Guest guest Posted June 14, 2005 Report Share Posted June 14, 2005 Hello. My name is I just found your support group the other day. I have a niece Madyseon who was just diagnosed w/ silver syndrome. I myself and not really familiar with the disorder, so any help would be greatly appreciated. Madyseon screams at night a lot it's almost like a night terror but it happens during the day sometimes when she sleeps and it happens all night long... is this a part of RS or should we be concerned? Also she has very poor hearing ? She will be 2 in July and doesn't speak... is this a part of RS? Finally my family is from OH does anyone know of a support group they might be able to attend? Please help! Thanks-- Quote Link to comment Share on other sites More sharing options...
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