Re: Camila

[Guest guest]

While it is true that Canola Oil is the best of the oils {at a good price}

Extra Virgin Olive Oil is considered THE healthiest {although it pricier}.

So if you can't find Canola Oil, you can use the other.

Deb

Re: Questions regarding tubes - Jen

> Jen - Food has been an issue in our family since Victor was born

> (suppose we're not the only ones!), even though I think it has been

> working quite well over the last year. But once in a while I

> question myself: do I give him the right food? He has normally

> three meals of the nutrition drink (breakfast, afternoon break and

> before bed). In school he has a morning snack containing of a

> sandwich with butter (don't want cheese) and some nutrition drink.

> For lunch he has pasta with parmesan cheese in school (he won't

> taste meat or fish or vegetables). For suppper and lunch on weekends

> he still has the baby food in jars, to which I add rape seed oil

> (which I've been told is the healthiest) MaxiJul (Carbohydrates) and

> 1/2 eggyelk or some extra meat if I have leftovers. From this I make

> a puré with a hand mixer, it's the only way to make him eat it. (And

> he is still beeing fed by Mommy, who also reads a book to him. I

> think we'll never get over this habit.)This has been working well

> for a long time.

> Normally he also has something together with our supper; pasta,

> sausage, mashed potatoes..

>

> Choccolate and cakes he doesn't get every day. Normally only when we

> have guests or other occasion (at Grandmother's for instance). From

> the sweets he gets at birthday parties he only eats a part, the rest

> he gives to us. Anyway, it feels good to hear I'm not the only one

> who thinks cakes and sweets should not be part of RSS children's

> normal diet, and thinking about their future health.

>

> Next step for me right now is to find out more about Canola oil

> (it's not on my dictionary, so I don't know what it is, but I will

> ask my Irish neighbour) and try if he likes pinto beans.

>

> I'm also waiting for an answer from his endo when we are going to

> start the GH treatment, we have been waiting and asking for almost a

> year now.

>

> /Camilla

>

>

>

> > > > > Hi all,

> > > > > I have a few questions about feeding tubes. It seems that

> > most

> > > of

> > > > > the kids have them. Can you tell me at what point they seem

> > to

> > > > need

> > > > > them? Our Ped wasn't following Noah that closely (will be

> now

> > > and

> > > > > I'm considering changing ... took me 3 mos to get the

> > chomosome

> > > 7

> > > > > results that I'm sure were sitting there that long).

> > > > >

> > > > > Noah has never been sick and in hospital, he seems to eat

> but

> > > it's

> > > > > not much at a time, I'm getting really worried that we

> aren't

> > > > doing

> > > > > enough except at the same time I'm worried that he will need

> a

> > > > tube.

> > > > > Do you know what I mean? We were worried lately about

> > > > hypoglycemia

> > > > > he's always been a sweaty little guy (but then my others are

> > too)

> > > > and

> > > > > lately he started waking in the night ... we've been giving

> > him

> > > > milk

> > > > > not knowing if it was his sugars or if it was just

> > behavoural.

> > > > Also

> > > > > since finding more info about RSS from here and Magic, I

> > started

> > > > > putting a little corn starch in his milk before bed.

> > > > >

> > > > > I'm hoping the endocrinologist will shed some light next

> week

> > > when

> > > > we

> > > > > go cause we don't see the ped until november. I'm also

> going

> > to

> > > > ask

> > > > > about that drug that starts with P for appetite. Sorry not

> up

> > > on

> > > > all

> > > > > the names yet. I'm going to see if he'll check Noah's sugar

> > > when

> > > > he

> > > > > does the other testing. We haven't been to the ped since

> the

> > > > spring

> > > > > so I don't even know if NOah has gained weight or not.

> > > > >

> > > > > Do the kids eat too when they have tubes?

> > > > >

> > > > > Dawna

>

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