3rd percentile. She doesn't seem to have russell silver syndrome but it has been impossible to get her to eat since she was born. Is SGA similar to RSS, are the issues similar? She is now almost 4 months and I have difficulty getting her to eat. She is just on 3rd percentile on the height for weight curve. She is 22 height-3rd percent and 9 pounds 6 ounces- below 3rd percent. She is on reglan, pepcid and prevacid for reflux. But I don't know what to do because she is now eating less than she used to. The most she has eaten is 18 ounces ina day on 24kcal/ounce. The only way I can get her to eat is in a sleepy state. She will only eat about 40ml when fully awake. But now she is starting to refuse to eat when sleeepy as well. Is this similar to experiences other people have had? Does anyone know doctors in the Los Angeles region who knows how to deal with this? Her growth is starting to level off. She never demands for food. I currently feeed her every 4 hours and it takes an hour to get her to take anything. Does anyone have some advice for me. She is getting a gastric empting study tommorrow. My pediatrician said that she doesn't think giving her more calories will make her grow any better- this doesn't sound right to me. My pediatrician said that she will have growth spurts so it is ok for her not to gain good weight occasionally and that she may improve as she get older. But her eating seems to be worsening. Does anyone have some advice? Thanks, Quote Link to comment Share on other sites More sharing options...
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