life can really suck--but we have friends!

[Guest guest]

Connie, I really enjoyed talking with you tonight in the chatroom. S. and Greg also joined in for awhile. I'd love some input on times & days for the chats, so that more folks can participate. Matt, tonight I figured out why I couldn't see the message board while typing a message--I have to click "Join chat." I was just clicking "Write new message." Not sure why it's set up that way, but at least I know what to do now. I hope that more of y'all can join in; just post your preferences or suggestions. Now I'm going to hit the sack as soon as I take my meds, put the dogs out, give one dog & one cat their UTI meds, give all 6 critters a treat, brush my teeth, etc!

Ramblin' RoseModerator COLTS STILL ROCK!

To: Neurosarcoidosis From: conaugusta@...Date: Wed, 2 Feb 2011 18:57:26 -0800Subject: Re: life can really suck

I'm sorry your having such a bad spell Marla. Emotional pain is way worse than physical pain, but I'll be praying that both of it let's up. I can not imagine how much worse the cold must be making it feel, and then having to stay inside not to make it worse. I may not can go out in the sun, but it sure makes me feel bette to see it. Are you under the super storm, I hope not. I'm sorry I haven't been around much lately, I'll try to do better. Connie (believe it or not I'm still kicking)

To: neurosarcoidosis Sent: Wed, February 2, 2011 6:28:36 PMSubject: RE: life can really suck [1 Attachment]

Marla, these are the times that you need the BSF (Bootstrap Fairies). When you don't have the energy or will to pull up those bootstraps & keep on, call on the Fairies! Remember that I am, myself, a certified BSF. So you just give that child a hug when she comes home, get some rest, and by tomorrow, some fairy dust will have dissolved some of the tension.

Ramblin' RoseModerator COLTS STILL ROCK!

To: neurosarcoidosis From: mebramer@...Date: Wed, 2 Feb 2011 17:10:48 -0700Subject: life can really suckAfter fighting with the pharmacy's incompetent people for over a week, I did NOT get my Remicade today, I called every day for a week, sometimes 2-3 times a day, and everyone had a different answer for why it couldn't be processed. now I am rescheduled for Friday, and I just pray that they can get it there, finally this am, I talked to someone who was able to take care of everything and said it would be delivered tomorrow, I sure hope so. Then today after having a talk with my daughter about some things happening here, she left, out the door, light jacket and 7 degrees. after a couple hours of you know what, my son whom I had been in contact with and is the closest brother, was able to make contact, he has now picked her up and taking her out to dinner to pick her brain. He is such a good boy, he has to deal with the Bi Polar, so he is very sensitive to feelings. It's cold here, as everywhere I know, actually I'm too numb to be in pain from the cold, feel like I weigh 1000 lbs, why is that emotional pain is so much draining, between my daughter and not getting Remicade, although that was probably why I wasn't in the mood to have my 15 yo daughter test me today. I keep trying to check in, and help, but feel I've been a bigger burden, I'm sorry. Need to pull up my boot straps:) and move on. MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)